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Topic: Your User Name

Forum: Humor and Games — Breast cancer is no laughing matter, but sometimes a good joke or a game is the best medicine.

Posted on: Feb 11, 2015 02:56AM - edited Feb 11, 2015 02:58AM by SugarCakes

SugarCakes wrote:

Wasn't sure where to put this. Care to share some reason or meaning behind your user name? I signed up while still waiting for the official diagnosis with the biopsy results. Someone had told me that BC.org was the best place to go. I stuck with the user name I had just created not even a year ago on the "just breast implants" websites. Oh the irony, huh? SugarCakes, and sometimes simply Cakes, is a pet name the BF had given me for my lovable, huggable almost A cups. Breast Augmentation was totally my idea and something I always secretly planned for once I knew my child bearing and breastfeeding days were behind me. That reminds me... What happened to "breastfeeding reducing the risk of breast cancer"??? Anywho, I so want to ask the PS about a partial refund. Then again, I think having the implants may have made me more in tune to notice the lump myself. I liked looking at them and feeling them.

I sorta want to change it to some fierce, warrior-like name now. I'll stick with SugarCakes, however.

46 years old Dx 1/20/2015, IDC, Left, 4cm, Grade 3, ER-/PR-, HER2+ Targeted Therapy 2/2/2015 Perjeta (pertuzumab) Chemotherapy 2/2/2015 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/2/2015 Herceptin (trastuzumab) Surgery 7/6/2015 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/9/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/6/2015 Whole-breast: Breast Surgery 2/21/2017 Reconstruction (left): Fat grafting, Silicone implant Surgery 1/30/2018 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement
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Feb 11, 2015 05:27AM Trvler wrote:

Mine's pretty dull. I like to travel.


I breastfed for 3 solid years (with two different kids). But I did have my kids later in life (40 and 41).

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/1/2016
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Feb 11, 2015 05:34AM sewingnut wrote:

Love to sew, hence sewingnut :)

Dx 12/2010, IDC, 5cm, Stage IIIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+
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Feb 11, 2015 08:49AM SpecialK wrote:

My husband spent 28 years in the Air Force - as you know from the movie Top Gun aviators have "call signs" like Maverick and Goose - another pilot friend of my husband's christened me Special K in those early days as a military spouse because my first name starts with K, and it stuck - it has been a nickname since 1984.  I was actually surprised it had not already been taken when I signed up for BCO.

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Feb 11, 2015 09:08AM Spookiesmom wrote:

That's Spookie in my avatar. Most pet parents call themselves mom or dad, right

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Feb 11, 2015 09:10AM MsPharoah wrote:

Love this thread. I picked my name because I am 1) a die-hard feminist from the early 70's and 2) I am mostly "in charge" (some people call that bossy) LOL.

MsP

Oncotype 24 Dx 12/4/2012, ILC, Right, 1cm, Grade 1, 0/1 nodes, ER+/PR-, HER2- (FISH) Surgery 2/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 8/21/2013 Femara (letrozole) Radiation Therapy 9/4/2013 Breast
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Feb 11, 2015 09:57AM - edited Feb 11, 2015 09:58AM by Spookiesmom

This Post was deleted by Spookiesmom.
First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Feb 11, 2015 08:48PM SugarCakes wrote:

I like JO-5

46 years old Dx 1/20/2015, IDC, Left, 4cm, Grade 3, ER-/PR-, HER2+ Targeted Therapy 2/2/2015 Perjeta (pertuzumab) Chemotherapy 2/2/2015 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/2/2015 Herceptin (trastuzumab) Surgery 7/6/2015 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/9/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/6/2015 Whole-breast: Breast Surgery 2/21/2017 Reconstruction (left): Fat grafting, Silicone implant Surgery 1/30/2018 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement
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Feb 11, 2015 09:02PM TB90 wrote:

I tried a number of other names (pet names, etc) that were all rejected as others must have already used them.  I was quite distraught at the time and thought "oh, if only I get To Be 90 some day" and thus TB90.  I am so glad this thread was started.  I actually thought about this very topic, but never got around to doing anything about it.  Thanks SugarCakes! 

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/17/2013 Mastectomy: Left Radiation Therapy 2/19/2014 Breast
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Feb 11, 2015 09:08PM SugarCakes wrote:

oh! I like that too, TB90!!!

46 years old Dx 1/20/2015, IDC, Left, 4cm, Grade 3, ER-/PR-, HER2+ Targeted Therapy 2/2/2015 Perjeta (pertuzumab) Chemotherapy 2/2/2015 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/2/2015 Herceptin (trastuzumab) Surgery 7/6/2015 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/9/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/6/2015 Whole-breast: Breast Surgery 2/21/2017 Reconstruction (left): Fat grafting, Silicone implant Surgery 1/30/2018 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement
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Feb 12, 2015 12:56AM Ariom wrote:

Not much thought went into mine, just reversed my name!

Dx Mondors Disease (cording) after Umx and "Dog Ear" removed 14 months post UMx .................. The Dx shuffles you like a deck of cards and then deals you a new hand! Dx 11/2012, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes Surgery 12/18/2012 Lymph node removal: Right, Sentinel; Mastectomy: Right
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Feb 12, 2015 12:57AM - edited Feb 12, 2015 12:57AM by Ariom

This Post was deleted by Ariom.
Dx Mondors Disease (cording) after Umx and "Dog Ear" removed 14 months post UMx .................. The Dx shuffles you like a deck of cards and then deals you a new hand! Dx 11/2012, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes Surgery 12/18/2012 Lymph node removal: Right, Sentinel; Mastectomy: Right
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Feb 12, 2015 02:02AM Holeinone wrote:

I was sick from chemo, thinking of getting healthy & playing golf again.

I have been asked if it is a play on words, due to the lumpectomy .

Spinal mets Surgery 7/22/2013 Lumpectomy: Left Chemotherapy 8/22/2013 AC + T (Taxol) Radiation Therapy 12/23/2013 Breast, Lymph nodes Dx 3/3/2016, ILC, Left, 1cm, Stage IV, metastasized to liver, Grade 2, 6/7 nodes, ER+/PR+, HER2-
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Feb 12, 2015 07:29AM TB90 wrote:

Ariom:  Now I get it!  Holeinone is cute and I got that one.  SpecialK I thought may be related to cereal :)  Spookie I had figured out too.  Pet names are always a favorite.  Love this thread.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/17/2013 Mastectomy: Left Radiation Therapy 2/19/2014 Breast
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Feb 12, 2015 07:37AM NineTwelve wrote:

Got my diagnosis on September 12. Also, the name NineTwelve makes me think of the day after 9/11, when we were all in shock, but also we woke up, in a way. I remember reaching out to people I hadn't talked to in a long time during those days. I remember that I really thought about a lot of things I had taken for granted before. Cancer did that for me, too.

12/15/20 - Progression to liver. Tx changed to Xeloda. 2021 - Tx changed to weekly Taxol. Dx 9/12/2014, IDC, 4cm, Stage IV, Grade 2, mets, ER+/PR+, HER2- Hormonal Therapy 9/15/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 10/1/2014 Dx 7/2016, IDC, Stage IV, metastasized to bone/lungs Hormonal Therapy 8/16/2016 Faslodex (fulvestrant), Zoladex (goserelin) Targeted Therapy 8/16/2016 Ibrance (palbociclib)
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Feb 12, 2015 07:59AM tangandchris wrote:

I like this one too :)

Tang is short for tangerine...I came close to being named Tangerine by my parents which happens to be a song by Led Zeppelin. I always thought it would have been cool if I had been named that instead of Amy lol. Chris is my husband's name :)

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/22/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/12/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Hormonal Therapy 12/10/2020 Faslodex (fulvestrant) Targeted Therapy Kisqali
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Feb 12, 2015 11:34AM SugarCakes wrote:

NineTwelve, I have also reached out to people I had not seen or talked to in YEARS.  Had my best friend from high school and college over last night.  Had my other best male friend - we've call each other brother and sister since 4th grade - over last week.  Funny thing is we are like 5 minutes from each other!  The best thing is we have all embraced each other as if we never lost contact and they and others are rallying behind me and offering to help in all sort of ways.

46 years old Dx 1/20/2015, IDC, Left, 4cm, Grade 3, ER-/PR-, HER2+ Targeted Therapy 2/2/2015 Perjeta (pertuzumab) Chemotherapy 2/2/2015 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/2/2015 Herceptin (trastuzumab) Surgery 7/6/2015 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/9/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/6/2015 Whole-breast: Breast Surgery 2/21/2017 Reconstruction (left): Fat grafting, Silicone implant Surgery 1/30/2018 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement

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