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Topic: Western New York Area

Forum: Members by Location —

Find other members near you for medical recommendations, meet-ups, or other local needs.

Posted on: Jan 6, 2011 12:06PM

Maureen813 wrote:

Looking for women/men on this site that are from the Western New York State Area to share stories, compare notes and plan a get together in the summer.  What do you think?

Maureen

I am strong because I know my weaknesses, I am wise because I've been foolish, and I can laugh because I've known sadness Dx 8/13/2010, IDC, 5cm, Stage IIIA, Grade 3, 4/4 nodes, ER+/PR+, HER2- Dx 11/21/2013, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 2/19/2014 Gemzar (gemcitabine), Taxol (paclitaxel) Chemotherapy 10/31/2014 Xeloda (capecitabine) Chemotherapy 4/1/2015 Navelbine (vinorelbine) Chemotherapy AC + T (Taxol)
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Sep 6, 2015 04:25PM karen333 wrote:

Hi Little Flower, I had Dr. Joel Yellin too and love him to pieces. He is kind, supportive, good with the family, even gives you his cell number so you can always reach him. He did a beautiful job and when we reached my 5 year mark and he let me loose, I felt bereft, promised to always to take my calls, you couldn't get better, he is Rochester General Breast Center.

Dx 8/8/2009, 2cm, Stage IIA, Grade 1, 0/1 nodes, ER+, HER2+
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Sep 7, 2015 11:40PM Skigirl72 wrote:

I'm in Rochester and I had Dr. Caldwell for my surgeon and Dr. Vega for reconstruction.... VERY happy with everything.....

Cancer may have started this fight, but I will finish it!! Dx 10/5/2012, ILC, 2cm, Stage IIB, Grade 2, 1/4 nodes, ER+/PR+, HER2- Surgery 11/29/2012 Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 1/4/2013 AC + T (Taxol) Dx 8/8/2013, Stage IIB, 0/14 nodes Surgery 8/8/2013 Lymph node removal: Left, Underarm/Axillary Radiation Therapy 9/9/2013 Breast, Lymph nodes Hormonal Therapy
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Nov 6, 2015 11:13PM Rozann wrote:

Hi Maureen,

I am back here after I left or awhile. I would love to be able to meet with some other women with Stage IV. I have been on Afinitor for over 1 year, but found to today it isn't working any longer and some of my liver mets have increased in size. My Doctor stopped my medication and on the 18th will do a number of scans and are a decision as to what i left. I live in the Buffalo, Niagara Falls area of Western NY. I would love to others near my area.

Dx 6/11/2008, IDC, 2cm, Stage II, ER+/PR+, HER2- Surgery 7/11/2008 Lumpectomy: Right Surgery 7/23/2008 Lymph node removal: Right, Underarm/Axillary Chemotherapy 9/11/2008 AC + T (Taxol) Dx 7/3/2013, Stage IV, mets Targeted Therapy 7/5/2014 Afinitor (everolimus) Radiation Therapy Breast
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Nov 7, 2015 09:29PM Maureen813 wrote:

Hi Rozann

I am the only other SIV woman on this site. We also share a Facebook page where al the other girls interact. If you PM me your information I'd love to invite you to our private space on fb as well.

So sorry to learn the affinitor stopped working. There are so many other treatments and I'm hoping they will find the right one for you


Love

Mauree

I am strong because I know my weaknesses, I am wise because I've been foolish, and I can laugh because I've known sadness Dx 8/13/2010, IDC, 5cm, Stage IIIA, Grade 3, 4/4 nodes, ER+/PR+, HER2- Dx 11/21/2013, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 2/19/2014 Gemzar (gemcitabine), Taxol (paclitaxel) Chemotherapy 10/31/2014 Xeloda (capecitabine) Chemotherapy 4/1/2015 Navelbine (vinorelbine) Chemotherapy AC + T (Taxol)
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Nov 8, 2015 10:33AM bevin wrote:

hi Rozann

hoping you get control with with a new med. Join the FB page too. Most of us post in both places. Keep us all posted on your scans and I am praying they have something up their sleeve to get those buggers receding!

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 8/8/2010, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/9/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 10/9/2010 Breast
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Jun 21, 2017 10:52PM Blipkitty wrote:

Hi Everyone,I'm new to this forum and wondered if anyone has had Takabe out of Roswell Park as their surgeon for lumpectomy? Or Farkas in Rochester from Strong? Any complications or concerns with these surgeons? Appreciate in advance your perspective. Wishing you all well!

Dx 5/1/2017, IDC: Mucinous, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+, HER2- Surgery 7/5/2017 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 8/20/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/26/2017 Whole-breast: Breast
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Jun 24, 2017 04:53PM - edited Jun 24, 2017 04:53PM by bevin

hi there.  I was at Roswell and had Dr Edge. The biggest thing to ask at both hospitals since they are teaching hospitals, is " who will actually perform your surgery?". Edge was my surgeon, but a Resident operated on me with him over seeing the operation, but not doing the cutting or actual surgery. So if that is important to you , definitely ask the question. Given its summer, both hospitals will have newer residents just out of med school.  Dr Edge is retired now but at the time was head of the BC surgical teams.  I had lumpectomy and no issues . I'm glad I did that over mastectomy as that is a very big surgery and you can have many more risks with complications, infections etc. Good luck to you and stay in touch.


There is also a WNY breast cancer facebook page we all belong to. If you're on facebook look it up. The ladies are pretty active there.  A great group of woman and we get together for lunches, support etc.

Bevin

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 8/8/2010, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/9/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 10/9/2010 Breast
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Jun 24, 2017 09:45PM Blipkitty wrote:

Thank you, Bevin. Great reminder on the teaching hospital aspect as well as the Facebook resource. Wishing you well!

Dx 5/1/2017, IDC: Mucinous, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+, HER2- Surgery 7/5/2017 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 8/20/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/26/2017 Whole-breast: Breast
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Feb 8, 2021 01:39PM Sand21 wrote:

Hi

I’m trying to find the right place to ask about a DIEP flap at Roswell in Buffalo NY

I’m new to the community - had implants done 12 years ago at age 46 after a double for a stage 3B but because of implantproblems PS has put this on the table.

I’m worried - but I hate the implants.

Any forum someone could steer me to for people in my area ? Thank you so much

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Feb 8, 2021 04:01PM Moderators wrote:

Dear Sand21,

Welcome to the BCO community. We are glad that you reached out to our members for some help. This particular topic has not seen recent activity which may impact a timely response from others. You can possible find some members in this thread who are still active and send them a private message for more information. You can also check out the Reconstruction Forum and perhaps find some others that way.Here is a link to more information about DIEP and getting a second opinion. You will find an 800 number there to the NCI's Cancer Information Service which might be a help to you. Let us know what else we can do.

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...

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