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Topic: Tampa area BCO sisters II

Forum: Get Togethers — Organize, plan, and communicate with your friends during offline events.

Posted on: Mar 22, 2016 09:29PM - edited Jan 2, 2019 09:59AM by SpecialK

SpecialK wrote:

The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you have found this thread and wish to join us - please do!

Here is the link to the previous thread - it contains a lot of love, and we thank MondaysChild for her leadership and management of our "get togethers" to date.

https://community.breastcancer.org/forum/34/topics/791258?page=57#idx_1694


Watch this header for updates to our schedule.

__________________________________________________________________________________________________________________________________

Next gathering TBD




BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Mar 22, 2016 09:57PM MondaysChild wrote:

This continuing of a previous thread could not be in more caring hands. Thank you for tending to our group, SpecialK. And love to all of you.

Dx 10/15/2010, IDC, Left, 2cm, Stage IIA, Grade 2, 1/11 nodes, ER+/PR+, HER2- Surgery 11/22/2010 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Surgery 12/8/2010 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 1/26/2011 AC Chemotherapy 4/20/2011 Taxol (paclitaxel) Hormonal Therapy 8/31/2011 Femara (letrozole) Dx 2/4/2016, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2- Hormonal Therapy 2/10/2016 Faslodex (fulvestrant)
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Mar 22, 2016 10:01PM SpecialK wrote:

MC - it will be my privilege!

This is how we started, seven sisters!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Mar 23, 2016 07:19AM nbnotes wrote:

The May 14th date that was mentioned at the end of the previous thread would work for me too. I would be good with potluck or whatever is easiest for all.

Thank you SpecialK for continuing this, and thanks to Mondayschild for carrying the torch for so long!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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Mar 23, 2016 10:36AM SpecialK wrote:

nbnotes - yay! A potluck would be fun - I think we did one at Firework's house previously, right? When the time gets closer we can refine who is bringing what.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Mar 26, 2016 11:30AM Galsal wrote:

Thank you for taking over, SK! May 14th so far appears available. It will be a wonderful gathering of caring ladies, as we do so need at times.

MC, I'm only a call or text away for anything you need. Truly!

Hugs to you all.

Sal

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 11, 2016 09:37AM bougain wrote:

Hi TampaK,

Just dx with IDC and looking to join this type of informative forum. Pls let me know of the time and venue I certainly will attend.

Thank you......Bougain

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Apr 11, 2016 10:09AM SpecialK wrote:

bougain - add this thread to your favorites and watch the header for the specifics for the next get together - this is a fun and knowledgeable group - we welcome you!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 17, 2016 05:15PM kira1234 wrote:

Specialk where are you planning the get together in May? I'm going to be in Tampa Thursday to see dr Wright and will just stay for the weekend.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Apr 17, 2016 07:13PM SpecialK wrote:

Kira - last we discussed it would be a member home here in Tampa, but I need to revisit and confirm. I will do that ASAP and put the details in the header as quickly as I can, as it is getting close enough to the date that people need to be able to plan. Stay tuned

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 17, 2016 07:48PM kira1234 wrote:

I'm trying to get in touch with an old member from our original get together whom I'm still in touch with. She has also gone stage 4.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Apr 17, 2016 10:41PM SpecialK wrote:

kira - PM'ed you

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 18, 2016 04:47PM Galsal wrote:

So glad I decided to take a peek at this today. Entirely forgot to put the May event in my calendar. It's there now! Phew

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 27, 2016 12:20AM SpecialK wrote:

Our May get together info is posted in the header above!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 27, 2016 12:17PM AnnAlive wrote:

Please count me in on the May potluck. What to bring? Hmmm, I'm not much of a cook, but I'm thinking.

AnnAlive - 2011: AC/TH, BMX, ALND, TEs. 2012: Rads, DIEP. 2014: LE. Dx 4/5/2011, IDC, Stage IIIC, Grade 3, ER-/PR-, HER2+
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Apr 28, 2016 07:20PM kira1234 wrote:

i had a mini stroke on Monday. I'm hoping I can still be there but want to let you all know.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Apr 28, 2016 08:52PM SpecialK wrote:

kira - oh no! Are you doing ok?

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 29, 2016 05:51AM Moderators wrote:

Kira,

We're so sorry to hear that.

We're hoping for a speedy recovery for you.

The Mods.

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Apr 29, 2016 06:46AM nbnotes wrote:

So sorry to hear that Kira!

I'm sort of iffy right now for the potluck. I have something else that I had accidentally written on the wrong date that starts at 12:30, but it is come & go and in South Tampa so not too far away. Trying to determine which order I can do things. I'm thinking it might work best to go there first and then come late to our get together since we normally stay for quite a while.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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Apr 29, 2016 10:24AM SpecialK wrote:

nbnotes - if it is a situation that makes it problematic to bring something, no worries! We will have plenty of food so don't let trying to coordinate that become a nuisance for you! Hope you can coordinate things so that we can see you!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 29, 2016 11:01AM AnnAlive wrote:

Kira,

I do hope we'll see you at the potluck and that your recovery goes well.

AnnAlive - 2011: AC/TH, BMX, ALND, TEs. 2012: Rads, DIEP. 2014: LE. Dx 4/5/2011, IDC, Stage IIIC, Grade 3, ER-/PR-, HER2+
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Apr 29, 2016 04:42PM nbnotes wrote:

Thanks SpecialK! I think I will plan to go there first and then come to this. Don't count me in on lunch itself, but I'll try to bring a dessert of some kind or something for our catching up time :)

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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Apr 30, 2016 07:56PM kira1234 wrote:

I'm feeling much better today I'm hoping. I'll have my dh drive. There's no way I'm driving myself.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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May 1, 2016 12:48PM SpecialK wrote:

kira - keep us posted on how you are doing and feeling - that is the most important thing! As much as we want to see you, you need to take care!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 7, 2016 01:04PM kira1234 wrote:

going in for cauraded artery test today and a ct scan Monday. I'm a ticking time bomb according to my dr.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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May 7, 2016 06:57PM Galsal wrote:

Oh my......prayers for you Lady!!!!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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May 7, 2016 08:17PM nbnotes wrote:

Kira -- in my thoughts and prayers!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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May 8, 2016 03:40PM SpecialK wrote:

kira - hoping that things go smoothly and that they can allay your concerns - so sorry this is taking place. Are you still coming to see the MO on Thurs? If so, and you decide not to stay for the lunch I would love to come over and say hello when you come for that appt.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 11, 2016 05:29PM kira1234 wrote:

yes I'm seeing Dr. Wright Thursday. I've been home most of the last 2 weeks. I think I still have time available will check tomorrow with my principal. He's afraid for me to be at school so I'm sure he'll be okay with me off Friday too. I'll know tomorrow for sure.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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May 13, 2016 07:18AM AnnAlive wrote:

Tomorrow's the day!

Looking forward to seeing you all!

AnnAlive - 2011: AC/TH, BMX, ALND, TEs. 2012: Rads, DIEP. 2014: LE. Dx 4/5/2011, IDC, Stage IIIC, Grade 3, ER-/PR-, HER2+
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May 13, 2016 08:20AM SpecialK wrote:

Yay! If anyone needs directions or any other info, please PM me! Can't wait to see you all

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3

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