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All TopicsForum: Get Togethers → Topic: Tampa area BCO sisters II

Topic: Tampa area BCO sisters II

Forum: Get Togethers — Organize, plan, and communicate with your friends during offline events.

Posted on: Mar 22, 2016 10:29PM - edited Feb 18, 2018 11:04AM by SpecialK

SpecialK wrote:

The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you have found this thread and wish to join us - please do!

Here is the link to the previous thread - it contains a lot of love, and we thank MondaysChild for her leadership and management of our "get togethers" to date.

https://community.breastcancer.org/forum/34/topics/791258?page=57#idx_1694


Watch this header for updates to our schedule.

__________________________________________________________________________________________________________________________________

Next gathering TBD




BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Posts 361 - 384 (384 total)

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Apr 4, 2018 11:18AM SpecialK wrote:

galsal - sorry you are experiencing this - all I can offer is many have benign cysts on liver, kidneys, etc - and some are found while doing routine scans. My DH has innumerable nodules - too many to count with some over the size threshold for concern - but they are stable and just scanned annually. His were found accidentally on a scan for something else

sarahstronger - the ladies of this thread are due for a lunch, and we would love to have you join us! As far as regular support groups, I believe St. Joseph's has one, and Florida Hospital also does - I am in Tampa so not as familiar with Pinellas County hospitals. I can PM you the numbers for the support groups I mentioned.

On that note - are you ladies ready to get together? Give me some dates!

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 4, 2018 05:51PM nbnotes wrote:

Definitely ready to get together! It stinks but even the lower doses of Afinitor gave me the horrible side effects & so I had to come off of it again this past Thursday. See Dr. C on Friday to find out the plan for sure, but was told my options are pretty much back to more traditional chemo now. Probably going to be starting on Xeloda to at least keep me free for as long as possible.

So, anyway, seeing everyone would be great! My open weekend dates coming up are Sundays - 4/15, 22, or29 & 5/6 late afternoon/evening, and Saturdays 4/28 or 5/5 anytime.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/9/2017 Faslodex (fulvestrant) Targeted Therapy 1/11/2017 Ibrance (palbociclib)
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Apr 4, 2018 09:49PM sarahstronger wrote:

I would love to join you ladies!

Dx 8/9/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/14/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 11/28/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/20/2018 Arimidex (anastrozole), Zoladex (goserelin)
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Apr 5, 2018 08:57AM gstroud70 wrote:

Good morning...I haven't checked in for a while I moved to St. Pete in Dec. 2017 and started work in Tampa Jan. I was wondering if anyone here could recommend a Dr. ? I need a General Practitioner first then an onc. I am scheduled for a scan in Tulsa at CTCA in May but will be looking to switch after that visit. I am having some pain issues as j work 12 to 14 hours a day on my feet. I know that I need bloodwork done as well. Any help would be appreciated greatly as I have a hard time trusting Dr.s after dealing with this cancer for 4 years.TIA.

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Apr 5, 2018 06:25PM nbnotes wrote:

gstroud70 - I know you said that you needed a gp first, and I don't have a great recommendation for that. I do LOVE my oncologist, Dr. Julia Cogburn at Florida Cancer Specialists. Several of us see her or Dr. Wright who is also at Florida Cancer Specialists.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/9/2017 Faslodex (fulvestrant) Targeted Therapy 1/11/2017 Ibrance (palbociclib)
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Apr 14, 2018 10:00PM Snickersmom wrote:

I am definitely ready for a get-together! My drains were finally taken out after a very long 3-1/2 weeks, the staph infection is cleared up, and I am good to go! We just got back from a wonderfully restful 10 day cruise and it really was what I have needed.

Special K - I'm here for the next few months until we head north to see our daughters and their families. So whatever works for everyone else will helpfully work for me. I'm looking forward to meeting up with you all again!

Snickersmom/Ann

Dx 3/22/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/2/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/11/2017 Arimidex (anastrozole)
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Apr 16, 2018 11:16AM BucsGirl wrote:

I'm definitely ready! I'm looking forward to seeing everyone. I think the only weekend I can't do at this point is May 19th - 20th.

Hope everyone is doing well. Heart

Karen

**Formerly Known as TampaBayBucsGirl** Dx 9/29/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/25/2016 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 12/2/2016 Herceptin (trastuzumab) Chemotherapy 12/2/2016 Taxol (paclitaxel) Hormonal Therapy 2/27/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 3/1/2017 Whole-breast: Breast
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Apr 16, 2018 09:43PM MexicoHeather wrote:

Hi Sarahstronger. I live in Bradenton, but I am part of the Tampa group. I like it very much, because I have different type of questions now that I am in hormonal therapy.

One comment that I have for you is that I didn't enjoy meeting in the hospital. Those meetings were a little too topic driven.

If you want to talk before our next meeting (TBD), you can private message me.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Targeted Therapy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 16, 2018 09:52PM MexicoHeather wrote:

Hi everyone. I have these weekends free: April 28-29; May 5-6; May 19-20; June 23-24. I hope we can get together!😊

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Targeted Therapy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 17, 2018 07:48AM - edited Apr 17, 2018 07:52AM by Galsal

I'm out of town May 17-27. Hoping to see you all!

As for Dr Cogburn,I also am one of her patients after getting recommendations from this Tampa group. Just on Friday, I left a message for her about an incidental finding on a CT Scan and she called me at 7:30pm to discuss it. A thickening of the Sternum was found. Did the marker labs yesterday and on the 24th having a PET/CT Scan. Meeting with her on 26th to discuss results and next move.


Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 17, 2018 08:56AM TWills wrote:

I’m pretty open:)

Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/13/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 2/2/2017 AC + T (Taxol) Surgery 7/10/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/31/2017 Whole-breast: Breast, Chest wall Surgery 8/27/2017 Hormonal Therapy 11/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/2/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Apr 17, 2018 09:22AM nbnotes wrote:

Galsal -- I'm sorry that you are dealing with this at all, but that is such an excellent example of how much she cares for her patients. I have been dealing with some stuff and kind of a crossroads for treatment, and she has spent a lot of time with me and my file to make sure that we proceed in the best way. Keeping you in my thoughts and prayers and hoping that it is nothing, but thankful, you have her on your team.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/9/2017 Faslodex (fulvestrant) Targeted Therapy 1/11/2017 Ibrance (palbociclib)
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Apr 17, 2018 10:36AM Galsal wrote:

Much thanks for your kind words, nbnotes! Although others see Dr Wright,I figured any one who is Stage IV and recommending their Onc was fine by me! I'm thrilled to have her on my team!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 17, 2018 11:11AM SpecialK wrote:

So far, it looks like everyone can make May 5 - we just prob need to avoid Cinco De Mayo craziness in the restaurant choice, lol!

galsal - My good friend - young and BRCA1+ who had a 3cm TN tumor - is also a patient of Dr. Cogburn, and loves her. I sat in on all of her appointments and if I was not already seeing Dr. Wright and very happy, I would see her - she's great. So sorry you are worried about this issue - and certainly hoping it is nothing, but she will take good care of you.

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 17, 2018 03:16PM Snickersmom wrote:

May 5th works for me. Looking forward to seeing you all again!

Dx 3/22/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/2/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/11/2017 Arimidex (anastrozole)
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Apr 17, 2018 09:34PM Galsal wrote:

Thanks for the good words,SpecialK

I'll try my best to make it. Son is home on Leave then before Deploying to a sandbox some where.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 17, 2018 10:36PM gstroud70 wrote:

Galsal....nbnotes... SpecialK...thanks so much for the recommendation. I will definitely schedule an appointment. I am so happy everyone speaks highly of her. Galsal prayers for good test results. I am also going for many tests may 7th. I'm 2 months past my 6 month check up due to moving here. So glad I found this group and would love to join you all for a get together. I'm flying out on May 3rd though and wont be back until.may 10th..Maybe I can catch the next one. 👍🙏❤

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Apr 17, 2018 11:16PM Galsal wrote:

gstroud70, feel free to hit me up. I'd be happy to meet up, have coffee or Lunch one day.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 18, 2018 06:52AM gstroud70 wrote:

Galsal thank you so much. I could really use a friend here. I like my coworkers but it's just not the same...they can't comprehend what I've been through and I think that I'm seen as weak sometimes. I try to not let my se's affect my work but my body hurts and sometimes I can't hide it. It's frustrating to say the least. I miss my family and friends. I miss patio days with my best friend so much. I love sitting and having lunch and talking about life. Do you live in Tampa? I currently live in St. Pete but work in Tampa.

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Apr 18, 2018 08:11AM TWills wrote:

Galsal, my son just deployed to Afghanistan two weeks ago so I know how you feel.

Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/13/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 2/2/2017 AC + T (Taxol) Surgery 7/10/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/31/2017 Whole-breast: Breast, Chest wall Surgery 8/27/2017 Hormonal Therapy 11/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/2/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Apr 19, 2018 08:38AM Galsal wrote:

Twills, that's the second place he'll be going to after his time in a sandbox is over. It could be well over a year before he gets to come home. So thankful that we steered him to be an LPN in the Army which means he's much safer than others from not going outside the wire. Being my Only Child, I very much appreciate that!

gstroud70, I'll PM you.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 20, 2018 12:13PM kira1234 wrote:

Well I wouldn't be going and where for a while unfortunately. 4 weeks ago I had a partial knee replacement. On Thursday my ancle on the same leg gave out on me. On Friday I had surgery. I have 5 screws in my ancle and one plate. I'm not allowed to put any weight on that foot for 6 weeks. I'll be released from the hospital Saturday and will go to inpatient rehab for 1-2 weeks. After that I'll have out patient rehab but I don't know for how long.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Apr 20, 2018 12:36PM SpecialK wrote:

kira - oh no! I’m so sorry, how distressing for you! I hope you do well in the rehab and get your strength back ASAP! Please know I will be thinking of you

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 20, 2018 01:24PM kira1234 wrote:

Thanks SpecialK. I need all the good thoughts I can get

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right

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