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All TopicsForum: Get Togethers → Topic: Tampa area BCO sisters II

Topic: Tampa area BCO sisters II

Forum: Get Togethers — Organize, plan, and communicate with your friends during offline events.

Posted on: Mar 23, 2016 07:59AM - edited Jun 19, 2018 04:48AM by SpecialK

SpecialK wrote:

The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you have found this thread and wish to join us - please do!

Here is the link to the previous thread - it contains a lot of love, and we thank MondaysChild for her leadership and management of our "get togethers" to date.

https://community.breastcancer.org/forum/34/topics/791258?page=57#idx_1694


Watch this header for updates to our schedule.

__________________________________________________________________________________________________________________________________

Next gathering TBD



BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 25, 2018 06:12AM SpecialK wrote:

I am also having a late-breaking problem with 5/5, the best man from our wedding 35 years ago is coming to town for business the week prior to the 5th, but coming to our house on 5/4 and not flying back out until the night of 5/5. Since he is here for really only a day I feel bad about not spending it with him. I realize this is really short notice - but how does everyone feel about this Saturday 4/28?

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 25, 2018 06:56AM nbnotes wrote:

I have tickets for the Lightning game 1 of round 2 that starts on Saturday. I won't know if the game is at 3 or 8 until the last round 1 game is played tomorrow night & our opponent is determined. I would love to get together thought; so, hope for a Toronto win & then I could do lunch, lol.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/8/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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Apr 25, 2018 06:58AM Galsal wrote:

The most wonderful news is that PET showed the Sternum is more likely to have been injured from the auto accident. Over the Summer I'll do another CT scan of the chest for comparison. HOORAY!!!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 25, 2018 07:55AM nbnotes wrote:

Galsal - That is great news!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/8/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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Apr 25, 2018 08:46AM SpecialK wrote:

nbnotes - ok, keep me posted!

galsal - yay!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 25, 2018 08:48AM Galsal wrote:

I can try for 4/28. Son is flying in for Leave day but I've no ETA for him yet.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 26, 2018 08:35AM nbnotes wrote:

The game this Saturday will be at 3; so, I will probably have to leave around 1 to go down there. Would anyone be interested in brunch/breakfast or dinner? If so, count me in; if not, I'll have to catch up with everyone at the next one.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/8/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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Apr 27, 2018 06:51AM Galsal wrote:

How exciting! Going to see Jeff Dunham at the Arena on Sunday!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Apr 27, 2018 07:35AM SpecialK wrote:

I feel like there is not consensus regarding this Sat, and too many of us who have conflicts for May 5. I think we will have to wait a bit and try to find another date for lunch. Sorry ladies!

That said - everyone enjoy their respective activities

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 27, 2018 01:03PM - edited Apr 27, 2018 01:03PM by MexicoHeather

I'm sorry, Kira. I file that under:"Oh, you have HPB today? Let me make it even higher!"

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 15, 2018 05:15PM BucsGirl wrote:

Just an update on my little beagle. She's responding well to the antibiotics they gave her. She'll only need surgery if she gets another infection. I think the change to the gastrointestinal food has helped her too.

Hope everyone is doing well!

**Formerly Known as TampaBayBucsGirl** Dx 9/29/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/25/2016 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 12/2/2016 Herceptin (trastuzumab) Chemotherapy 12/2/2016 Taxol (paclitaxel) Hormonal Therapy 2/27/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 3/1/2017 Whole-breast: Breast
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May 15, 2018 08:00PM SpecialK wrote:

bucsgirl - yay! So glad the abx are working! Our dog ending up with a necrotizing insect bite (either fire ant or biting fly) on that super skinny part of the hind leg and had to have a staple placed about a week and a half ago. It comes out on Thurs and his last day of abx is today. He is in a cone, so not a happy guy. I left yesterday for a couple of hours - and he didn't greet me at the door when I came home. It turns out he went into my closet - probably looking for me because it was raining and stormy weather makes him anxious - and the cone pushed the door closed enough that he couldn't get out again, lol!

We need to regroup with dates for a lunch - I know summer can get busy with family and vacations - what are good dates for everyone not too far out - like, from here until end of June?

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 15, 2018 10:53PM BucsGirl wrote:

Aw, poor little baby! My doggies hate the cone. Glad he's doing well. He's such a cutie.

Yeah, Daisy got a new kind of chewable clavomax. She apparently liked the taste of it. I've been giving them to her as if it's a treat. LOL! I'd think antibiotics would taste horrible in a chewable form.

I'm free after next week. The only Saturday that I can't do is June 23rd.

**Formerly Known as TampaBayBucsGirl** Dx 9/29/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/25/2016 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 12/2/2016 Herceptin (trastuzumab) Chemotherapy 12/2/2016 Taxol (paclitaxel) Hormonal Therapy 2/27/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 3/1/2017 Whole-breast: Breast
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May 16, 2018 03:01AM Snickersmom wrote:

Bucsgirl - so glad your little baby is doing okay. I was wondering how you made out with and and it's great to hear that she's on the mend!

SpecialK - I am available almost any Saturday until 20th June. That's when we head north for a month or so to see the kids. If everyone else can meet after that, I'll just wait for the next meet-up. Hopefully, we can all find a date before then. Looking forward to it - again! Thanks so much for organizin

Dx 3/22/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/3/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/12/2017 Arimidex (anastrozole)
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May 16, 2018 08:34AM Galsal wrote:

As of now, available most of June.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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May 16, 2018 09:00AM MexicoHeather wrote:

Hi. Just popping in to say , "Hi.". I started having shoulder mobility problems. MRI showed a rotator cuff tear, but the physical therapist found cording. So she and the medical massage person are working on it with me and it's improving.

Going back to Moffitt at the end of June. The left breast hurts, but I will let them ultrasound it then.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 16, 2018 05:21PM AnnAlive wrote:

Greetings all. I was in Nashville with the grandkids when you were trying to get together in April. I'm somewhat available in May-June EXCEPT weekends of June 2-3 and June 16-17. Is Sat June 9 looking good? (June 10 is our wedding anniversary so we really ought to make plans - ha.)

MexicoHeather - sorry about your shoulder. Ouch! Are you able to get together anyway?

AnnAlive - 2011: AC/TH, BMX, ALND, TEs. 2012: Rads, DIEP. 2014: LE. Dx 4/5/2011, IDC, Stage IIIC, Grade 3, ER-/PR-, HER2+
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May 17, 2018 06:20PM nbnotes wrote:

Currently on a Baltics cruise, but looking at a fun(ugh) week of petscan and oncology appointments next week to change my treatment along with a nephew graduating high school. The first saturday in June would be difficult for me, but the others are good. Just let me know!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/8/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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May 17, 2018 10:10PM SpecialK wrote:

bucsgirl - I hide the pill in cheese - he thinks he is getting a treat, lol!

Looks like Saturday June 9th works for all who have responded so far - I feel like we should try for that. Snickersmom won't be gone yet, nbnotes (yay for a cruise!) can come since this is the second Sat in June, right? Works for AnnAlive and bucsgirl, galsal, and me. MexicoHeather - are you in, or is the shoulder making things difficult? So sorry to hear you are experiencing difficulty and I hope PT will help - it is a slow process and hard when you're in pain. Hang in there!

I will try to keep this thread in active topics so other ladies in the area will see it. I will also PM or text the others who have attended in the past so we can make a plan. How do we feel about the Grillsmith at Wiregrass, or do we want to find another spot? I liked the round table in the quieter area and the proximity to the I-75 (and the proximity to the gelato afterward, lol!) but I am open to finding a new place too.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 18, 2018 07:35AM MexicoHeather wrote:

I'm not going make it on the 9th.-- We're going out of town as soon as I finish PT and I will return on 6/15. I'm just moving forward with things, waiting for my body to catch up.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 18, 2018 08:31AM SpecialK wrote:

MexicoHeather - bummer! We will hopefully catch you on the next get together. Hope your out of town trip involves some fun!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 20, 2018 05:51AM Snickersmom wrote:

Looks like June 9th works for me. I'm looking forward to seeing everyone again!

Snickersmom/ann

Dx 3/22/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/3/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/12/2017 Arimidex (anastrozole)
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May 23, 2018 05:04AM BucsGirl wrote:

SpecialK - It looks like my nieces baby shower is that Saturday. I didn't know until today. I won't be able to make it this time. Bummer! Scared

**Formerly Known as TampaBayBucsGirl** Dx 9/29/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/25/2016 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 12/2/2016 Herceptin (trastuzumab) Chemotherapy 12/2/2016 Taxol (paclitaxel) Hormonal Therapy 2/27/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 3/1/2017 Whole-breast: Breast
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May 23, 2018 05:11AM SpecialK wrote:

bucsgirl - oh no! We will catch you next time!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 27, 2018 12:35AM - edited May 27, 2018 12:38AM by SpecialK

Ok - I am going to put the date of Sat, June 9th at noon, Grillsmith in Wesley Chapel in the header. Go ahead and give me your RSVP - MexicoHeather and bucsgirl cannot make it. From what I am gathering nbnotes, snickersmom, annalive, me, lee7, galsal can make it so far - but please confirm.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 27, 2018 12:40AM AnnAlive wrote:

Confirming -- still looks good for me.

AnnAlive - 2011: AC/TH, BMX, ALND, TEs. 2012: Rads, DIEP. 2014: LE. Dx 4/5/2011, IDC, Stage IIIC, Grade 3, ER-/PR-, HER2+
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May 27, 2018 07:55AM Galsal wrote:

Sorry to say, Ladies, but I'll be missing this one. Things haven't gone well on a legal matter out here so I'm staying with my Sister until her Youngest returns from College for the Summer. I'll return Mid-June.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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May 27, 2018 09:52AM - edited May 27, 2018 09:52AM by SpecialK

galsal - sorry to hear that - hope you can catch us next time! Hope things resolve positively for all.

annalive - very good!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 27, 2018 03:59PM nbnotes wrote:

Count me in!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/8/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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May 27, 2018 08:27PM Lee7 wrote:

Hi everyone!

As of now I’m planning to go June 9th. I’m looking forward to it. Grill smith sound good. I hope those that can’t make this one will be free for lunch on the next get together.


Dx 10/2010, IDC, Stage IIA, ER+/PR+, HER2-

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