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Topic: Tampa area BCO sisters II

Forum: Get Togethers — Organize, plan, and communicate with your friends during offline events.

Posted on: Mar 22, 2016 09:29PM - edited Jun 18, 2018 06:18PM by SpecialK

SpecialK wrote:

The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you have found this thread and wish to join us - please do!

Here is the link to the previous thread - it contains a lot of love, and we thank MondaysChild for her leadership and management of our "get togethers" to date.

https://community.breastcancer.org/forum/34/topics/791258?page=57#idx_1694


Watch this header for updates to our schedule.

__________________________________________________________________________________________________________________________________

Next gathering TBD



BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Jun 24, 2018 06:55PM Galsal wrote:

Muwah!!! Maybe we can get Monday's Child to join us. Fwiw, Tori might drive over here next month to visit me. She wants to see YOU for certain!!! Let's see how it works for a Luncheon about July 12th or 13th or so. Could be here for a couple days. Depends on badly she reacts to my cat, since she's allergic. I'll PM you with more as it gets closer.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Jul 1, 2018 07:44AM Galsal wrote:

Drat. It's official. Need a total hysterectomy because of the cysts. Praying it can be done vaginally to only need One cut into the low abdominal mesh from the hernia repair. Since leaving at end of August, not sure I can get it done soon enough for an entire recovery to handle a cross-country road trip. If not, then it would likely be in late Oct or Nov based on family availability to be in Oregon with me for the surgery and recovery. Not the type of operation to be dealing with dogs and chickens immediately after. Thankfully I'll be staying on the main floor instead of upstairs then.

July 9th is the repeat chest ct scan about the sternum lesion.

Sorry for TMI, two things at once just makes me more anxious about it all than usual.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Jul 1, 2018 01:10PM patoo wrote:

Galsal, I would not take the chance of the cross-country road trip so close after that surgery. Check though. When I had my total hysterectomy 100 years ago, okay, 1994, they were only doing what I called a pseudo-Csection. Hospitalized for a week and then probably about a month after, I was walking a mall with my sister, carrying her newborn grandchild. Just that amount of action caused major pain afterwards. Perhaps the vaginal procedure is much, much, easier on the body - hopefully. In any case, even if okayed by the doc I would, if you can, elect to wait on it. My best to you in whatever you decide.

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/12/2009 Arimidex (anastrozole) Radiation Therapy 4/2/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
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Jul 2, 2018 03:34PM MexicoHeather wrote:

Galsal. Hi! The important port is not to lift anything, even with the TVH. It took about 5 weeks to totally recover, but I don't miss my cysts. Troublemakers....

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 4, 2018 12:54AM nbnotes wrote:

Galsal -- Sorry you are dealing with all of that! I was back to work online hours after the surgery, but I couldn't drive or go in to teach until 3-4 weeks out. It was a much easier surgery for me than the mastectomy, etc., but it would be rough to do a cross-country trip. Good luck with everything!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/9/2017 Faslodex (fulvestrant) Targeted Therapy 1/11/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/10/2017 Afinitor (everolimus)
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Jul 4, 2018 05:11PM Snickersmom wrote:

Galsal- you have every right to be nervous! Just stop and breathe and take it one step at a time. Everything will fall into place the way it's supposed to.

Ann

Dx 3/24/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/2/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/11/2017 Arimidex (anastrozole)
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Jul 5, 2018 09:29AM Galsal wrote:

Thanks to you all for such kind words. For the now, the plan is to deal with this out in Oregon. The concern will be if tumor markers are elevated and if that requires plan to be changed. Regardless of all of this, I it is without a doubt that I WILL be in Salem, OR by Sept 6th. Next week after the chest ct scan is redone, my Onc will determine if a biopsy of that is necessary.

As one friend called this...."Scanxiety". Yep, that's what it is for any of us all right!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Jul 10, 2018 01:04PM Galsal wrote:

Awesome news!!! The sternum is from an injury. so it appears. Report specifically says there's less chance of it being Mets!!!!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Jul 10, 2018 01:49PM SpecialK wrote:

galsal - yay!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Jul 10, 2018 01:53PM nbnotes wrote:

Galsal -- That's great to hear!!!!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/9/2017 Faslodex (fulvestrant) Targeted Therapy 1/11/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/10/2017 Afinitor (everolimus)
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Jul 10, 2018 02:44PM MexicoHeather wrote:

GalSal: Oh, good news. September will be here before you know it.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 10, 2018 03:56PM Snickersmom wrote:

galSal- Awesome news!

Dx 3/24/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/2/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/11/2017 Arimidex (anastrozole)
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Aug 26, 2018 09:21AM Galsal wrote:

Thanks for the good words, Ladies! If all goes to plan, will be departing Tampa Bay on Wednesday. My best to every single one of you!!!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Aug 26, 2018 09:59AM Snickersmom wrote:

Galsal - Safe travels and stay healthy! Keep us posted!

Ann/Snickersmom

Dx 3/24/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/2/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/11/2017 Arimidex (anastrozole)
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Sep 1, 2018 08:48AM - edited Sep 1, 2018 07:22PM by SpecialK

galsal - travel safely and let us know when you're settled in.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 1, 2018 06:18PM MexicoHeather wrote:

Take care, Gal Sal.  It has been nice talking to you. Hug

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 6, 2018 03:34PM Galsal wrote:

Safely arrived in Salem, Oregon. Blessedly, not impacted by any of the wildfires.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Sep 7, 2018 07:13AM nbnotes wrote:

Good to hear Galsal! Keep us posted!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/9/2017 Faslodex (fulvestrant) Targeted Therapy 1/11/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/10/2017 Afinitor (everolimus)
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Sep 8, 2018 07:39PM SpecialK wrote:

galsal - yay! Thanks for letting us know and glad your trip was safe! Keep us posted on your doings now that you're there!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 19, 2018 10:40AM Galsal wrote:

Portland VA Gyn I had a one hour appointment with them the week after I arrived here. She's not jumping to surgery without more validation. She's reviewing my health record history and image history about this, ordered more Labs (ie, tumor markers again, etc), is considering genetic counseling from taking my family medical history into play and since IF any thing were to be found it would be the third form of C for me. Oh and also communicate with the Surgeon in NYC that did the hernia repair for his specific instructions about the mesh in terms of closure, etc.

Wow...quite the difference to speak with someone who ins't just knee-jerk saying get it all removed. Not that it won't happen in the long run though.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Sep 19, 2018 11:30AM SpecialK wrote:

galsal - Glad to hear that you have a thoughtful doc helping you!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 21, 2018 05:56AM MexicoHeather wrote:

I appreciate it when they talk to my other doctors. That's a good sign.Heart

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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