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Topic: Tampa area BCO sisters II

Forum: Get Togethers — Organize, plan, and communicate with your friends during offline events.

Posted on: Mar 22, 2016 10:29PM - edited Jan 2, 2019 10:59AM by SpecialK

SpecialK wrote:

The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you have found this thread and wish to join us - please do!

Here is the link to the previous thread - it contains a lot of love, and we thank MondaysChild for her leadership and management of our "get togethers" to date.

https://community.breastcancer.org/forum/34/topics/791258?page=57#idx_1694


Watch this header for updates to our schedule.

__________________________________________________________________________________________________________________________________

Next gathering TBD




BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Posts 541 - 553 (553 total)

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Sep 17, 2019 10:16PM nbnotes wrote:

MexicoHeather - Hope your massage is amazing and your visit with your son is as well.

Just thought I'd update this group on what's been going on with me. Had my pet scan on 8/12, and got the results on 8/16. The SBRT in May worked on the lime sized liver tumor and lymph nodes, but unfortunately, the Xeloda failed me and there was new growth - small spot in liver & a different lymph node area. I did another 5 rounds of SBRT to attack those spots, and just started Gemzar today. The last month has been insane as an AC water leak also caused me to have to redo the entire floor of my condo right when all of my colleges were starting. Fun times, Fun times, lol! Hope all is well with everyone!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus) Chemotherapy 8/22/2018 Xeloda (capecitabine) Radiation Therapy 4/25/2019
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Sep 21, 2019 07:02AM nbnotes wrote:

Update part 2 -- Having just finished radiation, I expected that my tumor markers would flare in my latest labs. Instead, they came down from 24.3 to 20.7. They've typically been very reliable though they've been in the normal range with small amounts of cancer, but its the lowest its been since April 2015 when I hit my lowest during NED of 19.9. That is incredibly encouraging to me! Gemzar so far has had some mild nausea and fatigue along with headaches (but I get those pretty regularly anyway). But so far.....its been manageable, and I've worked everyday, etc. Very thankful!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus) Chemotherapy 8/22/2018 Xeloda (capecitabine) Radiation Therapy 4/25/2019
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Sep 21, 2019 09:43AM - edited Sep 21, 2019 09:43AM by SpecialK

nbnotes - that is great! You were due for something good, it's been a rough go for you lately! So glad you updated!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 23, 2019 06:27PM MexicoHeather wrote:

Yes. Thanks for the update. We didn't get the hurricane, but you still had to dry out. Big sigh. I hope everything is going well musically for your students.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/9/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/9/2017 Prophylactic ovary removal Surgery 12/5/2018 Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 31, 2019 10:06PM Galsal wrote:

Greetings, Tampa Bay! I'm baaaack. Happy HalloweenSillyHeart

Hope to see you all soon!

Unfortunately, I and my PCP feel a small lump in the outer side bra area of the same breast which had ILC. So will be having another breast ultrasound. The small part I feel is like the end of a pencil eraser. The area PCP felt is 5-6cm of more than lump. Yikes! Prayerful it's merely scar tissue from all the breast surgeries and drains.


Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Nov 4, 2019 08:44PM MexicoHeather wrote:

Hey,Hi. Thanks for keeping us posted. It's good to get w checked out now.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/9/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/9/2017 Prophylactic ovary removal Surgery 12/5/2018 Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 5, 2019 12:36PM SpecialK wrote:

Hey galsal! Welcome back - are you permanently back, or visiting? Sorry you are having lump issues - crossing fingers for fat necrosis, scar tissue, or another benign finding.

Hey all - we need to do a get together soon! I am happy to host a gathering but need dates of availability. Nov. 23rd, 24th, or 30th work for me. or, Dec. 1st, 7th, or 21st.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Nov 5, 2019 05:52PM nbnotes wrote:

Galsal - Glad to see you check in!

For getting together -- the first 4 dates would work for me as long as I'm not quarantined for counts. Dec 7 & 21st would be more challenging due to some other commitments, but I would love to get together with everyone. Hope we can make it happen!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus) Chemotherapy 8/22/2018 Xeloda (capecitabine) Radiation Therapy 4/25/2019
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Nov 8, 2019 10:36PM Snickersmom wrote:

SpecialK - glad you are doing well down there. All is well here in The Villages. A fellow survivor and I started a survivor group here and there are 9 of us (so far who meet once a month for coffee, chit chat, support, or whatever anyone needs. So I think I probably will not be trekking down to Tampa anymore. I appreciate all of the group being so very welcoming and supportive. You are all a great group of wonderful caring women and I wish everyone the very best.

If anyone is ever up this way, please send me a PM!

Ann


Dx 3/24/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/2/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/11/2017 Arimidex (anastrozole)
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Nov 9, 2019 11:44AM SpecialK wrote:

snickersmom - good to hear from you and that you are doing well, and though we will miss you it is so great that you have formed a group at The Villages and are meeting regularly! If you find yourself in Tampa for any reason please get in touch, and of course it goes without saying, you are always welcome at any of our local gatherings!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Nov 14, 2019 08:19PM MexicoHeather wrote:

Dec 7th could work out, or perhaps the 21st? My relatives from Austria are here until 12/1.

I was at Moffitt yesterday. I'm going to have a CAT scan at the end of the month. I don't think anything is really wrong, just checking on some symptoms. I think I just had a mild case of shingles and my lymph nodes are upset about it.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/9/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/9/2017 Prophylactic ovary removal Surgery 12/5/2018 Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 22, 2019 08:34PM Galsal wrote:

Yes, back permanently. Currently house-hunting for a condo in Pinellas County. I'm open for most any date.

Great NEWS!!! It is believed to be a Cyst. There's no blood flow, echo is good, no spiculation but a purely smooth border. Follow-up in six months.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Nov 22, 2019 11:30PM MexicoHeather wrote:

The CAT scan is off. Insurance didn't want to pay, and I am not pushing it because I feel great.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/9/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/9/2017 Prophylactic ovary removal Surgery 12/5/2018 Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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