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Topic: Tampa area BCO sisters II

Forum: Get Togethers — Organize, plan, and communicate with your friends during offline events.

Posted on: Mar 22, 2016 10:29PM - edited Jan 2, 2019 10:59AM by SpecialK

SpecialK wrote:

The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you have found this thread and wish to join us - please do!

Here is the link to the previous thread - it contains a lot of love, and we thank MondaysChild for her leadership and management of our "get togethers" to date.

https://community.breastcancer.org/forum/34/topics/791258?page=57#idx_1694


Watch this header for updates to our schedule.

__________________________________________________________________________________________________________________________________

Next gathering TBD




BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Posts 601 - 609 (609 total)

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Jun 13, 2020 06:00PM Galsal wrote:

Any one recommend an Onc in the Clearwater area? Will also ask Dr Cogburn with FCS from Tampa FCS who of course will also make her own suggestion. Always good to get recommendations from Patients too!

Thanks!


Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Jun 13, 2020 06:19PM Spookiesmom wrote:

When I was doing chemo first time, I had Patel by Morton Plant. Still would, Humana kicked FCS out of network. So that was that. I did like him.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Jun 13, 2020 06:40PM Galsal wrote:

Thanks, Spookiesmom!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Jun 15, 2020 08:47AM Snickersmom wrote:

Hi Lady of the Lake,

I live in the Villages so not too far from Lutz. I'm 3 years out from my bilateral mastectomy and I can tell you that as time goes on, you will have more and more days when you don't think about it. I'm not sure if the fear ever goes away. I, too, worry about every little thing but most days, I can downgrade that big C word in my brain to a small c. You'll get there.

Dx 3/24/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/3/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/12/2017 Arimidex (anastrozole)
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Jun 15, 2020 01:08PM SpecialK wrote:

aviva - where is your recurrence? If it is in the breast/axilla/chest area it would seem like a loco-regional recurrence.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Jun 22, 2020 06:03PM aviva5675 wrote:

Yes, left side top of breast. They think after I went off Arimidex hidden/not taken cells migrated from right to left in lymph system, and grew sometime in last 18 months Ive been off Arimidex. Got my first Faslodex shots today, Ibrance comes tomorrow. Will be taking those 2 and see how it works.

Run Towards Not From --we can all do it...on FB and www.runtowardsnotfrom.com Dx 7/2013, DCIS, Stage 0, Grade 3, ER+/PR+, HER2+ Surgery 8/13/2013 Lumpectomy: Right; Reconstruction (left) Dx 8/16/2013, 1cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Dx 8/16/2013, ILC, 2cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Surgery 8/23/2013 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/18/2013 Arimidex (anastrozole) Surgery 1/10/2014 Reconstruction (left); Reconstruction (right) Surgery 5/23/2014 Reconstruction (left); Reconstruction (right) Surgery 11/21/2014 Reconstruction (right) Surgery 10/30/2015 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 6/2020, ILC, Left, 1cm, Stage IV, Grade 3, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jun 22, 2020 06:32PM SpecialK wrote:

aviva - I am hopeful that combo does it work for you. I have another friend on Faslodex and it has been excellent for her. I hope both areeasy on you as well. Hang in there, I will be thinking of you.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Jun 23, 2020 03:37PM aviva5675 wrote:

Thanks. Ibrance came today and Ill start tonite. What is weird to me is that they say I might be on both things forever. Forever? Thats a long time. And the Ibrance, chemo, how can you take that forever.

Run Towards Not From --we can all do it...on FB and www.runtowardsnotfrom.com Dx 7/2013, DCIS, Stage 0, Grade 3, ER+/PR+, HER2+ Surgery 8/13/2013 Lumpectomy: Right; Reconstruction (left) Dx 8/16/2013, 1cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Dx 8/16/2013, ILC, 2cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Surgery 8/23/2013 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/18/2013 Arimidex (anastrozole) Surgery 1/10/2014 Reconstruction (left); Reconstruction (right) Surgery 5/23/2014 Reconstruction (left); Reconstruction (right) Surgery 11/21/2014 Reconstruction (right) Surgery 10/30/2015 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 6/2020, ILC, Left, 1cm, Stage IV, Grade 3, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jun 23, 2020 04:22PM Spookiesmom wrote:

I’ve been on ibrance over a year, some on the stage 4 threads almost 3-4 years. I will be on this till I show progression or die. If I progress, and that can/does happen, there are other drugs to use. So “forever” is not unrealistic

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3

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