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Topic: Tampa area BCO sisters II

Forum: Get Togethers — Organize, plan, and communicate with your friends during offline events.

Posted on: Mar 22, 2016 09:29PM - edited Sep 6, 2017 07:23PM by SpecialK

SpecialK wrote:

The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you have found this thread and wish to join us - please do!

Here is the link to the previous thread - it contains a lot of love, and we thank MondaysChild for her leadership and management of our "get togethers" to date.

https://community.breastcancer.org/forum/34/topics/791258?page=57#idx_1694


Watch this header for updates to our schedule.

__________________________________________________________________________________________________________________________________

Next gathering TBD



BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 3, 2017 03:30PM Lee7 wrote:

Would Sat. April 29 be a possibility now for all?

Dx 10/2010, IDC, Stage IIA, ER+/PR+, HER2-
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Apr 3, 2017 10:26PM SpecialK wrote:

I am good with 4/29, but the dates I had proposed in April were connected with availability for MondaysChild. She did not give me 4/29 so I assume she could not make it - that was why I suggested waiting until May, but we could continue with this problem of availability as we get into the time people are doing vacations, etc., and it may be hard to find a date we can all make. The other potential solution is to do a monthly gathering and whoever can make it comes, and whoever can't make it will know there will be another opportunity the following month.

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Apr 4, 2017 05:42AM kira1234 wrote:

Okay ladies I know much more now. My breast cancer has returned so I'll be having surgery again asap.I want to talk to Dr. Wright abouttesting to be sure the cancer hasn't spread. Dr. Cox was like why? I also need to discuss with them both my decision about double mastectomy or not.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Apr 4, 2017 06:46AM AnnAlive wrote:

Kira1234, so sorry to hear this news. (I'd want to know about spread too.) Sobering as I am just now hitting my 6th anniversary of diagnosis, with the annual labs and MO appointment in a few weeks. I'll be praying about your decisions and treatment.

Join us when it works out for you, and we can aim for your availability, if possible. We are having a hard time finding meeting dates, aren't we. I want to see MondaysChild soon too.

AnnAlive - 2011: AC/TH, BMX, ALND, TEs. 2012: Rads, DIEP. 2014: LE. Dx 4/5/2011, IDC, Stage IIIC, Grade 3, ER-/PR-, HER2+
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Apr 4, 2017 07:20AM nbnotes wrote:

With everyone's crazy schedules, I'm not sure that we'll hit on a date that everyone can come. It might be worth just setting monthly or every other month ones so that we always know another one is around the corner if there are conflicts.

Kira1234 - Sorry about the recurrence, and I'd be like you as well with wanting to know about potential spread. I think that is a valid question to get answers to.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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Apr 4, 2017 12:41PM Lee7 wrote:

kira1234,

Im so sorry you have had a recurrence and you are having to make such difficult decisions again.

Dx 10/2010, IDC, Stage IIA, ER+/PR+, HER2-
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Apr 4, 2017 02:59PM Keiki wrote:

I can't do April 8 but any other time ok. I'm good weekdays, too. Cricke

Dx 5/26/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes, ER+ Surgery 8/21/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/15/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 4, 2017 04:11PM kira1234 wrote:

I'll be seeing dr cox and dr wright Monday. I will have many questions for them. Any suggestions for questions I should ask are greatly appreciated.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Apr 18, 2017 01:30PM kira1234 wrote:

I saw the surgeon and oncologist Friday. I'll be having surgery may 2nd at Saint Joseph north first thing in the morning.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Apr 23, 2017 11:46AM Lee7 wrote:

kira, I know you have both a great surgeon and oncologist taking care of you. My thoughts and prayers go with you for the best possible outcome and speedy healing. I'd like to visit you at St. Joe's if/when you'd like company. :)

Hugs !!!

Dx 10/2010, IDC, Stage IIA, ER+/PR+, HER2-
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Apr 28, 2017 05:14PM - edited Apr 28, 2017 05:14PM by Keiki

Good luck Kira. Looking forward to meeting you soon. I'll be send good thoughts 5/2. Keiki



Dx 5/26/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes, ER+ Surgery 8/21/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/15/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 7, 2017 08:06PM Lee7 wrote:

kira, Thinking about you and hope you are recovering well from your surgery. It would be great if you can make it to the next get together.:)

Dx 10/2010, IDC, Stage IIA, ER+/PR+, HER2-
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May 7, 2017 08:11PM kira1234 wrote:

Thank you for asking Lee 7. I'm off all prescription medications now during the day but I'm still going to take them tonight. I'd love to come to the next gathering.

I have my visit with the surgeon tomorrow. I'm hoping to get the pathology report then.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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May 7, 2017 08:29PM Lee7 wrote:

I'll be praying you get all good news tomorrow!

Dx 10/2010, IDC, Stage IIA, ER+/PR+, HER2-
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May 7, 2017 09:14PM kira1234 wrote:

Thanks I'm happy to be finding out. The waiting is horrible.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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May 8, 2017 04:24PM nbnotes wrote:

Please keep us updated Kira. You've been in my thoughts as well.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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May 8, 2017 04:56PM kira1234 wrote:

I just got home. Fantastic news lymph node are clear. No radiation will be needed and his opinion no chemo. I'm pleased. I'll update my profile. Stage 1

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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May 10, 2017 12:05PM kira1234 wrote:

I just wanted to thank Lee7 and special k for all the support these last few days. You've both been a blessing to my dh and me.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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May 10, 2017 01:04PM SpecialK wrote:

kira - so happy to help!

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 15, 2017 09:37PM Galsal wrote:

I'm so very sorry to be late on this, Kira. Hadn't seen it until today about your situation.

In terms of scheduling, I'm done traveling until June 18th. Nerdy


Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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May 16, 2017 10:52PM patoo wrote:

Hello my BCo/FL sisters. I'm in The Villages so about 2 hours east of you Tampa ladies.

Wanted to let you know that some of your fellow BCo sisters from around the country will be vacationing together in Daytona Beach from November 5-10. This is year 7 that we have come together for loads of fun, laughter, food, activities, more laughter. We started in Minneapolis, then Chicago, then DC, San Francisco by way of Los Angeles, San Diego and last year San Antonio TX.

I know it's a trek for you all but we are putting out the invitation to meetup with us and you would be welcome to come for a few hours or crash with us overnight or longer. Only requirement is flexibility in sleeping arrangements as it may involve air mattresses. So far we are 6 confirmed (from CA, ND, WI, MD, me) with 2 more trying to fit it into their schedule.

PM me if you might be interested and I can get you connected with the group.

Phyllis

"for we live by faith, not by sight" - 2 Corinthians 5:7 Dx 10/24/2008, ILC, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 2/12/2009 Arimidex (anastrozole) Radiation Therapy 4/2/2009 Breast Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel
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May 17, 2017 08:46PM Lee7 wrote:

Hi patoo,

Wow, year 7, it sure sounds like you have a great time. Thank you for the invitation!

It would be fun to plan a road trip over to Daytona Beach to meet up with fellow BCO sisters.

Dx 10/2010, IDC, Stage IIA, ER+/PR+, HER2-
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May 19, 2017 08:25AM - edited May 20, 2017 12:31AM by SpecialK

patoo - thanks for the sweet invite, and the advance notice for planning purposes

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Aug 24, 2017 06:43PM nbnotes wrote:

It has been a while, and I for one need a good tampa bco lunch to catch up with everybody and get some cheesecake or something. Anyone else?

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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Aug 24, 2017 07:53PM Galsal wrote:

Hooray, Luncheon time sounds grand!!!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Aug 24, 2017 08:22PM SpecialK wrote:

We can do a lunch anytime we can find a day with good availability! Give me your good weekend dates for the next month or so and we will see if we can make a plan!

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Aug 24, 2017 08:50PM Galsal wrote:

Just about any date is good for me.

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/9/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/5/2012 Arimidex (anastrozole) Hormonal Therapy 12/12/2012 Femara (letrozole) Hormonal Therapy 4/15/2013 Aromasin (exemestane)
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Aug 24, 2017 09:45PM Luckynumber47 wrote:

I think about you ladies all the time. I had such a good time meeting with you last February! Sure hope you'll plan another lunch next Jan/Feb/March.

Have a good time, I'll be there in spirit!

Lucky

My avatar is a Blue Footed Boobie. Cracked me up. ATM variant, mom died at 33 from BC Dx 2/15/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 3/16/2016, DCIS, Right, <1cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR- Surgery 4/6/2016 Mastectomy: Left, Right Hormonal Therapy 5/16/2016 Femara (letrozole)
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Aug 25, 2017 08:05AM - edited Aug 25, 2017 08:08AM by nbnotes

I can do Sept 2nd or 3rd, 9th or 10th (just not dinner on 10th), 23rd or 24th, 30th and October 1st, 7th & 8th - (my only weekend days not available in the next 6 weeks or so would be Sept.16th and 17th - that probably would have been the easiest way to say that, lol)

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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Aug 25, 2017 01:00PM SpecialK wrote:

nbnotes - very thorough answer, lol!

I am more available in September than October, and early Sept. is better - what do we think about the 9th? That first weekend is Labor Day so some may be out of town.

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3

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