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Topic: Tampa area BCO sisters II

Forum: Get Togethers — Organize, plan, and communicate with your friends during offline events.

Posted on: Mar 22, 2016 10:29PM - edited Nov 20, 2017 09:28PM by SpecialK

SpecialK wrote:

The original Tampa Bay area "get together" thread was created in July 2012 after a great group of BCO sisters met for lunch. This is a new thread intended to carry on our tradition of support, companionship, fun, and camaraderie - as often as we can all get together! We welcome familiar faces and new friends alike - if you have found this thread and wish to join us - please do!

Here is the link to the previous thread - it contains a lot of love, and we thank MondaysChild for her leadership and management of our "get togethers" to date.

https://community.breastcancer.org/forum/34/topics/791258?page=57#idx_1694


Watch this header for updates to our schedule.

__________________________________________________________________________________________________________________________________

Next gathering December 9th, 2017, noon

Home of Specialk - PM me if you need directions

Attending so far:

specialk
nbnotes
AnnAlive
Lee7
TampaBayBucsGirl
TWills
MexicoHeather
Galsal
Kira1234
Keiki
Deb
patoo



BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Posts 211 - 240 (264 total)

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Sep 6, 2017 10:37AM SpecialK wrote:

My DH has the extra duty of being the liaison for Special Operation Command at MacDill and the City of Tampa and has to stay at Raymond James stadium for the duration of the storm to advise the base officials on status as part of the emergency management plan. He wants me to leave tomorrow after my oncology appt and go to NC to stay with his sister. He grew up in Miami and has been through lots of storms, but he is nervous about this one. Both of my BILs live on the east coast - one is considering leaving to go to the same sister's house and the other will head up to SC to be with my MIL, and scoop her up if the storm goes there. She and my FIL weathered Hurricane Matthew - which did a lot of damage to their house (on the water), yard, and dock. My FIL passed away about a month later so my 86 year old MIL is there alone. My crazy daughter drove TO THE KEYS late last night to get a friend's boat, he was stuck in Montana. She just got back home, was stuck on I-75 in traffic crawling along in Apollo Beach. She said right now the Keys have no gas, lots of cars abandoned on the side of the road that ran out. All southbound traffic is plywood, cement trucks, gas trucks, flatbeds, tractor trailers. DH wants her to leave with me, but she doesn't want to - not sure how this will shake out.

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 6, 2017 01:14PM - edited Sep 6, 2017 01:16PM by TampaBayBucsGirl

I'm staying, but that's because we're not in a flood zone. I live in the south side of Brandon (near Valrico). Our house weathered Hurricane Charlie when it was being built, but that was a weaker hurricane. We tend to lose trees each time a hurricane comes through. Other than that, I think the power outages are the worst. We were stationed at Patrick AFB when the 3 hurricanes hit that one year. The house we were living in didn't quite meet hurricane standards. We evacuated to Tampa for all of them.

My mother went through Hurricane Andrew in Miami. She was more inland. She lost a few shingles, a fence, and some trees. Speaking of mom, she was released from the hospital today. Yay! She's not looking forward to another hurricane.

My two aunts lost their homes. Their area got hit the hardest. I was at Patrick AFB at that time as well. My husband had to leave me. They had to evacuate the MC-130 rescue planes to Georgia. He was one of the flight crew...LOL! We (me & the doggies) felt some of the effects of Andrew in Melbourne. Fortunately, it was the weaker part of the storm. 

SpecialK - It looks like we have some things in common. The military life! My hubby is retired, but he still works at CENTCOM. He's also worried about this one. He felt better after the latest advisory. The latest weather advisory has it tracking more towards the east. Hopefully the eye wall will keep wobbling to the east. 

Dx 9/29/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/25/2016 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 12/2/2016 Herceptin (trastuzumab) Chemotherapy 12/2/2016 Taxol (paclitaxel) Hormonal Therapy 2/27/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 3/1/2017 Whole-breast: Breast
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Sep 6, 2017 06:41PM SpecialK wrote:

TB Bucsgirl - My DH is also retired Air Force, worked at SOCCOM before, and since, retirement from active duty. We also have the Bucs in common - DH does the attack flags at the top of the stadium for home games, and I go with my old boss on her season tickets!

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 6, 2017 08:01PM AnnAlive wrote:

I'm not sure if the meeting is still on. ??? We decided to leave because DH's employer shut down classes Thur-Tues. I will have to hope to see you all next time or at the rescheduling! Take care!

AnnAlive - 2011: AC/TH, BMX, ALND, TEs. 2012: Rads, DIEP. 2014: LE. Dx 4/5/2011, IDC, Stage IIIC, Grade 3, ER-/PR-, HER2+
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Sep 6, 2017 08:23PM SpecialK wrote:

I think it is best if we postpone - so looking forward to seeing everyone, but it is important to be safe. We will reschedule as soon as we can!

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 7, 2017 07:34AM TampaBayBucsGirl wrote:

SpecialK - Our DH's may know of each other. He used to work at SOCCOM when we first moved back to the area. We're also season ticket holders. That's very cool about your DH hoisting the attack flags. Very cool!

Everyone - Please stay safe! I guess this hurricane is going to keep wobbling back and forth.  

Dx 9/29/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/25/2016 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 12/2/2016 Herceptin (trastuzumab) Chemotherapy 12/2/2016 Taxol (paclitaxel) Hormonal Therapy 2/27/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 3/1/2017 Whole-breast: Breast
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Sep 7, 2017 12:06PM Moderators wrote:

Hi Tampa Sisters,

Our thoughts are with all in the path of Hurricane Irma. Many of you may be wondering how to manage evacuation while undergoing breast cancer treatment. Breastcancer.org has developed this page, Ways to Prepare for a Natural Disaster, to help.

We hope this helps and that you all stay safe!

--The Mods
To send a Private Message to the Mods: community.breastcancer.org/mem...
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Sep 7, 2017 04:34PM kira1234 wrote:

I'll miss seeing everyone Saturday. This storm is really scary. Please be safe everyone. So far we're staying but are ready to evacuate if ordered

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Sep 8, 2017 08:53AM Lee7 wrote:

Everyone stay safe and out of harms way as much as possible! Kira, you're close to where my grand babies live and they're staying put but shuttering up their house today. Relatives had evacuated over to them from the east coast earlier. If they have to evacuate, they'll be heading up to me. We're all praying Irma loses strength.


Dx 10/2010, IDC, Stage IIA, ER+/PR+, HER2-
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Sep 8, 2017 10:17AM kira1234 wrote:

At this point charlotte county is suggesting we should stay in place. Shutters are up. We're as much prepared as we can be. Take care Lee.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Sep 9, 2017 06:55PM gstroud70 wrote:

Please stay safe. My thoughts and prayers are with you all... I am going to see about moving sooner so that I can possibly help if needed... this is such a scary storm. Stay blessed.❤

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Sep 9, 2017 08:34PM Luckynumber47 wrote:

So worried about all of you. If possible could you post here after the storm passes so we know you and your loved ones are safe

My avatar is a Blue Footed Boobie. Cracked me up. ATM variant, mom died at 33 from BC Dx 2/15/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 3/16/2016, DCIS, Right, <1cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR- Surgery 4/6/2016 Mastectomy: Left, Right Hormonal Therapy 5/16/2016 Femara (letrozole)
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Sep 10, 2017 03:22AM SpecialK wrote:

We will try - having power and cell service will be the determining factor. Appreciate your concern!

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 10, 2017 09:22AM TWills wrote:

We are riding it out in Palm Harbor, N Clearwater, will head over to my daughters near USF if need be. Especially for air conditioning after the storm. Lol Stay safe everyone!

Chemotherapy 2/1/2016 AC + T (Taxol) Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/12/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Surgery 7/9/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/30/2017 Whole-breast: Breast, Chest wall
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Sep 10, 2017 12:49PM ksusan wrote:

Good thoughts for all of our Caribbean and Gulf sisters and brothers, from the smoky Northwest.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 11, 2017 11:19AM nbnotes wrote:

There is a lot of debris in my area and many have lost power, but I luckily still have it. I feel so much for those that had more damage, but the reduction in category and jog east really helped our area.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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Sep 11, 2017 11:21AM - edited Sep 11, 2017 11:22AM by TWills

No power in Clearwater, all good though other than some minor roof damage. Trees down in neighborhood.

Chemotherapy 2/1/2016 AC + T (Taxol) Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/12/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Surgery 7/9/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/30/2017 Whole-breast: Breast, Chest wall
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Sep 11, 2017 11:25AM - edited Sep 11, 2017 11:25AM by nbnotes

Twills - Sorry to hear of the damage you had but thankful that you are good!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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Sep 11, 2017 11:29AM TWills wrote:

Us too, so thankful it changed directions a bit, made a huge difference in the damage that could have been done to the area.Ready to get back to rads this week so I can be done!

Chemotherapy 2/1/2016 AC + T (Taxol) Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/12/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Surgery 7/9/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/30/2017 Whole-breast: Breast, Chest wall
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Sep 11, 2017 03:06PM SpecialK wrote:

Good here too, stayed at Raymond James with my DH and DD (and the cat and dog, lol!), debris around the house but no structural damage and we have power. Super lucky. Hope everyone checks in for a nose count

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 11, 2017 04:51PM AnnAlive wrote:

We're still evacuated. No power in our neighborhood and estimate is several days. So much of FL is without power that we have to wait until it is feasible to make the trip from Alabama. But our neighbor looked inside and outside our house and sees no damage, praise the Lord.

AnnAlive - 2011: AC/TH, BMX, ALND, TEs. 2012: Rads, DIEP. 2014: LE. Dx 4/5/2011, IDC, Stage IIIC, Grade 3, ER-/PR-, HER2+
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Sep 12, 2017 11:30AM kira1234 wrote:

We suffered very little damage. We have 2 large trees that are done. Other than that a screen door blew off the front lani and the screen was damaged. Just very happy all are safe.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Sep 12, 2017 07:36PM TampaBayBucsGirl wrote:

We did very well too. Just got power back today. No damage that we could see. Maybe a few shingles here and there. Not too much debris either.

We were all very fortunate this time. It's kind of like a wake up call to be more prepared next time. One good thing came out of it. We found out that our generator still works after being in the garage for so many years without any usage. Now we know how to get it all set up for next time when we lose power again.

Glad everyone is happy & safe! 

Dx 9/29/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/25/2016 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 12/2/2016 Herceptin (trastuzumab) Chemotherapy 12/2/2016 Taxol (paclitaxel) Hormonal Therapy 2/27/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 3/1/2017 Whole-breast: Breast
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Sep 13, 2017 10:48AM Galsal wrote:

All good here. Evacuated to my Sister's just in case. My place is at 9ft elevation. Her's is up by USF and is at 60ft elevation. Minor damage at her place and mine is association controlled things like some edge facings off, sections of fencing down, etc.

May all be okay and those still not home yet or have power....Prayers things get better and SOON. Here we were so very Blessed that it took a sudden jog and moved away from a direct impact and it's surge, etc.

It's been a rough week but we're here!

Dx 12/14/2011, ILC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2012 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 10/6/2012 Arimidex (anastrozole) Hormonal Therapy 12/13/2012 Femara (letrozole) Hormonal Therapy 4/16/2013 Aromasin (exemestane)
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Sep 14, 2017 08:20AM nbnotes wrote:

So glad to see everyone came through the storm so well especially considering what we thought we might be facing!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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Sep 14, 2017 08:29AM SpecialK wrote:

nbnotes - so true! We were indeed lucky! Now we just have to find a new lunch date that works for everyone so we can be thankful together!

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Sep 16, 2017 09:54AM nbnotes wrote:

My Saturdays are open for lunch from now through Nov 4th. I'm good on Sunday except for 9/24 & 10/15. So, hopefully sometime in the next 6 weeks or so would work for everyone.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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Sep 16, 2017 10:45AM TWills wrote:

I'm pretty much open as well:)


Chemotherapy 2/1/2016 AC + T (Taxol) Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/12/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Surgery 7/9/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/30/2017 Whole-breast: Breast, Chest wall
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Sep 19, 2017 08:48PM nbnotes wrote:

Well I was very free but now I've been asked to perform with two different wind ensembles during October; so 10/15,16,21,&22 are now out for me. Hopefully we can still find some time that will work.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib)
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Sep 21, 2017 07:39PM kira1234 wrote:

My Saturdays are basically open

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right

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