Join Us

We are 225,723 members in 83 forums discussing 164,194 topics.

Help with Abbreviations

Topic: Exchange City

Forum: Breast Reconstruction —

Talk with others facing decisions about whether or not to have breast reconstruction, and if so, what type and when.

Posted on: Jan 31, 2009 01:41PM - edited Feb 18, 2020 03:36AM by Mykidsmom

Mykidsmom wrote:

We love to include everyone's surgery dates - Please PM me and I will update the list to include you! The list keeps changing since we try to move forward as the dates move forward. Thanks. - Jean

Useful web sites:

Mentor: http://www.justbreastimplants.com/implants/mentor_specs.htm

http://www.mentorcorp.com/breastsurgery/reconstruction/breast-implants.htm

Mentor ultra high profile implants: http://www.mentorcorp.com/global/physician-information/silicon-gel-breast-implants.htm

Allergan: http://www.allergan.com/assets/pdf/natrelle_catalog.pdf

2019:

1/3/2019 - Crossh - Exchange Surgery (completed)

3/25 - Allebasi - Exchange Surgery left side and a lift and small implant on right side for symmetry (completed)

2020:

April 2020 - SuBreez88 - Exchange maybe in April.

April 16, 2020 - 08172016 - Exchange Surgery

AnnieAlso - Revision Sister in Waiting!

Prophylactic Bilateral Mastectomy w/ Tissue Expanders - 12/08 Exchange 04/09 Dx 8/25/2008, LCIS, Stage 0
Log in to post a reply

Page 1386 of 1,387 (41,585 results)

Posts 41551 - 41580 (41,585 total)

Log in to post a reply

Sep 27, 2021 05:38AM Nsbrown54 wrote:

Oxbury - I had to wait 3 months, mostly due to insurance requirements between before I could get my implant. My PS did say if I had to have radiation I would have had to wait 6 months before I could have the implant.

Dx 6/16/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab) Hormonal Therapy 6/1/2021 Arimidex (anastrozole)
Log in to post a reply

Sep 27, 2021 02:09PM VegGal wrote:

Three months for me

Dx 1/12/2016, DCIS, Left, <1cm, Stage 0, Grade 2, 0/3 nodes, ER+/PR-, HER2- Surgery 3/11/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 6/10/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 9/8/2017 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Oct 23, 2021 09:04AM lab44 wrote:

Just made an appointment to replace my imlplants (origially put in 10 years ago). My pre-op appointment is next week. I feel more nervous now about the upcoming proceedure than I remember feeling back then. Would like to gets your thoughts on the following:

  • placing implants over or under muscle
    • My current implants are under the muscle and 1 breast becomes concave when my muscle flexes. Both methods have pros / cons.
  • if you had nipple reconstruction, did your Dr. "save" the reconstructed nipple OR did you have another proceedure to recreate them?
  • What was your recovery like?
  • Did you need an overnight(s) at the hospital?
  • Any other advice?
TIA
Log in to post a reply

Oct 23, 2021 09:18AM MCBaker wrote:

Outpatient procedure, although I felt pretty rough. Over muscle, never considered anything else (I am not what most people would call athletic). DCIS was too close to the nipple. Could not be saved. I had a tattoo, and I like it-- like a sayonara to BC.

Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 11/15/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 11/16/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 12/18/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Surgery 6/27/2019 Reconstruction (right): Fat grafting, Saline implant
Log in to post a reply

Oct 30, 2021 01:56AM Mountainlover wrote:

Dearest ladies,

I thought of sharing my experience with implant exchange here, as I have browsed this thread many times ahead of surgery to know what to expect.

I had an expander for over 15 months due to Covid-related delays and it wasn't fun. The TE was placed over the muscle during my skin and nipple sparing mastectomy in July 2020. The edges always hurt. But its appearance was always more than acceptable to me. Then, after 8.5 months I had a first round of fat grafting. The PS deflated the expander a bit, took 250 ml of fat from hips and inner thighs and placed it around the TE. The fat grafting was much more painful than I expected and I also had a huge hematoma on one leg, but I was ultimately relieved to have had it, as it greatly reduced the pain/discomfort caused by the TE. And the cleavage looked natural enough afterwards to be able to wear nearly all my summer clothes!

Finally, on 20 October I had implant exchange and a second round of fat grafting. The surgeons took fat from upper thigh and knees and injected all around the implant. They used a 190 ml tear drop, textured sylicon implant (I'm a B cup). I can't comment on the looks as it is still early days but it is already much much more comfortable than the TE ever was. The surgery was less heavy than the first, I felt much less weak, and didn't need much analgesia afterwards. I had one drain which was removed earlier today (day 9). The bruising from fat grafting is significant but nowhere near as scary as the first time! I have to wear a compression band to keep the implant in place and post-surgical bra for 3 to 4 weeks, I have been told not to lift my arm for the time being and to avoid lifting anything heavier than 5 kg for 4-6 weeks. They used the same incision as the first time (inframmamary fold) and closed it with stitches and glue. They plan to remove the stitches on day 13.

Best wishes to you all!

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole) Surgery 4/8/2021 Reconstruction (left): Fat grafting Surgery 10/19/2021 Reconstruction (left): Fat grafting, Silicone implant
Log in to post a reply

Nov 24, 2021 08:45AM Lalbo wrote:

First time posting. I was diagnosed with bc in right breast the end of March 2021. I chose to have bilateral mastectomy with immediate TE's. I had to have radiation (no chemo) on the right side so they filled the right TE and the left was less filled to not interfere with the radiation. After I finished radiation, the PS immediately started filling the left TE. PS said we had to get the TE to implant exchange done in a month, before my skin started reacting to the radiation. Mastectomy was done on 5/12/21 and TE-implant exchange was on 9/22/21. Having had no experience, nor anyone I knew having had the same situation as me, I had no one to talk to about my options. My left breast is acceptable to me, my right, not so much. My PS said that if we were to make them more symmetrical he would only be able to work on the left side. He would go in to lift the left up to the same level as the right. Currently they are about 1/2 inch "off". I'm 2 months out of TE-implant surgery. I'm trying to be patient and see how they are at 6 months. On the one hand, I do not want to have surgery again (i'm tired of all the poking, prodding and healing), on the other I am not pleased with how my right breast looks. I'm curious why my PS said he wouldn't operate on the radiated side when I read on here that others have had their TE's still in 6 months after radiation then they are having the second part of the reconstruction. Are they having something other than saline implants? DIEP maybe? At this point I'm apprehensive about going to another PS who will tell me what I want to hear and do surgery and mess up what I have. My PS told me I was going to be more symmetrical and my breast were going to be youthful. Looking at before pictures, they are somewhat more symmetrical. After it is all over I feel like I was sold something that I was never realistically going to have. Look PS, you don't have to sell me on something, just tell me the truth. I'm glad I don't have cancer anymore, and I look fine in clothes. I'm just sad about it all and wonder about my options. I would love to get a second opinion from someone I could trust. I just don't feel like that's going to happen. I still have time to think about corrective surgery.

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Nov 24, 2021 09:15AM - edited Nov 24, 2021 09:42AM by scaredme

I finished radiation in May of 2021 and was told that I needed to wait at least 6 months before having my TEs exchanged for permanent implants. I have had the TEs in since October of 2020, going through multiple fills, chemo and radiation during that timeframe.. My PS says that her approach with radiation patients is to "overfill" the radiated side and have it be slightly lower than the non-radiated side because over time, the radiated side lifts up as the skin tightens and this allows the result to be more even. So far (at least with the TEs, she seems to be right).

I will be having silicone implants placed during my 12/9 implant exchange surgery.

Dx 8/11/2020, IDC, Left, 4cm, Stage IIIA, Grade 3, 8/20 nodes, ER+/PR+, HER2- Surgery 9/1/2020 Lumpectomy Surgery 10/29/2020 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/4/2020 AC + T (Taxol) Radiation Therapy 3/25/2021 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 3/29/2021 Femara (letrozole)
Log in to post a reply

Nov 24, 2021 10:45AM MCBaker wrote:

If you look fine in clothes, and don't cry when you look in the mirror without, it is good enough. So long as hubby agrees.

Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 11/15/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 11/16/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 12/18/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Surgery 6/27/2019 Reconstruction (right): Fat grafting, Saline implant
Log in to post a reply

Nov 24, 2021 11:44AM Lalbo wrote:

I guess every PS has their own way of doing it. I will try to wait patiently for the 6 month mark. My non-radiated breast is 1/2 inch lower than the radiated. He even said the radiated side will not "droop" like the non. I thought it was weird that he didn't err on the side of caution and make the non-rad side higher or at least even to begin with if they tend to droop. I'm sure hubby would rather them look more "normal", but he will defer to me since he's not the one having surgery. Winking

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Nov 24, 2021 01:17PM MinusTwo wrote:

Lalbo - I too had 6 months of slow fills between TEs and exchange for silicone implants. I thought most docs filled the TEs before radiation to hold the skin and then did the exchange. Even though my PS was the chief of surgery for a major hospital, I had cosmetic doubts and went to get a second opinion half way through. I didn't change docs but I'm glad I talked to another plastic surgeon before I finished.

I'm 10 years out now and the non radiated side has become droopy. My PS told me 2 years ago he could fix that. It's only evident without clothes and I'm not sure I want to subject myself to more surgery & drains & the risk of more lymphadema.

Do let us know what you decide.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Nov 24, 2021 01:17PM Serendipity09 wrote:

Lalbo - Not the same situation. I had my exchange to implants in July 2021, but was diagnosed with a recurrence a few days after. I did 25 sessions of radiation and finished on 10/11/21. PS told me back in July that I would have to wait at least 6 months before we could do any corrective surgery as it takes the tissue about that much time, if not more, to return to normal. I'm not happy with how my breast look either, but I was told from the beginning that I would require several surgeries to get them to where I will like them. I hope everything works out for you.

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Nov 30, 2021 12:30PM Lalbo wrote:

Serendipity - I wasn't told about the chance of having several surgeries. My DH was in the room so there would be extra ears. There were several things I felt misled on. But, all I can do is go forward. My DH told me last night, whatever I decided to do, even if it meant going to New Orleans for surgery, he would back me up 100%. I am blessed to be with my husband, he's been my rock. I picked a winner the second time! I pay alimony to the first one (not a winner). But that's a story for another day. Winking

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Nov 30, 2021 01:57PM Serendipity09 wrote:

Lalbo - I'm so happy your husband is so supportive! It makes things a little easier to deal with.

I don't understand why the immediate exchange to implant after radiation. I'm a bit new to all all of this and learning a lot, but I would think that because radiation works from the inside out your tissue would have been too fragile for surgery. My skin reacted very quickly, I went into rads day 3 or 4 already a little pink. Again, I realize everyone is different (and my lack of knowledge), but never would've thought surgery so soon after rads.

All of my doctors and surgeons told me from the beginning that they wanted me to feel comfortable with myself at the end of all of this. My PS even went as far as having me go get a second opinion, even though I had already decided to have her do my surgeries. She wanted to make sure that I was being given all the information from different sources. The second PS confirmed everything my PS had told me, there were would more than one surgery.

Good luck and keep us posted.


Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Dec 1, 2021 09:59AM Lalbo wrote:

Serendipity - my PS said that he wanted to get the implant in before the skin started really reacting to the radiation. Of course, I had no reference so I only knew to go by what he said. I only found this site recently. Hindsight and all. I am putting a pad from my sports bra in the right side of my bra to even my foobs out. At least with clothes on I feel like I look better and more symmetrical. Otherwise I was super self-conscious walking around n the office. It was becoming distracting. That will make me feel better during the wait.

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Dec 1, 2021 11:50AM Serendipity09 wrote:

My foobs came out too big IMO. I'm hoping the PS will agree to put smaller implants in. I lost quite a bit of weight during treatment and then had the fat graft grafting done during the exchange and cannot seem to gain it back. When I first met with PS I wanted to be as close to my size as possible, well I didn't take perkiness or weightless into consideration...I'm huge! The size I was when I had the TE's was just right, so I thought. I didn't realize that the aldoderm didn't hold up, literally, and both breasts were sagging (I didn't and still don't like looking at them too much) I actually like the way the radiated breast looks compared to left. Didn't you say that too?

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Dec 1, 2021 02:21PM prepmom wrote:

Serendipity- I had my TE to implant exchange done 2 years ago and felt the same way as you for a long time... TOO BIG! From the get-go I was planning on when I could go to my PS and ask for smaller implants. Then 5 months in I somehow contracted an infection in the left side- just as everything was shutting down due to COVID. I was very lucky that the PS was able to see me, but I was petrified that the oral antibiotic wouldn't work and I'd need to be hospitalized and lose the implant. Fortunately, the antibiotic cleared it right up, however I developed mild capsular contracture afterwards, so the left foob sits slightly higher and tighter than the right. Oh, and my nipples aren't really even either.

It really bothered me & I was slightly obsessed with how I looked for quite a bit. And then one day I realized that most 50+ year old women don't have perfect boobs and no one should be looking at my foobs anyway!! lol. I don't know why, but it just stopped bothering me. I don't love the foobs now and really don't like to look at myself undressed in the mirror, but otherwise I'm ok. I'm able to focus better on how amazingly strong my body is- it took a long time, but I'm finally able to do all of things I did pre-surgery, without pain. And for that I am very grateful. And also a little scared to tempt it.

Maybe someday, when/if these foobs need replacing, I'll think about a do-over, but for now I'm ok.

Dx 5/24/2019, LCIS/DCIS, Left, <1cm, Stage 0, Grade 2, 0/5 nodes, ER+/PR+ Surgery 8/14/2019 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/4/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Log in to post a reply

Dec 1, 2021 03:06PM Serendipity09 wrote:

Prepmom- thank you for the post. I feel like I have a tight bra on all the time. I'm glad they were able to take care of the infection. I was diagnosed the day of the shutdown in my state and was lucky to have started treatment nit even a week later. I was worried going in for the BMX as it was right in the middle of the craziness anreven more terrified of being in the hospital.

Nipples...that's the other thing; I don't have any. I think I wouldn't have such a hard time looking if they were there. I'll have 3D nipples tattooed on, but that's not going to be for at least another year to year and half depending on the how many revisions. SIGH!

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Dec 2, 2021 04:39AM Lalbo wrote:

Prepmom - thank you for your post. I'm glad the oral antibiotic worked! My PS said "your breasts weren't symmetrical to being with" and they are more symmetrical now. They don't look it to me. After the surgeries and radiation, I'm tired of people messing with me. This is a good time for a break from all that.

Serendipity - My radiated side looks wonky to me. The non-rad side looks better. Straight line across the bottom of my foobs, the non rad side is 1/2" lower than the rad side. Plus the shape of the rad side is not really round, it's got more contour to it. Fine in a bra, not so fine braless.

They are also much larger than before. Basically went from A to D!! Thought it would be more like a C, but I don't feel like I look that much different in clothes. I did wear padded bras before, so maybe that's why. I would consider going smaller if/when I have to have surgery again.

It is nice talking with people about this!

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Jan 4, 2022 11:05AM Lalbo wrote:

Update - I have a pre-consultation phone call with the Breast Cancer Center in NOLA this Friday. This is to get preliminary health information from me. They are out of my BCBS network. I believe BCBS will pay 80% after deductible. They will put it through their billing department to let me know how much it would be so I can make a decision on whether or not I can afford it. I wouldn't be having surgery until after 6/27 (when I get my vacation time). They specialize in DIEP flap, I have implants, so...

I have seen on here, or somewhere else, someone has had a combination of DIEP and smaller implants. I'd be ok with smaller FOOBS at this point in time. I went from an A to D. That's a big change, plus laying on my side is very uncomfortable. I thought I was going to get B, maybe small C.. I think I'm on the larger size of D (at least on the left side).

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Jan 4, 2022 12:04PM Serendipity09 wrote:

Lalbo - good luck with the pre-consultation.I really hope everything works out and that it isn't too costly s that you can get the DIEP done. Can I ask, do you live in LA?

I see my PS on the 19th. I'm having severe shoulder and neck issues and someone, not sure if it was OT, PT or ortho (two fo them though), mentioned that my implants are probably too heavy which is not allowing me to progress.

Keep us posted!!

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Jan 4, 2022 01:20PM Nsbrown54 wrote:

Serendipity09 - I hadn’t thought about my implant being too heavy as a cause of my shoulder and neck pain. I did lots of PT last year. I don’t see my PS until next month, when I schedule my exchange surgery for my left side. I’ll have to ask him about it. I plan to go smaller in both breasts.

Dx 6/16/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab) Hormonal Therapy 6/1/2021 Arimidex (anastrozole)
Log in to post a reply

Jan 4, 2022 04:12PM Serendipity09 wrote:

Nsbrown54 - I hope everything goes well for you. I see you had your surgery a few months after me. I've been in PT for exactly a year this week and I think I'm worse off now than I was a year ago, granted I had radiation this past September/October which probably made things worse. I'll update once I speak to PS in a couple weeks.

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Jan 5, 2022 03:53AM Lalbo wrote:

Serendipity - I live in Central Alabama, but I am willing to travel (not too far) to get good results, and New Orleans is not too far away. About as far away as going to the beaches in Mobile, AL. I just do not have confidence that my PS would do a good enough job. He and I kind of butted heads when I would ask him questions. He would say one thing in one appointment and something else in another and I would question it and I could tell he would get irritated with me. I even said something to the nurse about us being irritated with each other and that's not what I was trying to do, but this is very important and I wanted to make sure I understood everything. Then the next time I go in he was more understanding, roller coaster ride. Up....down....up....down. I wish I had gotten a second opinion on the reconstruction but it all was happening so fast. Dx 4/6/21, BMX 5/12/21, Radiation, then implant exchange on 9/22/21. If I had one week of no doctor's appointment during this time it would have been rare. The PS also said he was surprised I remembered so much of what he said, most people heard "cancer" and couldn't focus. Well, that's not me, and this was very important to me, so I had a notebook with notes and questions every time I went in.

My right shoulder is "acting up". I cannot reach back behind me as far or as easily as I used to. I read something about rotator cuff problems from laying on the operating table with your arms out for an extended period of time. I haven't seen anyone about it yet.

My thoughts are racing all over the map on any given day. I'm not happy with my foobs, looking at them can cause me to be depressed because they look so wrong. I want to get them fixed so they look better. I'm pretty much over my surgery pain, do I really want to go through that again? Will something wrong happen this next time, should I leave well enough alone? ETC....

I'm an overthinker to the max. Then I read horror stories on here and get scared of possible problems with additional surgeries.

I will take it one step at a time. Next step is conversation on Friday...

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Jan 5, 2022 04:34AM - edited Jan 5, 2022 04:44AM by Serendipity09

Lalbo - I understand completely about wanting your foobs to look better and it is your right. You keep advocating or yourself!

Nothing worse than second guessing your doctor. I was very lucky to get such a great team of doctors. My MO is great, a bit intimidating, but nonetheless, a great doctor. We've butt heads a couple times, but nothing where she would get TOO irritated with m. In the end, she knew I respected her and I was just stressing over the situation. My BS and PS work so well together, both of them are perfectionists. I know my PS will get me to where I'm comfortable and feel good about myself, at my first consultation with her, she made it very clear that that was the goal.

I think you're right, some doctors don't realize that we do retain the information after hearing the word cancer. I didn't focus on the diagnosis as much as I focused on treatment.

I'm an over thinker too and like you I've read and know of horror stories. My surgeons are very up front with me and will always explain the risks and possible outcomes. I believe Mentioned this somewhere, but I don't think I'll have he option of smaller implants after rads and will have to get a DIEP. I'll know more on the 19th.

I think all the appointments get as draining as treatment. I remember during rads, I'd cry on my way to the hospital because it just became too much.

Regarding the shoulder, I'm having the same issue and in PT, nothing is helping and am seeing the ortho for that, he's given me cortisone sots we take care of the pain temporarily. PT recommended an MRI, waiting to hear if that will happen. At one point I was not able to tuck a shirt in the back of my pants, I couldn't even pull my pants up, my son had to help me, lol (funny/not funny)

Hoping all goes well with your consultation. Keep me/us posted. And I'll do the same.

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Jan 5, 2022 04:45AM Lalbo wrote:

Serendipity… - I think I did well emotionally all the way through radiation treatments and the fill of the left TE, it hit me right before the implant exchange surgery. Now that I think on it, during one rad treatment near the end I remember having tears run down my face. I was just tired of it all. After the exchange surgery, when I tried on real bras for the first time (and nothing fit right)..I went home and sobbed for a good long while.

Nsbrown54 - please keep us updated on your progress!

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Jan 5, 2022 06:47AM MinusTwo wrote:

Lalbo - NOLA is a good bet. It's unlikely most docs would replace your implants until 6 months after your last surgery. But at least you can set up a consult.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Jan 5, 2022 09:00AM Serendipity09 wrote:

Lalbo - trying on bras triggered me. I really don't have to wear them, but I feel awkward at times. I've become more accustomed to not wearing them lately.

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Jan 5, 2022 09:19AM Lalbo wrote:

MinusTwo - I'm not planning on having any surgery until July 2022 or after. I'll be at 6 months post last) surgery in March 2022. I'm waiting until I get my next round of vacation time. ;-)

Serendipity… - if my foobs were semi-symmetrical I wouldn't have to wear one. I really was looking forward to not wearing bras. I have to "stuff" mine to make them more similar. I put on a tank top with no bra and the line was diagonal. Whee!!! Not that I planned on wearing just a tank top, but that also translates to other tops. I felt more symmetrical when I had my TE's in. Now I really droop on the left side and am super perky on the right.

The last time I talked to my PS (6 weeks post surgery) he said he wouldn't touch the wonky right because of the radiated skin. To make the left more symmetrical with the right, he would open it back up, cut a football shape out of the capsule formed around the implant, sew it up and put the implant back in. He said that would lift it up to the "height" of the right side. Even if this is the way I would go, I think I would still go with a different PS, since I've lost confidence in the original PS.

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Jan 11, 2022 02:43AM Lalbo wrote:

I talked with a nurse at the CENTER FOR RESTORATIVE BREAST SURGERY in NOLA. She was very nice and informative. I felt much better about having a follow up surgery after talking with her. She said she thought the surgeon would most likely recommend the APEX Flap procedure:

The APEX FlapSM breast reconstruction is a highly sophisticated microsurgical technique that is used to rebuild the breast lost to mastectomy. Like the DIEP Flap, excess living fat from below the belly button is transplanted to the chest to restore volume and shape. The APEX FlapSM differs from an ordinary DIEP however, as it allows for the natural anatomy and blood vessels to be rearranged to perfectly preserve the abdominal muscles and improve blood flow to the tissue transplant when necessary. This technique is an advancement over the DIEP procedure and has very specific indications and benefits. Link - https://www.breastcenter.com/breast-reconstruction...

I sent my insurance information to them and am waiting to find out how much I would have to pay for the surgery. They are out of network, I believe my insurance would pay 80%, but if I get the results then I would be willing to pay that.

They did say they have worked on people with radiated skin, so that was not an issue for them.

Overall, very positive.

Dx 3/2021, ILC, Right, 6cm+, Stage IIIA, 1/2 nodes, ER+/PR+, HER2- Surgery 5/12/2021 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/19/2021 Whole-breast: Lymph nodes, Chest wall Surgery 9/22/2021 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Femara (letrozole)
Log in to post a reply

Jan 11, 2022 04:15AM Serendipity09 wrote:

Lalbo - thanks for the information. I'd be interested in the APEX FlapSM. Do you know if it's only offered at the Center for Restorative Breast Surgery? I see my PS next week and am going to ask about this procedure.

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall

Page 1386 of 1,387 (41,585 results)