Feb 10, 2009 05:50PM emor wrote:
I am not sure where to start and I am afraid I my experience will not make you happy and optimistic about your situation. I had my bilat mx with TE in August 2008. I still have unresolved seroma issues on one side. I had drains for 5 weeks the first time, 8 weeks the second time and I am now on my 3rd week with the third drain. I had 4 surgery since my mx, was completely expanded but lost most of the fills during my surgeries. I tried complete bed rest for 2 weeks, compression for 7 weeks - nothing helps. I drain 50-60 cc a day. I even had a sclerotherapy (Tetracycline treatment) done during my last surgery. I had a lymphoscintography done yesterday - it is a very similar procedure to sentinnel lymph biopsy - to try and see if I have a lymphatic leak somewhere in the breast area. The test did not give a conclusive answer. My BC surgeon and my PS are trying to figure out together what to do. I do try to keep my chin up (as my PS keeps asking me to do) but it is not easy. I have learned to deal with the drain and live with it but it is uncomfortable and I do have to be on abx most of the time in fear of infection.
I am not sure what kind of an advice I can give you. The only thing I can think of is that you might want to raise the issue of reinserting a drain with your PS. I am sure my PS would let me drain through an open wound. The danger of an infection is too great.
I can only wish you that your situation will be resolved much much quicker than mine. I completely understand how you feel.
Hugs to you -