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Topic: Bras 101: The Great Post-Exchange Debate

Forum: Breast Reconstruction — Is it right for you? Discuss timing and various procedures and techniques.

Posted on: May 25, 2010 06:30PM - edited Feb 15, 2013 07:16AM by val61

val61 wrote:

BRAS.......whether you love themKiss or hate themYell, they are often part of our reconstruction journeys. Whippetmom and I decided to share some information that we discovered throughout our respective journeys through breast reconstruction. There are different practice styles and philosophies among plastic surgeons (PSs), and this extends to their feelings and recommendations about bras after exchange. Some of our PSs have very specific instructions regarding underwire/wireless bras; some say no bra is necessary, and some say nothing on the subject. It seems that a great number of PSs fall in the latter category.

Please note: We are NOT physicians or medically educated....just fellow bc sisters who have researched this subject and want to share what we've learned :)

If you have lymphedema or have been told you are at risk for it, please discuss the issue of bras and supportive breast wear with your physician. Risk factors:

http://www.breastcancer.org/tips/lymphedema/risk.jsp

Why would I need a bra after reconstructrion?  To keep those lovely implants where your PS placed themSmile.  Because underwire bras provide such excellent implant support and stabilization (when properly fitted), many plastic surgeons advocate the use of them soon after the exchange surgery. The wire provides "encapsulation" to help prevent implant migration. This was my experience. My PS sent me for a professional bra fitting (at Nordstrom) as soon as the drains were removed. I wore that underwire bra 24/7 (I bought two :) - worn VERY tightly in both band and straps - for the next 3 1/2 months.....yes months! That is the time it generally takes for scar tissue to form the "capsule" around the implant. Until then gravity and arm movements can cause the implants to migrate.

Some have asked if underwire bras could harm the new sutures and pocket work after exchange. While those of you whose incision line is along the IMF (inframammary fold) will likely be unable to wear underwire for awhile, most of us with traditional trans-aerolar incisions will be allowed to wear them. My PS's belief is that an underwire is absolutely necessary to provide adequate support for the implants, as there is little else to support them initially. We need to think about what's supporting our implants. Many of us here have had TE's [tissue expanders], so our implants are essentially held in place by our (often very thin) expanded tissue coupled with the various chest muscles and sutures. (Not the case for those who've had flap procedures.) Eventually (3-4 months according to most PSs) scar tissue forms the capsule, which then adds some additional support. Despite rumors, there is no need to fear about missing the often discussed "drop and fluff" of the implants; wearing a bra will not interefe with that. Even with support from a bra, the implants will settle into the pockets - promise! The degree of "drop and fluff" is greatly influenced by the expansion process (style of TE & fills), so there is a lot of variability among us.

There are some PSs who believe that reconstruction patients need never wear a bra - a topic hotly debated around these forums, for sure. As with much of the reconstruction process, philosophies differ among physicians. There are some PSs (mine included) who feel that reconstructed breasts will ALWAYS need the support of a bra except for short periods. And yes, that includes during sleep - especially in the first several months - perhaps much longer for many of us. Believe it or not, many of us actually discover that it is more uncomfortable to NOT wear a bra :). Gravity is not a friend....to faces, fannies, or foobs!

We realize that not every PS or sister with reconstructed breasts is as "pro-bra" as we are. But for those of you who want to maximize your reconstruction results by minimizing implant migration-and have no contraindicating factors- hopefully this information will be useful. Of course, we want to clarify that the quality of the bra is essential. Not all underwire bras are appropriate for the purpose of encapsulating and supporting the implants on the chest wall. A high quality bra, which uses better fabric and wires in the construction, will provide superior fit and longevity while doing its job of providing proper implant support. Many insurance companies offer coverage for even non-surgical bras, so be sure to check.

What about size? A HUGE question! Sizing is a bit tricky with implants because they are wider and flatter than natural breasts. If you don't have access to a well-trained professional bra fitter (Nordstrom fitters are famous, but many other department stores and small boutiques are good, too), then here's a good place to start:  www.herroom.com/bra-fitting-ad...   Sizing with implants is very much a trial and error process, but this technique is generally pretty darn close.    ***Please note:  These are different from the conventional "just measure around your ribs, then your chest" instructions, but I think they result in a truer measure of size for many people. Implants are much wider and flatter than natural breasts, so sizing is a bit iffy, though the technique described at herroom addresses these issues. Just as with clothes, sizing differs between manufacturers, so be prepared to try lots of bras!

What kind of bra do I need and how should it fit?  Well, the main goal of the bra post-recon is to stabilize the implants both laterally (from the side) and vertically (from the bottom). Some of us may need a bra that also does not allow the implants to move too much toward the center - the dreaded "uniboob." For most of us, though, the main goal is to find a bra that does NOT push the implants out to the side. I can't stress this enough! This is one of the leading reasons for revisions. This can be very difficult to find, especially in a non-wired bra. Be careful of any trim along the center edge of the cups, as even this can push the implants out. The best type of bra is an UNLINED one - yes, no lining or padding at all - because these can interfere with optimal positioning of the implants. Here's the clincher: ideally the band should be extremely tight and the straps pulled as tightly as possible so there is no "vertical play" in the implants. We Americans are all about comfort, and we wear our bras far looser than our European friends! You should initially be "aware" that you are wearing a bra, which is a nice way of saying its going to be snug :). In fitting an underwire bra, be especially careful that the wire completely encapsulates the implants, especially on the outside. The wires should sit just on the outside edge of the implant (under your arm). In the center, be careful that the wires sit slightly AWAY from your chest and don't touch the implants, which could push them to the outside. If the center wires push into the sternum (a common complaint), the cup is too full. If the wires sit more than about 1/4" away from the sternum, the cup is too small. Our upper-pole fullness depends on our implant style. Some bra brands tend to run fuller in the cup than others. The idea is to keep the implants contained in the proper position on the chest wall, and most importantly, to keep them from migrating laterally or medially on the chest wall. If you engage in high-impact exercise (running, aerobics, etc.) the same instructions apply, plus one more: the implants should be held snuggly against the chest with NO BOUNCE! This may require two sports bras - one for encapsulation and one for compression - but it'll be worth it in the end.



Some of our "Bras 101" favorite brands are:

Freya, Fantasie, Chantelle, Marena, Wacoal, Anita, Goddess, and Soma.

Good luck! And remember - this is just ONE point of view!

Some of our favorite bra websites:

http://www.herroom.com/

www.barenecessities.com/

www.biggerbras.com

shop.nordstrom.com/ 

www.brasmyth.com

Thanks for stopping by and checking out our thread!  Hugs!

ValCool

bmx w/ TE's 1/21/09; recon completed 7/9/10. "We must see all scars as beauty, okay?...A scar does not form on the dying. A scar means, I SURVIVED!" (excerpted from "Little Bee" by Chris Cleave) Dx 12/19/2008, ILC, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR-, HER2-
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May 8, 2018 01:22PM TrmTab wrote:

At lunch break went to Nordstrom's to get a bra fitting...needing help with my shrinking R side with weight loss and the 800 too big implant on L...never wanted it that big, thought I was getting 700...long story.

At any rate, having been okay but not totally satisfied with 38D/DD depending on style...the Nordstrom's fitter put me into a 4D! It fit and looks like a D in clothes, it just fully captures all the side boob and as it is an underwire, is sufficient to deal with the wideness of the implant.

Bought one and will see if I think it works...will have to cut out the tags (only kidding) as my husband would think I am insane with that size!

Wacoal Awareness full figure 38G!

Happy Tuesday, enjoying the sun and 70 degrees, TT


Dx 9/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 12/21/2015 Lumpectomy: Left Surgery 1/10/2016 Lumpectomy: Left Hormonal Therapy 2/4/2016 Arimidex (anastrozole) Surgery 6/3/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 1/1/2017 Arimidex (anastrozole) Surgery 9/8/2017 Reconstruction (left): Silicone implant Surgery 12/17/2018 Reconstruction (left): Silicone implant Hormonal Therapy 5/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 21, 2018 11:17AM samppong wrote:

It's interesting how much variation/s there are when it comes to this topic. I've had RT mastectomy, Phropyletic Masct LF with immediate

reconstruction. My implant exchange was June 2018, post -op little over a wk with IMF incision. I just emailed my PS with all that was stated

in this forum to get some clarification. And this is what i received from my PS.

ABSOLUTELY NO UNDERWIRE BRA!! Padded bra and soft cup are acceptable for short periods. You'll have to check

visually for red spots of pressure. The mastectomy has significantly decreased the protective sensation in your breast skin

and underwire bra's are at risk of poking through the skin to your implants. Support bra's do NOT prevent migration or dropping.

My conclusion....? Have an open dialogue with your PS. I myself seeks conversation/s whom i can relate to and this is a great forum to

learn and read about trials and tribulations. Thank you all for sharing. LET'S KICK THIS CANCER!!!!!!

Best Regards to all,

Kim


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Jun 21, 2018 01:14PM MinusTwo wrote:

Kim - Many docs ban underwire bras totally so that is not surprising. And since you're only a week from surgery, its very soon. I wore my surgical bra for several weeks - especially at night. During the day I wore a 'bralette'.

What kind of implants did you have? That often makes a difference. If you have 'rounds', they will likely take 3-6 months to settle into the correct position. You can read more on the 'exchange' thread.

Maybe you could use something mild and stretchy if it makes you more comfortable - like a Danskin Sports bra.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 27, 2018 07:07PM Shoregirl wrote:

Just wanted to share a link to these bralettes. I find them to be very comfortable with my IMF incisions. They have a smooth wide chest band and delicate adjustable shoulder straps. On clearance now at Kohl's, a 2 pack for $16. Lily of France bralettes

Faith, Hope & Love, the greatest of these is Love 1st Cor 13:13 Dx 12/2/2016, DCIS, Right, 6cm+, Stage 0, Grade 3, 0/2 nodes, ER-/PR-, HER2- (IHC) Surgery 1/26/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/24/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 11/28/2017 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/3/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 12, 2018 08:24AM MinusTwo wrote:

Bump

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 12, 2018 08:39AM TrmTab wrote:

Well since May I have found another Wacoal bra, also 38G! really...but anyway a "minimizer" wireless. On the comment of underwire or not, I didn't start using the underwire until I was 8 months post op and the huge piece is that the G cup fully goes around the implant without ANY pinching...so while the look is of a D cup the wideness of the implant requires the G. I do rotate with one day of underwire and the next of wireless. TT

Dx 9/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 12/21/2015 Lumpectomy: Left Surgery 1/10/2016 Lumpectomy: Left Hormonal Therapy 2/4/2016 Arimidex (anastrozole) Surgery 6/3/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 1/1/2017 Arimidex (anastrozole) Surgery 9/8/2017 Reconstruction (left): Silicone implant Surgery 12/17/2018 Reconstruction (left): Silicone implant Hormonal Therapy 5/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 26, 2018 09:37PM ljm33 wrote:

I just had my exchange yesterday and was sent home with no bra. My PS surgeon said it could interfere with the effectiveness of the fat grafting. And I gotta say, I'm really soreand would love a little support. Anyone else have the no bra requirement? She said we could go with a light one after my follow up next Tuesday. But after reading thru thus, it seems everyone has some kind of wrapping. Now I'm concerned.

Dx 2/19/2018, DCIS, Right, Stage 0, Grade 3 Surgery 4/12/2018 Lumpectomy: Right Surgery 5/23/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/25/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 27, 2018 08:15AM TrmTab wrote:

I found the coobie bras good for offering some support without being structured...I had always thought of them as a light sports bra that you pull overhead and that motion was definitely OFF limits here, but someone referred to them as a pull up bra and, you know, they are...they easily slide right up into place without any pulling or tugging. TT

Dx 9/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 12/21/2015 Lumpectomy: Left Surgery 1/10/2016 Lumpectomy: Left Hormonal Therapy 2/4/2016 Arimidex (anastrozole) Surgery 6/3/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 1/1/2017 Arimidex (anastrozole) Surgery 9/8/2017 Reconstruction (left): Silicone implant Surgery 12/17/2018 Reconstruction (left): Silicone implant Hormonal Therapy 5/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 27, 2018 12:40PM - edited Jul 27, 2018 12:42PM by Sitti

ljm33,

I was sent home without anything for support also. I had fat grafting as well and was told nothing tight so the fat could survive. At my follow up I asked the nurse and she said a Coobie or something along those lines should be okay, very light support. Coobies are great, very comfortable. Like you, I kept reading where everyone was sent home with a bra of some sort but the fat grafting is a game changer in that regard. I did have swelling also and that may account for some of the size volume you are experiencing too. (I saw your post on the exchange thread) I hope you are feeling better.


Edited to add: I wore a cami until my first follow up.

Initial DX - (Right) 2.5 cm grade 3 DCIS, Er-Pr-, after LX - (Right) 4.4 cm grade 3 DCIS Er-Pr-(clear but insufficient margins), after BMX - DX (Right) ALH & LCIS which was never detected until BMX pathology. Dx 12/5/2016, DCIS, Right, 4cm, Stage 0, Grade 3, ER-/PR- Surgery 1/12/2017 Lumpectomy Dx 3/22/2017, LCIS, Right Surgery 3/22/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/19/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 27, 2018 01:26PM DebAL wrote:

Do you get the coobie bras online or does a store carry them?

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/11/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/12/2018 Mastectomy: Left, Right Chemotherapy 4/1/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/13/2018 Arimidex (anastrozole) Surgery 8/8/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/19/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Jul 27, 2018 01:42PM TrmTab wrote:

coobie available on Amazon

Dx 9/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 12/21/2015 Lumpectomy: Left Surgery 1/10/2016 Lumpectomy: Left Hormonal Therapy 2/4/2016 Arimidex (anastrozole) Surgery 6/3/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 1/1/2017 Arimidex (anastrozole) Surgery 9/8/2017 Reconstruction (left): Silicone implant Surgery 12/17/2018 Reconstruction (left): Silicone implant Hormonal Therapy 5/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 27, 2018 01:54PM DebAL wrote:

thank you! I have my exchange and fat grafting Aug 9th

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/11/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/12/2018 Mastectomy: Left, Right Chemotherapy 4/1/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/13/2018 Arimidex (anastrozole) Surgery 8/8/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/19/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Jul 27, 2018 03:51PM - edited Jul 27, 2018 03:56PM by ljm33

Thank you all for the advice. I am feeling a little better today. And I called my PS and she gave me the thumbs up for camis with built in bras so that's helping. And I will check out the coobie bras. A little unsure of the size though. I'm filled to 415 cc I think. I was a small B before. Not sure what I'll end up being this time around. Lol

Dx 2/19/2018, DCIS, Right, Stage 0, Grade 3 Surgery 4/12/2018 Lumpectomy: Right Surgery 5/23/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/25/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 27, 2018 04:10PM MinusTwo wrote:

I believe the Coobie is also available at WalMart.

Personally I didn't care for them - and like Sitti, I wore a cami for several months. It will be 3-6 MONTHS or longer until your swelling all goes down and you can begin to see what you might look like. I would recommend not buying a bunch of expensive bras until all the inside stitches have healed and all the "drop & fluff" has happened.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 8, 2018 09:24PM babyo20 wrote:

can someone please share the link to the picture forum? I was an active member some time ago and would like to post a few things on the site but the link I have does not work.


Thanks for any assistance you can provide!

Dx 5/1/2014, DCIS, 5cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 6/11/2014 Mastectomy: Left; Prophylactic mastectomy: Right Surgery 6/11/2014 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Nov 8, 2018 10:40PM Bcbc wrote:

I'm just amazed at the number of bras I've purchased since my TEs were placed in June. Anyone else??

I bought several immediately after surgery, then keep trying new bras to see if I could find more comfort as my size increased with my expansion. Exchange surgery in December means I'll probably be buying more.

My daughter suggested that every plastic surgeon's office should have a basket for us to donate and exchange these barely used bras. As she said, kind of like the penny cup at checkout, but this for bras. "Take a bra, leave a bra". Makes me smile. Becky

Dx 3/30/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+ Surgery 4/18/2018 Lumpectomy; Lymph node removal Hormonal Therapy 4/25/2018 Femara (letrozole) Surgery 6/1/2018 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/28/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 9, 2018 06:58AM - edited Nov 9, 2018 06:58AM by Aussie-Cat

babyo20, here is a link to the Picture This thread:

https://community.breastcancer.org/forum/84/topics...


Bcbc, I think a bra exchange would be a great idea if it could be arranged.

Diagnosed with nerve pain (post mastectomy pain syndrome) July 2018. Twin sister died of breast cancer May 2019. Surgery 6/18/2018 Prophylactic mastectomy: Left, Right
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Nov 10, 2018 10:40PM babyo20 wrote:

thank you so much

Dx 5/1/2014, DCIS, 5cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 6/11/2014 Mastectomy: Left; Prophylactic mastectomy: Right Surgery 6/11/2014 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Nov 10, 2018 10:43PM babyo20 wrote:

hello Aussie cat, the link takes me to a different spot in this site. I am talking about the picture site where we can share pictures of our reconstruction and view others. It was a different site from here. Do you know what that link is? Thank you

Dx 5/1/2014, DCIS, 5cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 6/11/2014 Mastectomy: Left; Prophylactic mastectomy: Right Surgery 6/11/2014 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Nov 11, 2018 01:47AM MinusTwo wrote:

babyo - I don't remember the way to get to the outside reconstruction pictures, but BCO has set up a site that shows tons of reconstruction pictures. Maybe this will help.

https://www.breastcancer.org/treatment/surgery/rec...



2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 11, 2018 03:31AM Aussie-Cat wrote:

babyo20, sorry that I don't have a link for a reconstruction pictures site. I'm not sure if it's private or not. I hope that MinusTwo's link will help you.

Now I will check out the link that MinusTwo provided, thanks. Clever username by the way!

Diagnosed with nerve pain (post mastectomy pain syndrome) July 2018. Twin sister died of breast cancer May 2019. Surgery 6/18/2018 Prophylactic mastectomy: Left, Right
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Nov 11, 2018 11:09AM MinusTwo wrote:

Aussie & Baby - yes the 'outside' site is private. members of some standing who have a posting history can apply to get a password & be admitted. I'll keep looking for the site link.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 12, 2018 06:02AM Aussie-Cat wrote:

Thanks, MinusTwo.

Diagnosed with nerve pain (post mastectomy pain syndrome) July 2018. Twin sister died of breast cancer May 2019. Surgery 6/18/2018 Prophylactic mastectomy: Left, Right
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Nov 17, 2018 11:04PM Tempy wrote:

I'm post double mastectomy with implant reconstruction in 2015. I've been wearing underwire bras for the past couple of years without much issue since I'm the same size as I was prior to surgery. Over the last couple of weeks I've had more pain on the right side and it's almost like the implant is moving towards my arm pit because where the underwire hit before it's now hitting the edge of the implant. How often should I be getting my implants checked for position, etc?

Dx 4/20/2015, DCIS, Left, <1cm, Stage 0, ER+/PR+, HER2- Dx 4/20/2015, LCIS, Left, ER+/PR+, HER2- Dx 4/20/2015, IDC, Left, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-
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Nov 18, 2018 12:58PM MinusTwo wrote:

Tempy - my PS had me come in twice at 3 month intervals , then twice at 6 month intervals then released me. Originally I was in a trial that called for an MRI at years 5 & 10, but the FDA approved the Allergan 410 cohesive gell implant that I have so the trial was discontinued. I'd say call your PS and make an appointment if you're concerned. Better safe than sorry.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 18, 2018 01:41PM Tempy wrote:

Thanks MinusTwo, it was tender enough at work last night that I went over to the ER and had it checked out (I was wearing a tank top under my scrubs, no bra). ER doc said the pain was definitely on my chest wall, he didn't see any lumps or deformation so wasn't worried about an implant leak. Fast forward to now, I slept a bit and it's still tender but not nearly as painful as it was last night. If it keeps up I'll take him up on his offer of a CT to see what's going on in there.

Dx 4/20/2015, DCIS, Left, <1cm, Stage 0, ER+/PR+, HER2- Dx 4/20/2015, LCIS, Left, ER+/PR+, HER2- Dx 4/20/2015, IDC, Left, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-
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Nov 20, 2018 07:58AM - edited Nov 20, 2018 08:02AM by Dovely

So interesting the variety of instructions given by different PS's. I had a two week delay recon (it's kind of unusual on here, went in for dti and my right breast wasn't happy, so I had vaccum therapy and healing time for two weeks, then implants put in). Anyway, I wore the surgical bra for two days until my first shower, after which my PS said I could wear a sports bra. I bought some fruit of the loom front button hook sports bras online that work fine, especially with the drains in, but they are thick and bulky and not that comfortable to wear 24/7. PS says at the two week mark I can wear whatever I want during the day and I don't have to wear one at night (drains are out now). I think I may though, my boobs just feel too tight and weird to go without anything. Ordered a Coobie, Jockey and Bali seamless pull “up" bra. Still don’t know which one to wear during the day. Extra padding seems excessive because I’m already a bit bigger than I was and I hate underwire. It's the truth though, for some reason I've been obsessing over the right bra!!

Dx 10/9/2018, DCIS/IDC, Left, 1cm, Stage IB, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 10/18/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 10/24/2018 Lymph node removal: Left, Right; Mastectomy: Left, Right Surgery 11/7/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 11, 2019 09:40AM notthrilled wrote:

Sad to say but a year later I still can't stand to go braless even at night. I wear a camisole with a shelf/petal bra. It just feels too weird without one. At least if I am wearing one my brain can blame it on an uncomfortable bra. I wish they had told me that it might feel like I was wearing an uncomfortable bra (or someone was grabbing me) 24/7 for the rest of my life.


Dx 5/2017, LCIS/DCIS/IDC, Both breasts, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 7/14/2017 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 8/23/2017 Femara (letrozole) Surgery 9/28/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/11/2017 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole)
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Jan 11, 2019 11:52AM - edited Jan 11, 2019 03:56PM by Bcbc

Notthrilled, I'm with you. The only thing I was looking forward to post mastectomy was not having to wear a bra. Now it's 24/7. I sometimes described the pain as like having a mammogram. all. the. time.

I am now much more comfortable with meds for the neuropathy. Have you been diagnosed with post mastectomy pain syndrome? There is a good podcast about it on the site.



Dx 3/30/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+ Surgery 4/18/2018 Lumpectomy; Lymph node removal Hormonal Therapy 4/25/2018 Femara (letrozole) Surgery 6/1/2018 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/28/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 11, 2019 02:38PM lala1 wrote:

I agree with y'all. I told someone that here I am 6 years out and it pretty much feels like some nerdy,fumbling 16 year old boy is groping my boob 24/7. And it's worse without a bra/compression of some sort. I can live with it but I never really can forget about it.

Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/13/2012 Mastectomy: Left Hormonal Therapy 2/1/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/26/2013 Reconstruction (left): Silicone implant Surgery 6/25/2014 Reconstruction (left): Nipple reconstruction Surgery 1/20/2015 Prophylactic ovary removal

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