Topic: Still Uncomfortable with Implants

Forum: Breast Reconstruction — Talk with others facing decisions about whether or not to have breast reconstruction, and if so, what type and when.

Posted on: Mar 27, 2011 06:36PM

Posted on: Mar 27, 2011 06:36PM

Rburke1 wrote:

I had a double mastectomy in 09 followed with immediate reconstruction. I have never been comfortable with my implants, I have to always wear a bra. They are heavy, Don't get me wrong I love the finished product and am willing to deal with the light pain but does anybody else deal with this? I recently lost 20 lbs and they seem to be bothering me even more. Thanks Laughing
Dx 1/12/2009, IDC, 2cm, ER-/PR-, HER2-
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Nov 8, 2012 08:55PM Tina337 wrote:

11BC - I had truncal LE and inklings of arm involvement when I was deconstructed. I had MLD done on chest and arm a couple of times in month before surgery. Post surgery I scheduled MLD sessions Mon-Fri for two weeks and it helped keep swelling down. I did have a flare from surgery in chest but it eventually stabilized. I can't compare measurements because old ones were with implants, so all I can do is compare how I am now to immediate post-surgery measurements. I want to say more, but I am pooped tonight and need to sleep. Dr. Massey did a bunch of preventive measures pre-op, during surgery, and post-op. If you do a search on BCO, you will find I have rambled on about this a lot! Feel free to PM me if you want.

"Life isn't about finding yourself, life is about creating yourself." ~ George Bernard Shaw Dx 11/13/2007, DCIS, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Nov 9, 2012 07:13AM 11BC wrote:

Tina337: Thanks. I just emailed Dr. Marga Massey to see if she takes my insurance. It looks to me that since I have lymphedema, I'd be better to plan ahead and do preventive measures before the surgery.

I'm not able to take the time to do the prep appts and surgery now, but may be able to do so this summer.

Thanks for the suggestion to read your other posts. Hope this finds you well.



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Nov 19, 2012 11:05AM - edited Nov 19, 2012 01:52PM by jessicav

I had my implants removed and am still in pain. Although, it does feel great to have those aliens out.

I learned that after having the implants removed that much of the pain was as a result of nerves being cut or damaged during the original mastectomy/recon surgery which happens often. Then, they put the implants over all that and it just seems that the body cannot properly heal with those implants over all that damage. It's common sense. I do feel better but still have tremendous pain. I think from cut nerves and who knows what else because no one tells you anything. I hope this helps. The damage can be done during the mastectomy and then they do the reconstruction on top of it which just does not make sense to me since everything is all cut up in there. The chest is shredded and in shock and needs to heal. Some women seem to do better than others but who knows why...and why don't they tell us in advance this could happen so we can make informed decisions about our own bodies.

Tina, Eileen, Kate...thinking of you. Been off the boards for awhile. (:

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Nov 19, 2012 12:12PM - edited Nov 19, 2012 12:13PM by sandrav

I am so sorry to hear of your pain.. gosh

I had a double massectomy this last Jan. and had those awful expanders in, until this last Sept when  I had the implants put in. I have a surgery sheduled in Dec. to get these damn awful huge over 600cc things out of my chest. I do hurt very much and picking up anything causes me to spasm, and I feel them against my inner chest..ick 

My insides where screaming before the masectomy to not do anything, but perhaps I needed to walk this journey for any future regreats. 

I am scared to have this last surgery, everything this PS does is tight. 

christianflockforums.com Diagnosed : December 24 2011~ IDC ~ 6cm, Stage 2. 0/0 nodes~ Bilateral MX January 6,2012 ~ER+/PR+, HER2, : 03/09/2012 Cytoxan, Taxol x12, 1 year hercepton .... Majors concerns with the femara anti-estrogen drug..
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Nov 19, 2012 02:09PM - edited Nov 19, 2012 02:11PM by jessicav

Sandra,

You might tell him not TOO tight. Tell everything feels tight. There is no benefit to wrapping you up so tight. It's hard for me to take a deep breath because everything is soo tight. I just do not believe it has to be this way. Many women do not have this problem. You might tell him that your "quality of life" after the surgery is of utmost importance to you. Yes, we are happy to have cancer removed. But if the technology and skill exists to have us lead comfortable lives afterwards, especially after all we have been through, than why is not?

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Nov 19, 2012 04:21PM erica wrote:

jessicav, I'm sorry you're still in pain after your implant removal. Have you been referred to a good physical therapist, one who specializes in breast cancer patients? If not, I highly recommend that you try to find a qualified PT, especially since you're experiencing a lot of tightness. My PT used very gentle myofascial release techniques for tightness after my mastectomy and it really made a big difference. I realize you've just been through quite a trauma, deconstructing after having pain for so long, but hopefully physical therapy could help loosen the tightness and perhaps even calm your painful nerves.

Barbara

BreastFree.org (breastfree.org); BreastFree Blog (breastfree.blogspot.com); Twitter @BreastFree
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Nov 20, 2012 07:16AM mlp730 wrote:

I haven't been on these boards in quite some time. The pain that I feel for all of you makes me realize that I'm not crazy. I have this same tightness that takes your breath away. I've been seeing a pain specialist as well as many PT's including LE specialists but the pain is still is so intense. I'm at the point of just not knowing where to turn but there has got to be something that gives us some relief. I'd just like to wake up one morning and feel a little better than the day before.

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Nov 20, 2012 07:27AM Maddie57 wrote:

mlp30- If I am not mistaken you have had your implants taken out? We have what is called a "Pain clinic" in England. One of the things they do is inject painful areas with a cocktail. We do a lot of work on the back - facet joints etc, but we did have a patient who had terrible pain behind her ear after the removal of a cancer. Nothing seemed to help, but one bright Dr suggested injecting the actual scar.This has been very successful. If this pain is from cut nerves it may help - it's worth a shot!

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Nov 20, 2012 10:46AM PinkHeart wrote:

Maddie~

Are they injecting Botox?

I was fortunate to get a great deal of relief from implant removal.  My microsurgeon worked for 2-3 hours repairing damage to chest wall, and removing scar tissue.

I still have pain in upper pec that connects to shoulder/axilla.  Working on it with PT.  It's really painful today because I have been cutting evergreens and making wreaths to decorate for holidays.  Was over reaching without stretching it first. 

7-6-2011=BMX+ALND+ImmRecon w/direct implants,IDC=Multi-focal(2)+DCIS=2, 28 rads+5 boost,post mx pain,chest wall LE,severe axilla cording excised at revision surg. 4/27/12=failed . 6-1-12: surgery-remove implant from split incision/implant extrusion Dx 6/3/2011, IDC, 2cm, Stage II, Grade 1, 2/19 nodes, ER+/PR+, HER2-
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Nov 21, 2012 06:58AM Maddie57 wrote:

Hi PinkHeart - no it is not Botox they inject. One ingredient is a steroid, and another is local anaesthetic, but not sure what else is in it. Hope your PT works for the pain you are experiencing.

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