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Topic: Nipple reconstruction

Forum: Breast Reconstruction — Is it right for you? Discuss timing and various procedures and techniques.

Posted on: Mar 14, 2012 07:57PM

Cyn0619 wrote:

Hi
I'm new to this forum and see there are a ton of topics on this forum. I'm not sure how to search if you r looking for something specific. I'm having my TE's switched to silicone implants next month. I had nipple sparring mastectomy on non cancer side and nipple on cancer side was too close to tumor so it was removed. I'm thinking of doing nipple reconstruction after I'm all healed from exchange. My PS says he uses incision site and tattooing. Has anyone had this done? I'm wondering how well he can match the other side. Thanks for all your input ladies ; )

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Jul 15, 2012 12:02PM New-girl wrote:

I am scheduled for nipples on July 26 and like all of yall, I am constantly rethinking what I want to do.  I am obsessed with the 3D tats by Vinnie.  I turn 50 this year and think it would add some fun to my life to get them done on my birthday.  Something SOOOOOO out of character for me but crazy enough to make this year alittle more than a horrible memory.  I see my PS on Tuesday to decided whether to add nips or not.  Regardless I what I decide, I still have to have fat grafting to even out my breasts.  I have a question for all of yall too.  My surgery was SS but left me with these two huge discs of skin from my stomach that are definitely not the same color.  Combined with the scar that extends up to my arm pits, I have frankieboobs.  When they take the skin to do the nips, do they reduce that huge disc?  I have looked at Vinnie's pics and some of the ones have a small nipple surrounded by the large different color skin.  Just trying to get my expectations realistic.

Dx 1/19/2012, DCIS, <1cm, Stage I, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, ILC, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Surgery 2/13/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 7/26/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 12/14/2012 Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction Dx 1/19/2016, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-
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Jul 15, 2012 12:20PM lago wrote:

grt42btexan I have the scars all the way under my arms but don't have the football frankenboobies. First of all the scars do fade over time. Some PS will even laser fade them for you. My are getting lighter. My nips were done with local skin which meant 2 more scars (one for each nip). They faded much faster than the other scars. Almost gone now.

BTW I got my nips last October but the final tatts in February this year… one my birthday. Also got another liver scan that day too. Did the liver scan the year before also on my birthday. 

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
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Jul 18, 2012 09:45PM megs986 wrote:

Has anyone done the "in office" nipple procedure, think could be called flap? Skin is not taken from elsewhere. PS said he'd make a w-like incision and basically create a nipple. Then tattoos would be done for coloring and areola. Wondering if this is a good happy medium between another surgery or just tattoos?! Also, I'm wondering how long the nipple needs to heal before the tattoo can happen.

Chemotherapy 11/23/2010 AC + T (Taxol) Dx 9/14/2011, IDC, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2- Surgery 9/27/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 3/29/2012 Prophylactic mastectomy: Left, Right Hormonal Therapy 5/10/2012 Surgery 7/12/2012 Reconstruction (left); Reconstruction (right)
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Jul 18, 2012 10:24PM lago wrote:

Megs this is what I had done but not in-office. I also had a revision to lefty and fat transfer so no way could it be done in the office. My nips were done last October and tats early February.
DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
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Jul 19, 2012 09:33PM megs986 wrote:

Thanks lago, are you happy with the results?

Chemotherapy 11/23/2010 AC + T (Taxol) Dx 9/14/2011, IDC, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2- Surgery 9/27/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 3/29/2012 Prophylactic mastectomy: Left, Right Hormonal Therapy 5/10/2012 Surgery 7/12/2012 Reconstruction (left); Reconstruction (right)
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Jul 20, 2012 08:06AM lago wrote:

Yes I am. They have flattened out a lot but still stick out just a bit and look great.

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
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Jul 20, 2012 10:46AM lisagwa wrote:

Lago- if you don't mind me asking and I hope I didn't ask this already, do you have any feeling in your nipples?

Dx 2/2012, DCIS, 1cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 3/23/2012 Mastectomy: Left; Prophylactic mastectomy: Right Surgery 6/19/2012 Reconstruction (left); Reconstruction (right)
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Jul 20, 2012 10:58AM XRAYestInMA wrote:

I had bilateral nipple reconstruction as well as revision on my abdominal scar 3 days ago. I was very much on the fence about having the nips made, but after seeing them, I am so glad that I went through with it. My DIEP breasts did not need any FG or shaping as they are as close to perfect as can be - they look super in clothing and look very real in a full monty. The nips are larger and fuller than what I would like, but I cannot judge the end result from how they appear at 3 days post-op. My PS used existing tissue on each DIEP breast and some origami cut and twist. I feel no pain in that area as there are no nerves. The procedure was done in the OR under general anesthesia since I had to have the scar revision as well. 

 Once the nips are healed, I am seriously considering a road trip to Maryland to have the tattooing done by Vinnie Myers. That way I'll get the best of both worlds - a slight projection of the nip and 3-D shading of the areolas.  

5 years of Tamoxifen (done!), BSO (12/6/10),Left PMX & DIEP done on 6/6/11 in Boston,MA ~right side delayed by 6 years, left side immediate. Dx 3/9/2005, IDC, 2cm, Stage IIB, Grade 3, 1/10 nodes, ER+/PR+, HER2+
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Jul 20, 2012 11:37AM lago wrote:

nipples have no feeling. The central area of my "breasts" don't either. I have implants

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
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Jul 20, 2012 05:41PM New-girl wrote:

I have asked about nerve transplants to the nipple but alas nothing yet to offer us.  I am with you as I so want to see Vinnie for the finish job. 

Dx 1/19/2012, DCIS, <1cm, Stage I, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, ILC, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Surgery 2/13/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 7/26/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 12/14/2012 Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction Dx 1/19/2016, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-
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Jul 20, 2012 08:29PM jwilco wrote:

I'm happy to hear so many have good results with no regrets.  My nipple surgery is Aug. 20.  I'm also having revision and fat grafting so it will be under general, but at least it won't be as long as my prior surgeries and I get to go home that day!  I'm excited to get a nipple, I'm a UMX, but sort of wondering how I will get used to it.  I've always been self conscious of that "headlight" look.  So it will be different with one side always on.

Dx 8/2011, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Jul 20, 2012 08:33PM pupmom wrote:

I have the one headlight look now, as my right breast lost its nipple and a bit more. I'm having a day surgery on Augst 10th to rearrange things and build a nipple. I do think I will feel less deformed. At least I hope so!

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Jul 20, 2012 09:48PM lago wrote:

There are plenty of different nipple shields out there. Some are reusable/washable.

I have the Wacoal "No Peek Molded Foam Cups" that I used in the winter. Now that they have shrunk I find that only in thin shirts with a soft cup bra is it an issue.

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
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Jul 21, 2012 07:18PM Carrol2 wrote:

I don't have my nipples yet but I work at Soma Intimates and we have nipples shields and they work really well. They ahve two kinds a soft one almost like a bandaid and a silicone one. Both are reusable for about 50 times.

Dx 6/23/2010, IDC, 1cm, Stage IB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 8/8/2010 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Nipple reconstruction, Tissue expander placement; Reconstruction (right): Nipple reconstruction, Tissue expander placement Chemotherapy 10/4/2010 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 2/2/2011
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Jul 21, 2012 07:49PM CMartin wrote:

There are so many posts here for forgive me if this has been discussed.  Initially I was talking with my PS about exchange surgery and a second surgery for nips.  Now he is doing them in the same, maybe because he knows I'm anxious?  Also, I thought that most nip recons came from the breast tissue.  He is taking skin from my inner thighs, no lipo or fat, just skin. 

Also, I'm reading here about making them as long as possible.  However, I never had large nipples anyway so the concept of them flattening some is appealing to me, especially since I almost went with tats.

Any help on these thoughts is most appreciated. Smile

Cindy Martin Dx 4/2012, DCIS, 2cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 4/12/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Surgery 5/20/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/23/2012 Reconstruction (left); Reconstruction (right)
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Jul 21, 2012 08:48PM Hils wrote:

I visited my BS a month ago and discussed having a nipple constructed for me. I am a UMX. In NZ they build the nipple using pig fat and a mold like a cigarette filter. Sorry that probably sounds absolutely disgusting..............have to say as this was the only option for me as I am using the public health system I have decided it is not for me, not because of the material being used, but the fact that the PS stated that often these nipples flatten out. My UMX scar is rapidly dissappearing, I have been using vitamin E oil and I think this has really helped. Having read this thread I think that this is the right decision for me. But it is a very personal decision. I am still on the fence re deciding whether to have a tatoo (3D or otherwise). But maybe with time the decision will become easier - lets hope.

Thanks for everyones honest and open input, very helpful.

Hils SNB and Partial MX 16th Dec 2011; UMX 6th Mar 2012 found <1cm IDC as well as the DCIS Dx 11/26/2011, DCIS, 6cm+, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 2/16/2012, IDC, <1cm, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2-
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Jul 21, 2012 09:57PM HGL4969 wrote:

I'm still debating the nipples and appreciate all the insights shared.  I've never heard the term a "football frankenboobies" but it made me realize that is what I have - I'm single and as if I don't feel bad enough about my situation --- I never thought I'd feel worse after reading the posts here.  Any insights on who to handle then nipples in this type of situation? 

Dx 10/1996, IDC, <1cm, Stage I, Grade 1, 0/17 nodes, ER-/PR-, HER2- Surgery 11/16/1996 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 12/13/1996 CMF Radiation Therapy 6/13/1997 Dx 10/2009 Surgery 2/13/2010 Prophylactic ovary removal Dx 5/27/2011, DCIS, Stage 0, 0/1 nodes, ER-/PR-, HER2- Surgery 6/13/2011 Lumpectomy: Left Surgery 11/7/2011 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Surgery 5/5/2012 Reconstruction (left); Reconstruction (right) Surgery 9/20/2012 Reconstruction (left) Surgery 4/1/2013 Reconstruction (left)
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Jul 21, 2012 10:12PM CMartin wrote:

Hgl..don't be discouraged regarding the future. I believe our brutal honesty is just sharing but their are amazing stories of strength and encouragement here. My husband hasn't been deterred at all and is super supportive. You'll find that!

Cindy Martin Dx 4/2012, DCIS, 2cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 4/12/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Surgery 5/20/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/23/2012 Reconstruction (left); Reconstruction (right)
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Jul 21, 2012 11:14PM lago wrote:

CMartin some PSs do it that way. I hear the advantage is they don't flatten out as much.

HGL4969 men like boobs. They like footballs too. Seriously when you are ready to get that close to a man you will find it easier than you thought to discuss and fill him in. It's not like you're going to let a stranger feel you up. By that point you should be friends and talked quite a bit.

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
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Jul 22, 2012 12:18AM MondaysChild wrote:

"...men like boobs. They like footballs too".  Lago, you always make me smile. :)

Dx 10/15/2010, IDC, Left, 2cm, Stage IIA, Grade 2, 1/11 nodes, ER+/PR+, HER2- Surgery 11/22/2010 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Surgery 12/8/2010 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 1/26/2011 AC Chemotherapy 4/20/2011 Taxol (paclitaxel) Hormonal Therapy 8/31/2011 Femara (letrozole) Dx 2/4/2016, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2- Hormonal Therapy 2/10/2016 Faslodex (fulvestrant)
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Jul 22, 2012 03:39AM SuzyBlue wrote:

Hils, I had nipple reconstruction 3 weeks ago in the public health system and it wasn't done the way you described. The PS used the skin that had been grafted from my stomach during my Diep reconstruction and sort of origamied it as someone else put it. Now it has started to shrink and soften I have to say it does look pretty real and I am quite impressed. I will still probably have the tattooing done to make the colours match the other side better.

HGL4969 I must admit there are days when I see myself in the mirror prior to a shower and can't get my head around how I look now. I would have my middle aged mum of 4 body back in a heartbeat if I could, but somehow I have to come to terms with this new version and feel pride in having survived everything it's been through!



Dx 12/21/2011, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes
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Jul 22, 2012 09:43AM CMartin wrote:

Amen suzyblue.

Cindy Martin Dx 4/2012, DCIS, 2cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 4/12/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Surgery 5/20/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/23/2012 Reconstruction (left); Reconstruction (right)
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Jul 23, 2012 02:43AM Hils wrote:

Hi Suzy thanks for your message - I think I should have clariffied that I had a UMX with TE recon hence I was not offered the option of skin grafting. I tend to be a last minute decision maker, I only decided to have TE recon just as I entered the operating room prior to that I was having no recon. Its just me - I believe in don't cut if you do not need to. Hence I think I have gone for a minimalistic recon. As many have said before there is no right or wrong. But I am definately thinking about a nipple tatoo.

Unfortunately like many I have good and bad days and I still mourn the loss of by old but very much loved boob and have not gained such a love for my new boob as yet. Hopefully time will allow me to develop this love

Hils SNB and Partial MX 16th Dec 2011; UMX 6th Mar 2012 found <1cm IDC as well as the DCIS Dx 11/26/2011, DCIS, 6cm+, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 2/16/2012, IDC, <1cm, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2-
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Jul 24, 2012 05:09PM SuzyBlue wrote:

I know what you mean Hils, 'others' say how great my boobs look (under clothes) and I guess they are in a better position than they were (I had a lift and reduction on the non-cancer side) but to me they look weird and quite different from each other! They don't feel like mine which is a strange way to feel about your own body parts!

Dx 12/21/2011, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes
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Jul 24, 2012 06:58PM CMartin wrote:

1800oncologist - Not so much regarding the nipple.  Any other helps?

Cindy Martin Dx 4/2012, DCIS, 2cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 4/12/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Surgery 5/20/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/23/2012 Reconstruction (left); Reconstruction (right)
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Jul 26, 2012 09:25PM lor3 wrote:

I was recommended to this site throughout my whole ordeal, but never visited.Sorry to say because it is so helpful!  Last week went back to the PS to discuss reconstruction (I had BMX and DIEP in Dec.) and discovered that nipple reconstruction involved going under general again! After a 10 hour surgery I am freaked out to go under again. The doctors play down the surgery as being nothing. Anyway how does the doctor get the nipple size you want? I don't want to jut out and it seems they all come out too big. My doctor will be doing the tattoing the week after surgery which is scheduled for 8/6.

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Jul 26, 2012 09:31PM Golden01 wrote:

My PS makes them a little bigger as they shrink. Unfortuantely, my right one has shrunk to next to nothing. I'm not having the tattoos until fall so am witholding my judgement until then. My surgery was about 1 1/2 hours but he did some pocket work too.

Mucinous Carcinoma, Hypercellular Variant; Oncotype DX 27, Dx 7/8/2011, <1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2- Hormonal Therapy 7/19/2014 Arimidex (anastrozole)
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Jul 26, 2012 10:15PM lago wrote:

My PS made them really big but the shrunk a lot. They are not too big, not too small, they are just right. My PS waits 3 months before he did my tatts. He drew circles a few times till I was happy with the size.

My surgery was 3 hours but I also had a revision to lefty and fat transfer. This was in a surgical center instead of the hospital. The anesthesiologist was a doll. I had no nausea as I did for my other surgeries.

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
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Jul 26, 2012 10:17PM Msbelle wrote:

I'm scheduled for my nipples 8/10. PS will do it in office under a local. Said it will only take an hour. I will get my tattoos 6 weeks after that. Anyone else do it like this??

Dx 1/13/2012, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR+, HER2+ Surgery 2/9/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 2/23/2012 Herceptin (trastuzumab) Chemotherapy 2/23/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 6/28/2012 Reconstruction (left); Reconstruction (right) Hormonal Therapy 7/18/2012 Arimidex (anastrozole) Surgery 8/10/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 12/18/2012 Prophylactic ovary removal
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Jul 26, 2012 10:34PM dja625 wrote:

 yes, I had it done this way and it is amazing how natural it looks. I had a bilateral and they took both nipples and reconstructed them. It makes you looks and like you have breasts again. Good luck to you.

dja625    IDC, Her2neu 3+++, Er- Pr-

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