Topic: Pictures of Breast Reconstruction

Forum: Breast Reconstruction — Talk with others facing decisions about whether or not to have breast reconstruction, and if so, what type and when.

Posted on: May 19, 2015 02:03PM - edited Mar 29, 2022 04:28PM by moderators

Posted on: May 19, 2015 02:03PM - edited Mar 29, 2022 04:28PM by moderators

moderators wrote:

We thought it might be helpful for members considering different types of reconstruction to see our page from the main Breastcancer.org site: Pictures of Breast Reconstruction

We hope this helps!

--The Mods

To send a PM to the Mods: community.breastcancer.org/my/...
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Jan 12, 2020 08:59AM beesie.is.out-of-office wrote:

cannotsay,

Can you open this Powerpoint presentation? https://www.google.com/url?sa=t&rct=j&q=&esrc=s&so...

This site has a lot of pictures of different types of reconstruction: https://www.breastreconstructiondenver.com/before-...

This one only has pictures of GAP type procedures: https://centerforbreastreconstruction.com/before-a...



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Mar 5, 2020 01:58PM kaaadams wrote:

I had a skin sparing DIEP flap right mastectomy. It was way more painful due to the tummy tuck than I expected, but that part has been a good result. Unfortunately, I had a bleed in my foob same day as surgery and had to go back into surgery. Sixmonths later, I had to go back to decrease the foob size and volume with liposuction and excision. Now, it's a much larger scar extending all the way around and under my arm. Then some stitches busted day #1 post and I had to go in and get restitched. The surgeon apologized frequently that time. I'm discouraged. Losing my nipple and aureola was bad enough, but now it's required 4 surgeries, instead of one. I want to get nipple reconstruction, but I don't really trust my surgeon, plus he says they all go flat over time. How long do they stay put ladies, from your experience or what you'v been told? Also, I'm 59 and now the surgeon says I could benefit from a lift on my left breast before nipple placement, because the foob won't droop with age like a normal breast. I've been married 33 years and my husband and I are good, and I'm doing things for my own satisfaction. Please advise, I appreciate it. PS - I'm thinking maybe a full tattoo may be best. Not a 3D nipple, but something beautiful to cover the scars and commemorate my conquering breast cancer.

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Mar 6, 2020 11:31AM lastar wrote:

kaadams, my nipples were done in NOLA where they do an origami fold to create the nipple. I had "baby prominence" meaning that they don't stick out much (I didn't want eternal headlights in case I went braless). It's been 8 years and they are not flat. I never got tattoos because they look fine without.

Dx 3/5/2012, DCIS, 6cm+, Stage 0, Grade 3, 0/3 nodes, ER+/PR- Surgery 4/6/2012 Lumpectomy; Lumpectomy (Left) Surgery 5/4/2012 Lumpectomy; Lumpectomy (Left) Surgery 6/19/2012 Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): translation missing: en.treatments.surgery.surgery_types.short_options.left_reconstruction_flap-reconstruction_sgap-flap-hip-flap; Reconstruction (Right): translation missing: en.treatments.surgery.surgery_types.short_options.right_reconstruction_flap-reconstruction_sgap-flap-hip-flap Surgery 10/5/2012 Reconstruction (Left): translation missing: en.treatments.surgery.surgery_types.short_options.left_reconstruction_flap-reconstruction_sgap-flap-hip-flap; Reconstruction (Right): translation missing: en.treatments.surgery.surgery_types.short_options.right_reconstruction_flap-reconstruction_sgap-flap-hip-flap Surgery 1/26/2015 Reconstruction (Left): DIEP flap
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Jun 29, 2020 04:59PM Lala55 wrote:

Hi


I am very keen to have direct to implant reconstruction instead of expanders. I can't find a PS in San Diego who does this.

Does anyone have a recommendation?

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Aug 3, 2021 08:24AM ChrisJack1 wrote:

Very small breasted and was told, after I pushed PS that my breast was going to look pretty darn fake out of clothes . Plus, I can't just be an A as I was previously even smaller than that and I'd have to go w a full B or small C because the smaller implant had a foot print too small. He said it would also sit real high. I'm 5'9" and 120 and very boney up top. No flesh for flap sadly. So it's silicone or nothing. I'm so lost. I'm waiting for surgery to be scheduled now, a nipple and skin sparing masectomy. I always wanted boobs but not like this. I was also told even sub pectoral placement will result in a lot of rippling. Ugg. Am depressed and confused.







Biopsy 6/2021: Lft breast - Invasive carcinoma w/ ductal & lobular features. Foci suspicious for lympthovascular invasion, grade 2. Estrogen R pos. at 99%. HER2 neg. Unilateral MX w/ TE sub-pec scheduled for 9/16/21 Dx 6/17/2021, ILC/IDC, Left, Grade 2, ER+/PR-, HER2-, Surgery 9/16/2021 Lymph node removal: Left, Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery
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Aug 3, 2021 09:46AM waves2stars wrote:

That sucks. I’m not sure any of the surgery ever looks as good as nonBS augmentation. Can you get a second opinion? Maybe you can get a revision later?

DX @ 47. IDC 2.1 cm, DCIS 2.8 cm, Luminal B Dx 7/19/2021, IDC, Left, 2cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-, FISHISHCISH Dx 9/2021, DCIS, Left, 2cm, Stage 0, Grade 2, ER+, HER2- Surgery 9/1/2021 Lymph node removal; Mastectomy; Mastectomy (Left); Reconstruction (Left): DIEP flap Hormonal Therapy 9/20/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 4, 2021 03:32PM crushedselfesteem wrote:

November will be 1 year since my "lumpectomy". I went into surgery with a G cup. No I didn't want to come out a G but the surgeon and I agreed on reconstruction/reduction of both breast to be DD's. I can't even fill up a B. I have always had large breast and now I don't feel like "me". It's been hard enough to go through breast cancer and the treatments that go with it, but now I have to deal with low self esteem and a surgeon that I no longer trust. From the first time I saw him, I told him that I didn't want implants. I actually told him that I wanted both breast removed and to reconstruct with my own tissue Yes, diep flap. He said "let's remove the cancer and reconstruct to DD's. That way if you're not satisfied, I can always fix it but there's nothing I can do if we start with this flap surgery.". He didn't even tell my husband that I was much smaller than we discussed. And never did say why during my following visits as to why. Every time I've been back, he talks about implants. This last visit was a nightmare! He started with implants again! He said something about a D size implant. He dropped it from the DD. And again, I refused. He started ranting about it being an 8-10 hour surgery. Then, he pointed to my husband and said "is he the reason you want bigger breast?". I was mortified! I told him this was all about me and no one else. He walked over to my husband, who was in total disbelief and speechless, and asks him if he ever tells me that I'm pretty and that he should tell me that ever day. He proceeded to talk to him like I was not even in the room. The only reason he gave for not wanting to do the surgery was the time it would take, "She'll be under for 8-10 hours. I'll have to take all of the breast tissue. Insurance is not going to pay for that surgery. ". Well...he's already taken most of my breast tissue. Probably a third of what I do have is scar tissue. He said he couldn't do anything for a year from my last radiation treatment and he would see us in March. I didn't even stop at the receptionist's desk to make an appointment. I was a total mess! I had a four hour ride home from Emory in Atlanta and all I could do was cry. My surgeon is actually the department head. There's not another surgeon there that will touch me. He came highly recommended and yes, he did an excellent job as far as the scars and everything, except the size. I have searched for another experienced, highly qualified surgeon. But when I look within the radius of 200 or so miles, even the names of surgeons come up that have maimed several women in my area. I've actually talked to and even see some of these women. This is my dilemma! How do I find the right surgeon for me? Will insurance pay for this mess to be fixed? So sorry for the long post. I would truly appreciate any help

Dx 9/3/2020, DCIS, Right, Stage 0, 1/5 nodes, ER+/PR+, HER2- Radiation Therapy Breast, Lymph nodes
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Oct 6, 2021 06:39PM lastar wrote:

I'm so sorry for your experience, crushedselfesteem. I don't know if Dr. Marga Massey is still practicing in Charleston, but in 2015 she did my DIEP after a failed 2012 SGAP and she was wonderful, respectful, and talented. www.drmarga.com/

Dx 3/5/2012, DCIS, 6cm+, Stage 0, Grade 3, 0/3 nodes, ER+/PR- Surgery 4/6/2012 Lumpectomy; Lumpectomy (Left) Surgery 5/4/2012 Lumpectomy; Lumpectomy (Left) Surgery 6/19/2012 Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): translation missing: en.treatments.surgery.surgery_types.short_options.left_reconstruction_flap-reconstruction_sgap-flap-hip-flap; Reconstruction (Right): translation missing: en.treatments.surgery.surgery_types.short_options.right_reconstruction_flap-reconstruction_sgap-flap-hip-flap Surgery 10/5/2012 Reconstruction (Left): translation missing: en.treatments.surgery.surgery_types.short_options.left_reconstruction_flap-reconstruction_sgap-flap-hip-flap; Reconstruction (Right): translation missing: en.treatments.surgery.surgery_types.short_options.right_reconstruction_flap-reconstruction_sgap-flap-hip-flap Surgery 1/26/2015 Reconstruction (Left): DIEP flap
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Mar 27, 2022 09:05AM fleurdavril wrote:

So refreshing to hear that! My PS told me "my job is to make you look good in clothing". I left and never came back.

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May 9, 2022 11:03AM serenitystat wrote:

BCO exposed our image data possibly for years. Please read.

——

Breast Cancer Support Organization Leaks Data Despite Multiple Notifications?

Update: After posting this, tweeting this story, and getting retweets on it, it appears that as of late yesterday, the bucket was finally secured. Thanks to SafeyDetectives who kept re-checking the bucket and to everyone who tried to call attention to this to get the data locked down. DataBreaches did not get any acknowledgement or response from BreastCancer.org — at least not yet. DataBreaches has not changed its opinion that an investigation is needed to determine for how long these data were exposed, whether they were accessed and downloaded, and why BreastCancer.org failed to respond to multiple notifications over a period of five months.

SafetyDetectives recently reported that Breastcancer.org has been exposing sensitive information in a misconfigured AWS bucket. According to their report, exposed data included more than 50,000 registered user avatars and more than 300,000 post images with EXIF data.

Some post images featured sensitive content that felt as though it was intended for private viewing. For example, there were results from medical tests and images of nudity (most likely taken for medical purposes) included among the files — contents that a user would not typically post publicly.

The data may have been exposed for years.

Read more on SafetyDetectives.

One point that wasn't clear from SafetyDetectives' report was whether the bucket had been secured. SafetyDetective started reaching out to BreastCancer.org in November of 2021. They describe their multiple efforts but no outcome was reported. DataBreaches reached out to SafetyDetectives and received the following reply:

… unfortunately the bucket is still unsecured, we tried reaching the organization several times to different email addresses (including their privacy email, CEO, and basically all the people on their about page), we even reached out via social media (we tried reaching them publishing a post, because they don't accept private messages), but they haven't reply back. We reached out to the US CERT but they didn't reply and AWS did reply, but the thing is that they cannot actually secure the bucket, but to tell the owner that they need to secure it.
We published our report hoping that they would reach out to us to secure it but they haven't gotten back to us yet.

So more than 5 months after responsible disclosure attempts began, the bucket was still unsecured. DataBreaches reached out to BreastCancer.org through their website contact form, and like SafetyDetectives, got no reply.

DataBreaches left them a second message on their site telling them that we would be reporting in 48 hours and to lock down their data. There was no reply and the bucket was not secured.

At 8:00 am this morning, DataBreaches left a voicemail on their office phone. It reiterated that people had been notifying them for months but they had failed to lock down their Amazon storage bucket and that DataBreaches would be reporting on it this afternoon.

Still nothing, it seems.

The organization's privacy policy page contains this statement:

How We Protect Your Information
We use reasonable and appropriate administrative, technical, and physical safeguards to protect the information that we have about you from loss, theft, and unauthorized use, access, modification, or destruction. We also require third-party service providers acting on our behalf or with whom we share your information to maintain security measures in accordance with industry standards.
Although we have security safeguards in place, we cannot guarantee absolute security in all situations. If you have any questions about our security practices, please contact us as described in the "Contact Us" section. For your own security, please do not send any confidential personal information to us outside of our Services. It is also important that you maintain the security and control of your account credentials, and not share your password with anyone.

Except that they don't respond to contacts.

Pennsylvania regulators need to look into both the lack of security and BreastCancer.org's failure to respond to repeated notifications that they were exposing personal and sensitive information.

If you wish to contact the Pennsylvania Attorney General's Office to file a consumer complaint, you can find information and an online complaint form linked from here.

If anyone has a contact at BreastCancer.org or has influence with them, perhaps you could reach out, contact them, and tell them to lock down all that sensitive information already!

And if you ever used their site and shared personal and/or sensitive data, perhaps you should contact them and demand that they secure your data.

🌻 🇺🇦 BCO leaked our private data. 🤦🏻‍♀️🤷🏻‍♀️ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐶Dx.11/2015.IDC.L.IIIC.10/11nodes.++- ☕️12/2015.L.Mast 🛀2/2016.4AC.12Taxol.fasted 🖼9/2016.Rads.Nodes.ChestWall.15+4boosts 🥐10/2016.Tamox(2.5y) 🌲4/2019.Exemestane 🎭12/2019.Ibrance/Xgeva 🕊

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