Topic: DIEP Flap Reconstruction 2017

Forum: Breast Reconstruction — Talk with others facing decisions about whether or not to have breast reconstruction, and if so, what type and when.

Posted on: Feb 16, 2017 03:32PM - edited Dec 4, 2017 12:54AM by jbdayton

Posted on: Feb 16, 2017 03:32PM - edited Dec 4, 2017 12:54AM by jbdayton

jbdayton wrote:

I am starting a thread for 2017.

I had my initial DIEP surgery March 2014. I am having my final revision surgery Monday February 20, 2017. I had several set backs but am still 100% in favor of the flap surgeries.

I will be glad to host this thread for everyone to share their experiences and ask questions to prepare for upcoming DIEP or other tissue flap surgeries.

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2017 SURGERY SCHEDULE

JANUARY 5.........Maya15..................Stage 2...............New York

JANUARY 12.......WGraf.....................DIEP.......

JANUARY 24.......cwayman650..........DIEP........

FEBRUARY 2......MAPBB...................DIEP...................

FEBRUARY 20.....jbdayton.................Stage 2 #6..........PRMA Dr. Ochoa

FEBRUARY 28......Hammie28.............DIEP...................Georgia

MARCH 2.............cdv4251992............DIEP...................

MARCH 3.............botzey......................DIEP....................

MARCH 8.............Pambc010417.........BMX/DIEP..........St Vincent Carmel, IN, Dr Robert Paul (PS) and Dr Erica Giblin (BS)

MARCH 14...........fipjoemom................DIEP...................

MARCH 30...........IrishLuck..................DIEP...................Dr. Lee; Stanford

APRIL 4................Trishyla....................DIEP..................

APRIL 4................RTChris...................DIEP...................Canada

APRIL 6................Beach4....................DIEP....................Dr. Hofer; Toronto, Ontario.

APRIL 10.............. mtsalhuana.............DIEP...................Mayo Clinic Arizona

APRIL 11..............pnwgram..................DIEP...................UWMC Seattle Dr. Colohan

APRIL 17..............Okiemomof4............unilateral DIEP....St. Anthony's Hospital Oklahoma City Dr. Anureet Bajaj

APRIL 18..............Kali44......................DIEP/reduction...

APRIL 21...............kal52.......................DIEP...........

APRIL 21...............Wordlady.................BMX/DIEP..........John Muir Hospital Walnut Creek, CA

MAY 1..,.................Beckyb2016............DIEP...................Atlanta

MAY 1....................Mhud648.................DIEP....................

MAY 4....................Dawn Lee................DIEP...................NOLA

MAY 4....................bellacrawford ..........DIEP..................Sunnybrook Hospital, Toronto, Dr. Joan Lipa

MAY 4....................jamiens....................DIEP...................University of Michigan, Dr. Momoh

MAY 8....................songbird72..............DIEP...................OKC;Dr. Anureet Bajaj

MAY 9....................deni1661.................DIEP Stacked......

MAY 11..................BlackBear................DIEP...................Wake Forest

MAY 15.................Mama_Green...........BMX/DIEP...........IU University Indianapolis with Dr. Socas and Korff

MAY 17..................suzzyq.....................DIEP...................St. Francis Medical Center, Richmond, VA, Dr. Darrin Hubert

MAY 18.................Tpralph.....................DIEP...................Toronto; Dr. Hofer

MAY 22..................KCMC.....................DIEP....................Hudson Valley, NY Dr. Koch and Dr. Ashikari

MAY 22.................Cheri444..................BMX/DIEP...........Burlington, VT Dr. Meredith Collins

MAY 25..................Ali8..........................DIEP....................NOLA, Dr. Wise

MAY 26..................aggiemegs...............DIEP...................Dr. Kyle Gordley,The Woodlands, TX

MAY 30.................Falconer....................DIEP...................Vassar Brothers Medical Center

JUNE 7.................botzey...................... Stage II Diep.......CMC , Charlotte,NC , Dr Robinson

JUNE 17...............Hopfull2.....................LAT Flap............

JUNE 22...............Rlsteadman...............DIEP...................

JULY 7..................FlaxenGirl.................UNI/DIEP............Louisiana

JULY 11................MichCali.....................DIEP...................Beaumont, Dr. Chaiyasate

JULY 13................hanley50....................DIEP..................Fox Chase Cancer Center, Philadelphia, PA, Dr. Neal Topham

JULY 17................mmcmom...................DIEP...................Penn, Dr. Serletti

JULY 27................jeanwash....................DIEP (left)..........Chicago, Dr. Alghoul

AUGUST 4...........Pambc010417............DIEP, Stage 2....Dr Robert Paul, PS

SEPTEMBER 18..tnd22..........................DIEP...................Medical City Frisco, Dallas, Tx.

OCTOBER 25......Katjadvm.....................DIEP...................Maine

NOVEMBER 20...LMichele.....................Delay of flap.......

DECEMBER 4......LMichele.....................DIEP...................UPenn, Dr. Kanchwala

DECEMBER 18....GagasDaughter..........DIEP Prophylactic...

TBD. ....................mustlovepoodles.........DIEP...................NOLA, Dr.Wise ______________________________________________________________________________

I am stealing this from jstacy's introduction from the 2016 thread.

What to Have at Home:

Walker?

Recliner/Lift chair

Stool for shower

Lots of pillow to support arms and raise knees

Button down pajamas, sized up one size

for drains: post mastectomy camisole for around the house, a lanyard or a necklace of IV tubing to pin the drains to in the shower

Stool Softeners and Prune Juice

Yoga Pants (same size as now)

What to Take to the Hospital

Robe

Book/Tablet

cell phone and charger

ear buds

Biotene Mouth Spray & Ayr Nasal Spray for dry air

Magazines

Toothpaste/Toothbrush

or Colgate Wisps for when you can't get out of bed to brush

Shampoo/conditioner

Body wash

small pillow to use for the car ride home (between your chest and the seatbelt)

comfy clothes for ride home (you can go home in what you came in, just bring a fresh pair of undies)



Jeannine. My bi-lateral DIEP turned into a single DIEP due to bad veins. Next was a Ruben's flap. Wound opened requiring a wound vac. 7 revisions using fat grafting and scar revisions; completed nipples and tattoos. Dx 2/4/2013, IDC, Left, 3cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2- Chemotherapy 3/12/2013 TAC Dx 8/26/2013, DCIS, Left, 1cm, Stage 0, Grade 1, HER2- Surgery 8/26/2013 Lymph node removal; Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Radiation Therapy 10/9/2013 Whole breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 11/21/2013 Arimidex (anastrozole)
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Jan 30, 2019 08:22PM - edited Jan 30, 2019 08:24PM by TWills

https://community.breastcancer.org/forum/44/topics/861735

Bie-slo

Here’s the link to the 2018 thread, it’s a lot more recent and activeif you are looking for a DIEP reconstruction thread:)


Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/13/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 2/2/2017 AC + T (Taxol) Surgery 7/10/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/31/2017 Whole breast: Breast, Chest wall Surgery 8/27/2017 Hormonal Therapy 11/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/2/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Mar 31, 2019 12:51PM Houston2016 wrote:

I've had unilateral mastectomy in 10/2016, had TE put in at first for implants but after rads, PS said DIEP is the only option. Two yrs passed still with TE on but I'm undecided fear of recurrence. Although there's no concrete study showing that but how do I know if I don't have Mets before deciding to do DIEP. Second I have not met any PS I can talk to or who can explain to me the good and bad impartially. My current PS continually insist me on doing DIEP to get rid of my rads skin. But he doesn't discuss with me about what I want how I want the breast to be. He just said simply the new breast will be perky and the good breast will be reduced to match. The thing I do want a lift but not much reduction. My belly has some fat but may be just enough to do 36B I do not want my good breast go down to 36b from 36 C. So finding a good Dr is a n issue. I also do not want any fat taken from any other parts of my body neither. Any help anyones?

Dx 4/5/2016, IDC, Left, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/14/2016 AC + T (Taxol) Surgery 10/5/2016 Mastectomy: Left Radiation Therapy 12/13/2016 Whole breast: Lymph nodes, Chest wall
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Mar 31, 2019 08:19PM jbdayton wrote:

One option is that they can put a small implant under your flap for volume.

Jeannine. My bi-lateral DIEP turned into a single DIEP due to bad veins. Next was a Ruben's flap. Wound opened requiring a wound vac. 7 revisions using fat grafting and scar revisions; completed nipples and tattoos. Dx 2/4/2013, IDC, Left, 3cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2- Chemotherapy 3/12/2013 TAC Dx 8/26/2013, DCIS, Left, 1cm, Stage 0, Grade 1, HER2- Surgery 8/26/2013 Lymph node removal; Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Radiation Therapy 10/9/2013 Whole breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 11/21/2013 Arimidex (anastrozole)
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Apr 1, 2019 01:30PM trhbfc2017 wrote:

I would definitely wait to see what the DIEP breast looks like before deciding to add or decrease anything else. I had a unilateral DIEP. I didn't have to wait though as I did not have any invasive cancer but had 4 spots of DCIS so my removal and reconstruction happened in one surgery. I had a bit of scarring below the flap but otherwise it turned out nice. My issue now is getting the two breasts to match. I am a 36C, the DIEP breast is really nice and have not had to make any changes to that but my natural breast is a bit shallow in comparison. I have had 1 fat grafting (this past February) so far to the natural breast and my PS is REALLY conservative so I am waiting to see if I will decide to have another fat grafting. To be honest, my left breast was always bigger than my right anyway (the left being the DIEP now). I actually have always been almost a full cup size difference.

You really need a PS that listens, discusses everything and that you feel 100% comfortable with. I do love my PS though I still have some concerns over the latest touch ups. I cannot imagine how I would feel if I didn't have complete confidence in him.

Your DIEP breast might look fuller than you anticipate. I personally wouldn't add an implant to the DIEP because implants usually have issues at some point in your life, but that is just my opinion.

Dx 5/12/2017, LCIS/DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+ Surgery 8/3/2017 Mastectomy: Left; Reconstruction (left): DIEP flap
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Jun 5, 2019 10:12PM Jubird wrote:

hi, I’m checking back on this after all this time—did you ever get the mesh out? Mine is still in and my entire abdomen is so messed up, anyone can feel it. It’s rock hard with ridges and all sorts of nonsense. Every dr says some version of “huh, that’s odd—I don’t know!” Sigh. I’ve been doing PT and massage and my rectus abs will engage, but cannot contract enough to bend me. I’m considering seeing an abdominal specialist at U of Mich. it’s been 2.5 years. I’ve also had a CT—nothing of note other than some features on the abdominal wall. Have you had better luck? Oh, I also look distended and digestion is affected. :

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Jun 14, 2019 02:10PM Suburbs wrote:

Jubilee, not everyone gets mesh and I was a good year out from surgery with constant infections when someone finally mentioned the mesh and biofilm etc. after 2 and a half years of antibiotics, I finally had all the mesh removed and replaced with a biologic mesh. It’s a long miserable tale. I can only say this. Within a week of having that mesh out, I felt so much better. Ask questions and definitely consult with another surgeon and possibly an infectious disease specialist. Hope you feel better soon

Dx 1/9/2017, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+, Targeted Therapy 1/31/2017 Herceptin (trastuzumab) Chemotherapy 2/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 6/20/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/21/2017 Arimidex (anastrozole) Targeted Therapy 2/1/2018 Nerlynx
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Jul 27, 2019 09:08AM grateful99 wrote:

I would not recommend implants. Read about the recall.

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Jul 28, 2019 04:05PM ramona131313 wrote:

Houston2016-I don't know if you live in Texas, but if you do, there is a wonderful plastic surgeon who is in private PS practice there. His name is Dr. Michael Saint-Cyr and he is in Temple, Texas. You may have already had your surgery, but if you have not, please consider consulting with him. He actually did my DIEP reconstruction at Mayo Clinic in 2012. I had a unilateral mastectomy right away after DX, and I had to wait a week for Dr. Saint-Cyr's schedule to clear. It was well worth the wait. Two and done-everyone who sees the reconstruction (Dr.'s nurses, etc.) all tell me how great it looks and ask who did it. My only personal complaint is that he left Mayo and now that I have a recurrence in the other breast, I am very disappointed he is so far away (I live in Chicago). Anyway, just wanted to throw that out there because he is a gifted micro-surgeon and I know many people have had less than stellar experiences with reconstruction.

Dx 7/2012, IDC, Right, 2cm, Stage IIB, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/25/2019, DCIS/ILC/IDC, Left, Grade 2, ER+/PR+, HER2-,
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Mar 23, 2021 05:34AM Angbassani821 wrote:

Hi Michelle,

How was your experience with this procedure and Dr. Kanchwala? I have a consult in 2 weeks!

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