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Topic: Multiple failed revision/reconstruction procedures

Forum: Breast Reconstruction — Is it right for you? Discuss timing and various procedures and techniques.

Posted on: Oct 9, 2018 06:05PM

CHUCK7 wrote:

  1. I had a bilateral nipple sparing mastectomy with immediate expander placement, then bilateral exchange to implants several months later, where an immediate infection set in. (R) breast with implant was opened and closed several times to drain, but it could not be saved so now there was another operation needed with a long term course of I.V. antibiotics through a pic line and P.O. course which lead to my stomach being destroyed to the level of needing a fecal transplant. Still more infection set in and both (L) and (R) breast implants were removed and replaced with smaller implants with the (R) needing a Latissimus Dorsi procedure that also led to further infection, several open and closings procedures to drain and still another pic line course of I.V. and P.O. antibiotics, with yet still more opening and closing procedures to drain and then my (R) nipple was taken, without my knowledge or permission, during yet another opening and closing procedure to drain. When I asked my surgeon what we could do next to get rid of pain and discomfort in various problematic areas, how can we make me better, he said that of any and every patient he has ever worked with, I am the worst. I am ungrateful, body dysmorphic and depressed. I should seek immediate Pyscological help. Months later I still have terrible stomach issues and need more revisions, but my surgeon, with no notice, has told me he no longer wants to take care of me. It's too hard. I'm devastated, lost and do not know where or who to turn to. Please let me know if anyone has been or is where I am now and how do we get better. Thank yo
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Oct 9, 2018 08:06PM LiveWellToday wrote:

I am so sorry to hear what you are going through. Get a new PS! Why do you need a fecal transplant? I don't have any good info for you but just wanted to offer my support. Have you considered just not doing implants at all? I am thinking about that. MY TEs are really hurting after radiation. My husband would kill me but its my life and my body.

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Oct 9, 2018 09:20PM gaspasser wrote:

I just wanted to say how sorry I am that you have gone through this. I've had my share of reconstruction difficulty with a persistent infection after my one TE was switched to an implant, several PICC lines and debridement surgeries, etc.. We are finishing up a wound vac and I will use a muscle flap to close my chest wall and skin graft of need be. The main thing I think that has been immensely helpful is I'm so fortunate to have an extremely empathetic and understanding PS. I would of been very down had they not been so supportive throughout the process. Perhaps a different PS as others have mentioned may make a world of difference in making the journey a tad better. At the end of the day I won't have the reconstruction I hoped for, but I'm so happy we survived the infection, and although I do feel down at times...it does get easier as time passes. I think I rely heavily on the support of my husband, family, friends and a supportive PS. I'm thinking of you and we are here for you!

Dx LCIS, Left Surgery Reconstruction (left) Surgery Reconstruction (left): Tissue expander placement Surgery Reconstruction (left) Surgery Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Surgery Prophylactic mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Oct 9, 2018 10:28PM Vslush wrote:

I'm so sorry you have been through such a terrible experience. Your PS sounds like a condescending a-hole, and probably has done you a favor by letting you go.

I too had problems with infection, having everything removed and am now waiting on DIEP surgery next month. After all was done and said, I decided to wait several months to let my body completely heal. In that time I consulted with other PS's to get their ideas/recommendations. I decided not to return to my PS and am having one of the consults do it. Sometimes stepping back, taking a breath and starting from scratch helps. You've been through a LOT and I'm sure you just want this over, but see a few surgeons and ask them what your options are. In the meantime maybe wait a while and let your body heal completely to hopefully a avoid further complications.

One last thing. Any surgeon that would say such ugly things to a patient (let alone a cancer patient) should be reported to the AMA and the hospital that allows him to use their OR. With all you've endured, I would even suspect maybe calling his competence into question. The usual protocol once infection is obviously not responding to initial antibiotics, is to remove TE/implant and wait a while. He just kept on, then chose to blame you!

Good luck, and again sorry for what has happened

Vickki


Dx 6/27/2017, IDC, Left, 3cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 7/24/2017 AC + T (Taxol)
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Oct 10, 2018 02:50PM CHUCK7 wrote:

In such a short period of time, since my first post anywhere, just knowing now that you all are out there for me, and my family, knowing you care and understand has been such a relief. Thank you, thank you. Even my rock, my husband of 45 yrs and still dating, smiled. I have two new appointments within the next few weeks to talk to two new reconstruction/revision Surgeons. With just their short introduction they thought I should have never had as many implant replacements after so many rejections, that I should have gone the DIEP/FLAP with no implant. It was madding to have them present that to me in a matter of minutes, when I never heard that from my most trusted and liked PS. I feel stupid that I was so trusting and when I finally did question anything, just to get shut down and put down and me allowing that at that time, geeze what does that make me. I hate that I allowed that. It’s going to be very hard to let that go. But thank you for letting me vent. I know there is always someone in worse shape and I am lucky. You all have been through so much too. No matter what never never ever let them see ya cry. We’ve got this. We will be ok.

xo


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Oct 10, 2018 03:28PM Lisey wrote:

Chuck7, There are women who've gone through similar events and they ended up saying "F it!" and went flat and fabulous and are on their way to recovery with no more surgeries again.  If you'd like to consider speaking with them, I'd suggest joining "Flat and Fabulous' on FB closed group.  They will not only tell you their stories, but can show you photos.  

I personally had TEs but very quickly realized I didnt' want all the surgeries or the pain and get them out of my body. I feel much better and whole now. 

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 11, 2018 12:13AM NotVeryBrave wrote:

It's very sad that at such a vulnerable time in your life - you end up feeling worse because you dared to put your trust in your PS. He sounds like such a jerk. Probably cutting his losses before someone catches on. It's possible that this is really a malpractice situation.

I would definitely shop around and research any and all options. You really want to minimize any further complications and that may mean waiting a bit. I wish you the best!

TCHP x 6 with pCR. One year of Herceptin. DTI pre-pec surgery. Quit Tamoxifen after 3 months. Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/18/2016 Perjeta (pertuzumab) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 5/9/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/9/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 11, 2018 12:23AM - edited Oct 11, 2018 12:23AM by Meow13

My SIL, not the one that passed away, but another BC patient had bmx and I convinced her to try the DIEP surgery. Well they put in expanders underneath the muscle to prepare her for her DIEP. I didn't have any expanders so was suprised at that, well she was in so much pain she had the expanders removed and cancelled the DIEP. I think she was upset with me but My DIEP went beautifully not a single issue. I only had the left side.

Hope the new PS works out.

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Oct 11, 2018 12:29AM Lisey wrote:

Meow, I was like your SIL.  Expanders were like nails of death every time I tried to breathe... out they went within a week. So happy to be done. 

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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4 hours ago kickin-cancersbutt-2014 wrote:

Due to get DIEP flap next Tuesday! Had expander and hated it! I believe the implant is under the pec muscle which makes it next to impossible to have normal range of motion along with 22 nodes they took at MX.  So, I am really hoping the natural reconstruction will give me what I am looking for not to mention a flatter belly!!!

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