Nov 10, 2019 03:27PM buttonsmachine wrote:
Wheatscapes, I am sorry this is happening to you. I had a somewhat similar situation, although in my case the "incomplete mastectomy" left behind active cancer, so that had to be dealt with very aggressively.
I was originally treated by community doctors, and my original surgeon was very experienced and highly recommended. However, a lot of tissue was left behind after my right mastectomy, including cancer cells - but I didn't know that at the time. A few months passed, and things got weird. I went to an NCI center, and upon physical examination they said I'd had "sub-optimal" surgical management previously, and that removing more tissue was necessary to get local control of the cancer. The NCI doctors basically said that way too much tissue was left behind, and while that might have been appropriate in some cases, in my case it was a huge mistake. The NCI center was 100% right. It's a hard pill to swallow that my original surgeon wasn't aggressive enough in surgery - I have really suffered because of that. But at the same time I'm so grateful that the NCI doctors were able to salvage the situation. Some people at the community surgeon's office tried to give me a guilt trip about going elsewhere, but I didn't fall for it. I can say that in my experience, the quality of care at NCI centers is far superior, and I wish I had transferred there sooner.
Have the NCI doctors told you why they want to remove more tissue? Are the NCI doctors concerned about cancer cells being left behind? If so, I would definitely consider their fears. Don't think twice about the egos at stake for the community doctors - your life is all that matters, not their egos. The important thing is that you get good care, because YOU have to live with the consequences.