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Topic: Is the Tissue expander pain I’m experiencing normal?

Forum: Breast Reconstruction —

If you've had or will be having a mastectomy (or in some cases, lumpectomy), you're likely facing decisions about whether or not to have breast reconstruction, and if so, what type and when. Deciding whether or not to have a breast reconstructed is a very personal choice. Take the time you need to learn about how breast reconstruction might affect you, both emotionally and physically, before you decide to have the surgery.

Learn about different surgical options and the medical and personal issues around breast reconstruction.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Mar 27, 2021 09:45PM

Timeisnow wrote:

I had a bilateral mastectomy with tissue expanders four weeks ago. I have had no fills. I have pain in the lower outer side of my right breast where the edge of the te is .In order to move or walk I have to hold the bottom of my ribs on that sideand apply pressure. The only time I am not in pain is when I am sitting or in bed. My ps says this is normal . No medication from opioids to muscle relaxers or Valium touches the pain. It isn’t getting better. Has anyone experienced this?

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Mar 27, 2021 10:23PM MinusTwo wrote:

yes it's normal. As they start the fills, you will likely find some relief. When do you you get your first fill? Things will move around for the entire time. But be careful of filling too fast, then you'll have pain from the skin stretching. Maybe start off with a small amount

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Mar 27, 2021 10:40PM Timeisnow wrote:

Thank you! I had to have a second surgery on an incision that had slightly opened which had delayed my fill. If all is good my first fill should be in a couple weeks. I can deal with the pain as long as I know it’s normal and will eventually subside. Sometimes when you’re in the the thick of it it seems like it will never end.

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Mar 27, 2021 11:13PM OnTarget wrote:

I think it is sort of normal.

When I had my mastectomy and my first TEs, I had a lot of pain. I had cording, which apparently runs down your rib cage under the TRs. I also had tight skin, which pressed I'm TEs into my pecs and tissues. This is what I think causes the pain.

Jump forward 10 months, I had an infection in my right implant and had it removed. I now have a new TE in and no pain! My skin is looser and I'm getting smaller fills.

The pain could be mastectomy related, but for me, I think it was related to my TEs digging in and blocking stuff from flowing correctly.

My doc told me the same thing "everyone hates TEs", ""TEs are so uncomfortable ". Nope, they don't hurt and they aren't uncomfortable now. I don't even notice them.

Diagnosed at 42, Oncotype score 16, ITC in one node- considered node negative. Lost right implant to infection March 2020. Waiting to start reconstruction all over again. Dx 4/8/2019, ILC, Left, 3cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 4/23/2019, ILC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/15/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/14/2019 Zoladex (goserelin) Chemotherapy 8/6/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/6/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant

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