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Jan 15, 2012 04:52PM
When I went for biopsy the 1st Pathology said I had 2 kinds of cancer, in 2 different areas. IDC in 1 and "favor lobulor in the 2nd. The BS was RUSHING me to schedule surgery and gave me option of a lump or MX but said I was good candidate for a lump. They did blood work right in their office, sent me next door for a chest x-ray and had me scheduled for surgery in another 10 days!
Maybe it was the rushing, and so much information being thrown at me, I told her I wanted to get a 2nd opinion and could she recommend a couple people. She gave me the name of the doctor in practice with her and said "I could also give you the name of a brilliant surgeon down at Yale but she's a cold hearted bitch." Then she went on to say, BSs are BSs and this was a pretty straight forward surgery and the time for me to be seeking a 2nd opinion would be when I was deciding on an Oncologist, but not now. I smiled and said I still wanted to get a 2nd opinion and would like the name of the "cold hearted bitch down at Yale". She turned beet red and gave it to me.
Saw the 2nd BS, found her to be very professional but also warm and forthcoming. First thing she wanted to do was have Yale's Pathologists look at the slides. There report came back that both areas were the same, both ILC! We talked and she said she often finds with ILC, the size turns out bigger than what what the tests reveal and she often sees tumors as big 5cm, even though the tests say otherwise.
She too gave me both options, lump or MX but given I had ILC, if it turned out to be large, there would be a lot of breast tissue missing, and with lumpectomies, there is no option for reconstruction. WHAT???? BS1 never mentioned that!
That made my decision, and when it was all over and BS2 came in to see me she said I had made the right decision, due to the 6+cm tumor size.
So it always pays to get a 2nd opinion and follow your gut! Seems like some doctors are very knowledgeable, while others are still on the learning curve and we're their Guenna pigs!
5/4/2010, ILC, 6cm+, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2-
6/28/2010 Reconstruction (left): DIEP flap
6/28/2010 Mastectomy: Left
6/29/2010 Lymph node removal: Sentinel, Left
9/20/2010 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel)
6/15/2011 Femara (letrozole)
7/20/2011 Arimidex (anastrozole)
12/2/2012 Aromasin (exemestane)