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Jan 3, 2008 06:07PM
Barbie--I'm familiar with the BRCA2/pancreatic/breast link, as my dad was an Ashkenazi Jew who died of pancreatic cancer. The docs all thought I'd be BRCA2 for sure, but it came back negative. Go figure.
I had an onc tell me today that even though my BRCA testing came back negative, to keep myself educated of new advances in BRCA mutations. She said there could be a need to retest in the future, due to potential new discoveries in the BRCA gene family.
Stage IV Pleomorphic ILC, initially diagnosed at age 38
6/7/2007, ILC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH)
7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel
12/27/2007 Whole-breast: Breast, Chest wall
3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/24/2015, ILC, Left, 1cm, Stage IA, Grade 2, 0/10 nodes, ER+/PR+
5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap
2/1/2018, ILC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+
2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel)
6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+
Faslodex (fulvestrant), Zoladex (goserelin)