Log in to post a reply
Jan 25, 2008 03:05PM
Voo, I am the only female in my generation on either side of the family. My dad, paternal grandmother and her mother all had bc. Two of dad's cousins had ovarian cancer. I told my gyn about the history long before brca testing was even thought about. She had me going to mammos at the age of 25 because of my dad's dx and a letter from his onc. In the late 80's men with bc were rare to find. When I would go for mammos back then, they always had the same question, only about female relatives. The techs always said the same thing, it didn't matter if men had bc.
Even up until a few years ago the forms were still the same and some techs were still with the same attitude. I was getting tired of educating them. In 1996, my uncle (dad's brother) had us participate in a research study which included brca testing and genetic counseling. Needless to say, each of us tested are brca2+ including the frozen sample from dad. Yes, the counselors definitely "get it". In 2001, I took my first in being proactive and had the bilateral oophorectomy.
In 2006, I started having pains in both breasts and I went to the gyn who referred me to an onc who ordered an MRI. They found lots of micrcocalcifications (as usual) and did another biopsy (this was my 3rd). All turned up negative. I was very lucky and have a high school classmate who is a breast surgeon and had been helping with my surveillance over the years. He suggested getting rid of the time bombs and recon is an option.
I started researching and found this website and began looking into what I was going to do. I got a lot of help and support.
The other place with lots of info on genetic testing, counseling and support as well. FORCE is a wonderful place for people who are brca positive. Their website is www.facingourrisk.org. They have a discussion board as well and an Outreach Program in the major cities. I did end up last May with PBM with immediate recon, one-step alloderm with saline implants. I have had some complications but feel that the decisions were ones that helped save my life even thought they later found DCIS.
Please feel free to email me if you have any questions I can help with. Either email@example.com or firstname.lastname@example.org.
Hope I was of some help.
Love and hugs, Beth "Without Humor, life is a walk, not a joyride." PBM 5/7/2007 www.youravon.com/bethcohen www.freewebs.com/larryandbeth is our family website, please visit me!
1/3/2008, DCIS, Stage 0, 0/6 nodes, ER+