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Dec 13, 2011 12:52AM
Dec 13, 2011 12:57AM
Hello Giant Tumor Sisters!
Mine had strange dimensions, they initially called it two masses but turned out they were connected. Something like 7cm total length, wide at each end with skinny area connecting...I picture the shape looking like a barbell. Mine was both ductal and lobular, and some previously undetected cribiform and DCIS was found in post-surgical pathology.
I had neoadjuvent chemo, dose dense ACx4, Taxolx4. Shrank tumor a lot. I have to say, it was really cool feeling my tumor shrink during chemo and what kept me motivated to keep going through some really rough SEs.
BS pushed me for trying lumpectomy, bad margins so got unilateral mastectomy in the end anyhow. (still part of me wishing I got BMX...still considering it). Still had 3 positive lymph nodes at surgery, but my doctors didn't think that was surprising with ER/PR+ HER2- status.
Got very aggressive rads - chest wall, axilla, supraclavical nodes, another I can't recall name (chemo brain still!).
Just started Tamox this week.
PET I had before rads showed a few hotspots but RO believes they are false positives and was comfortable starting rads before additional diagnostics. Now that I am "healed" from rads to my RO's satisfaction, I am about to begin series of tests to confirm that my PET hotspots are not mets: lung CT, endoscopy, colonoscopy, whatever they call the -oscopy up your nose. Noseoscopy? Up your nose with a rubber hose? Whatever.
Hope to gain more insights from this thread, thanks so much for starting J-Bug, and hoping with all my heart for clean scans so I don't break this thread's No Stage IV status ;) And best wishes for your hip J-Bug.
Lettuce weight and sea.
2/16/2011, 6cm+, Stage IIIA, Grade 2, 3/13 nodes, ER+/PR+, HER2-