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All TopicsForum: High Risk for Breast Cancer → Topic: Premenopausal & ALH

Topic: Premenopausal & ALH

Forum: High Risk for Breast Cancer — Due to family history, genetics, or other factors.

Posted on: May 18, 2017 03:28PM

neujess wrote:

hi there- just curious if there is anyone else out there in a simila situation.

Little about me: I am 36, dense breasts, 25%ashkenazi Jewish heritage, grandmother and great aunts with breast cancer. Genetic testing to be done in June.

I went for a mammo due to suspicious lump (turned out to be multiple cysts) and they found microcalcs in the other breast. Stereotactic biopsy revealed ALH, wire localized excisional biopsy confirmed no malignancy. They want yearly Mri's and mammos on a rotating 6 month schedule. I do not want to take tamifloxin for multiple reasons.

Can't help but feel like a ticking time bomb.

4/5/17 mammo showing microcalcs, 4-10-17 stereotactic biopsy finding ALH, 5-11-17 wire guided excisional biopsy
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Jun 28, 2017 12:39AM VLevic wrote:

I was on the same boat as you, except that I was 46. I had ALH and refused to take Tamoxifen and then went for clinical trial for olive oil. Six months after, I have to take a breast MRI which was recommended particularly if you are categorized as high risk and in that breast MRI they found more, I have mixed IDC and ILC plus the ALH. My advise, you are young, and complications from Tamoxifen is really rare at a younger age, however, make sure you get checked every 6 months for a breast MRI and mammogram alternatively to be on the safe side so whatever is going on is caught early. I just happened to remember to do a breast MRI after 6 months from mammo and the oncologist was very glad that I ask, otherwise, it could have been worst. You have to watch for yourself and no one else. Arm yourself by educating yourself about breast cancer so you will know your options later on.

Dx 7/2016, LCIS/ILC/IDC, Left, 2cm, Stage IIB, 1/16 nodes, ER+/PR+, HER2- Surgery 3/21/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 3/22/2017 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement

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