Log in to post a reply
Aug 9, 2018 04:01PM
Dear Aussie-cat, what kind of pbmx did you have, if you dont mind me asking? By the way, I really think you chose the best option. At least is the one that offers the best risk reduction. At the same time I think it is not for everybody, it is only for those who think that peace of mind is more important or cannot live with the ansiety of 6 months surveillance.
I will have inmediate reconstruction with silicone implants, nipple skin sparing.
I am quite sad because my mother doesnt support me on this. She told me there is no one single case of any kind of cancer in my family and this is true. But I told her genetic bc is only 10% of the total. She is telling me, Angelina Jolie, the only case she knows with pbmx, had genetics and nearly 80 % risk.
The first time I had my ultrasounds and two doctors came to see the screen, I was really nervous. One of them told me, we dont want to scare you but you have something suspicious. It doesnt look extremely bad, it is not invasive, but you have a nodule with irregular contour. You should have a biopsy. I had the worst two weeks of my life. I didnt know anything about bc, anything at all. I just thought I will never have breast issues as I dont have bc in my family. I was quite naive...
I remember going to Anderson with my husband for the results, I couldnt almost breath until the told me, congrats no cancer. But I will never forget that feeling, and since then, it is as almost I had it, and I considered bc women as my friends. Nobody knows how breast deseases are until you have them. I also remembered being really scared, not sleeping, having nightmares...
They didnt tell me my papilloma had atypia until it was removed, so thanks to that I thought bening papilloma that needs to be removed and I was calmer until the final report, papilloma with mild focal flat ephitelial atypia.
But four months later, another us, this time a male doctor, he told me, you have another one and because you had atypia, this time you should have a mri. I remember telling him, no please, not again... :(
He was very kind to me, He told me, it looks like exactly as the previous papilloma you had. Final report of mri, papilloma in the same breast.
I dont want to live like this for the rest ofmy life. Before knowing the mri result, again I was almost into tears until they told me, congrats, no cancer again. And I just wonder, how many times am i going to be lucky?
Intraductal Papilloma with FEA - 2018
10/18/2018 Prophylactic mastectomy: Left, Right