Sep 7, 2018 01:21AM I_Spy wrote:
MinusTwo: These stories definitely help me to insist on the Mohs. I will have to change insurance, but once I realized that the Kaiser pathologists lump micronodular in with nodular willy-nilly, I lost my confidence in getting cancer surgery done there. Here's the thing: I really like Kaiser. I had Kaiser my whole life until I went back to school and was given basically free insurance with an incredible hospital (UCSD). My body has been sort of disintegrating since 2015 (bc is just part of it), and my medical history is so complex I have to bring printed sheets with me to the doctor or I will forget my surgeries, procedures, bizarre happenings, etc. Right now I have something wrong with my spinal cord that is causing severe pain, and I have to get to the bottom of that while trying to make sure they take my skin cancer out properly so I don't end up with two or three surgeries for the same thing. I need to be followed by the best doctors at the best hospitals. Kaiser will not be sad to see me go haha (I am very expensive). I'm doing this while self-employed and trying to generate work and do the work and I'm severe pain.
I'm with you: I don't understand people that say: "Well, the doctor says...." I mean, what the doctor says is useful and interesting, but it is not the word of God. What the doctor says is the beginning of the journey. I've really liked my family doctor at Kaiser and the physical medicine doctor I saw for my back, but even she is having to just turn me over to pain management to sort out my spinal cord. I'm awake late tonight because I'm in too much pain to sleep. We bco girls are used to dealing with the short end of the stick, so I know I'm preaching to the choir here.
Thanks for the confidence to insist on the Mohs. It seemed correct with everything I was reading (clinical studies) and this just confirms it.