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Topic: Dcis but mri suspiciois for more

Forum: High Risk for Breast Cancer — Due to family history, genetics, or other factors.

Posted on: Aug 18, 2018 12:21PM

B-A-P wrote:

I’m not sure if this is the right forum , but in July I was dx with dcis. It was treated as not a big deal. I had an mri booked just to make sure there were no other issues before starting on treatment. However , mri showed areas of enhancement and looks suspicious, along wth a node measuring 1.7cm

So now I need a mammo, ultrasound and biopsy of the node and area of enhancement. The dr said this could all be related to my excision surgery, but she’s pretty concerned . Im 30 and scared. This wasnt expected at all. Anyone have positive experiences with a bad mri that turned out benign

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/18/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole) Surgery Prophylactic ovary removal Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 18, 2018 12:55PM SoCalgal61 wrote:

Yes! I was diagnosed with DCIS then the MRI showed enhancement and bad kinetics. 3 nodes lit up. Had lymph node biopsy. My friend who’s a breast surgeon thought it would be positive. We were discussing port placement and chemo. Thankfully, she was wrong. Proceeded to surgery, still thinking likely to find IDC. All 3 lymph nodes were benign and just found DCIS.But I remember how panicked I was. Thinking of you and hoping your outcome is the same as mine.

Dx 3/22/2017, DCIS, Right, 1cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+ Surgery 5/2/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/6/2017 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Aug 18, 2018 01:58PM B-A-P wrote:

Thanks so much for replying. This gives me some hope. Im hoping for the same outcome. It’s just so hard to believe that this is my life at the moment

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/18/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole) Surgery Prophylactic ovary removal Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 20, 2018 11:23AM SoCalgal61 wrote:

Having a treatment plan in place really helps. You’ll be there soon. Please keep me posted.

Dx 3/22/2017, DCIS, Right, 1cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+ Surgery 5/2/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/6/2017 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Aug 21, 2018 12:55PM B-A-P wrote:

I will :)

Testing tmr. Son also conveniently came down with Hand foot and mouth. Hoping I don’t get it. Husband did last year. It was awfu

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/18/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole) Surgery Prophylactic ovary removal Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 21, 2018 01:18PM Stherye wrote:

Dear BAP, sorry you are going through this and also sorry about your husband. You are very young.

I hope you get good results, what I have learned through reading many posts in these forums is that MRIs give many false positives, I hope you will be one of them.

I am 42 yo, and was dx a papilloma with atypia last february, and 4 months later another mass has been seen in ultrasounds, so I got also an mri, it says probably another papilloma but it must be excised and biopsied, and it came as birads4. I am not going to have it excised or biopsied because I have decided to get a pbmx even though it is not recommended for my condition.

But I understand you, waiting and not knowing the results is extremelly scary, probably is the worst part. Once you know what you have and the route you are going to take, it will be better.

I am sending you the best positive energy and really hope only is only dcis.

Intraductal Papilloma with FEA - 2018 Surgery 10/17/2018 Prophylactic mastectomy: Left, Right
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Aug 21, 2018 01:40PM B-A-P wrote:

That gives me hope. Thanks for telling me . The more positive I hear, the more positive I feel. I am scared. Te waiting is the hardest part for sure . I will keep you guys updated. Def not looking forward to the mammo. My breast is still super sore from surgery . :

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/18/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole) Surgery Prophylactic ovary removal Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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