Apr 15, 2019 07:41PM - edited Apr 15, 2019 08:08PM by SimoneRC
I am sorry to have to welcome you to the ATM club. I know it adds new layers of stuff to this already crappy journey that we have been kidnapped in to.
The first and most important step is to meet with the genetic oncologist. I had a really good experience and had a lot of good guidance.
As you probably know, your daughter has a 50 - 50 shot of having inherited the gene mutation. If she did, knowledge is power and she too should meet with a genetic oncologist to talk about surveillance and potential risk reducing procedures.
I will be having total hysterectomy and BSO (ovaries and tubes removed) in two weeks.
Hopefully you will find the appointment with the genetic oncologist to be really helpful and informative.
You may want to enroll in the PROMPT study as well.
Let us know how your appointment goes! You sound like an awesome Mom and friend! Make sure to take good care of you!