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Topic: What counts as familial link?

Forum: High Risk for Breast Cancer — Due to family history, genetics, or other factors.

Posted on: Jun 6, 2019 08:05AM

onceabird wrote:

I have been diagnosed with ADH and am 34, so I know my risk is increased. I also have very dense breasts and a condition that causes cysts to grow, making it hard to distinguish between problems and benign lumps.

My Mother is cancer free thus far (she is 65) and my maternal grandmother had invasive endometrial cancer that resulted in a total hysterectomy at age 52. I have no aunts or cousins, as my mother is an only child and my father only has a brother so I don't know their history. I am negative for BRCA1 and 2.

If my maternal Grandfather's sisters (all 3) died from breast cancer at ages between 50-75, is it worth mentioning to the oncologist, or is that too distant to matter?


Dx ADH 6/2019 after surgical biopsy, starting 6-month monitoring
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Jun 6, 2019 08:28AM MelissaDallas wrote:

Ask for a consult with a geneticist.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Jun 6, 2019 08:32AM Scrafgal wrote:

It could be worth mentioning if you want to have a complete gene test, beyond Braca, AND get it covered by your insurance company. Your risk has to be perceived as sufficiently high to justify coverage. I only had a few cousins with history, but my father was adopted and there were some historical knowledge gaps. I paid for a full genetic screen, which includes genes associated with other cancers too...I had to pay $250 out of pocket but I had peace of mind afterwards....I did this after treatment ended because I didn't want to burn time waiting for results before getting on with my chemo.

I don't know if mentioning it would qualify you for coverage but it is worth a shot maybe.

Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Mastectomy: Right; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 3/22/2017 Taxol (paclitaxel) Chemotherapy 6/15/2017 FAC Hormonal Therapy 9/25/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/13/2017 Reconstruction (right): Fat grafting, Silicone implant Surgery 5/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting Surgery 10/16/2018 Reconstruction (right): Nipple tattoo Surgery 5/9/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 7/23/2019 Arimidex (anastrozole) Surgery 9/6/2019 Reconstruction (right): Nipple tattoo
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Jun 6, 2019 08:50AM SummerAngel wrote:

Yes, I would say it matters. A geneticist will give you more information, though. My mother's side has no breast cancer at all that we can find (both of my parents have been into genealogy for many years), but my dad's side does. There aren't many women on that side, though. My dad's only sister had breast cancer, one of my first cousins had it (at 41), and my dad's grandmother on his dad's side had it (and died from it at 47). That was enough to increase risk, based on what my geneticist said.

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 3/27/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 6/1/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right Surgery 6/1/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/28/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/4/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction

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