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Jun 17, 2019 09:06AM
NJGirl -- You've gotten alot of good advice so far, I second it.
My journey will most likely be very different than yours, from a number of perspectives, including the fact I have multiple immune system issues/chronic illnesses prior to being dx with IDC. Hopefully if you try out Tamoxifen you will be one of the majority of patients that experience very minimal SEs along the way. The odds are in your favor for that outcome.
Like OnceABird and others have mentioned, mental health and quality of life can sometimes be a very tricky balance. In your original post, you mentioned being concerned about upsetting the delicate balance that works for you. That is also where I found myself, newly dxd @41 after my very first baseline Mammo, last summer.
This was my journey of decision making: https://community.breastcancer.org/forum/78/topics/868242?page=4#idx_106
For me, it was helpful to approach this huge decision from a number of different directions:
- listening to my team and asking ALOT of questions
-doing my "homework" and listening to my gut and doing more "homework" (my new hobby became researcher extraordinaire)
- being my own advocate, asking for additional testing, or second opinions when needed
- taking things slow (trying to make only ONE change at a time - not swap antidepressants and add in tamox at same time etc)
- rethinking things/being flexible with myself and my fears
- making a PROS/CONS list and comparing it to my "What if METs, will I regret NOT doing x y z?" (my answer was YES), so that left me with a choice that I wasn't entirely comfortable with/scared about, but I was more scared about METs, so I gave it a shot.
Like I said, that is my journey to make my Tamoxifen decision, everyones is unique. I hope you will sail through on it and your delicate balance withstands a little tinkering and is no worse for wear. Keep us posted. We're here for you. :)
"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left, Diet & Exercise. PS: Not a dr, just a Googler.
7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH)
8/29/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel
8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2
9/30/2018 Whole-breast: Breast, Lymph nodes, Chest wall
3/29/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
7/1/2019 Zoladex (goserelin)