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Apr 2, 2020 02:23PM
Jessie, I've been reading your thread and scratching my head a bit. I do agree that you are high risk, but in thinking about it, I'm not sure that it's because of the LCIS.
It's a chicken and egg thing. Although your LCIS was found incidentally to your ILC, it's most likely that the LCIS developed first and was possibly present in your breast for years before the ILC developed and was detected. I'm just speculating on that, of course, but that is generally how LCIS operates. Having LCIS does increase the risk to develop breast cancer, and sure enough, you developed the ILC. So the LCIS has already had it's impact.
But here's the thing. Now that you've had breast cancer, that trumps any high risk condition you might also have. This is because anyone who has been diagnosed with breast cancer, DCIS or invasive cancer, is at higher risk to be diagnosed again with a new primary (which is totally separate from the risk of developing a recurrence). That's true for all of us. The studies vary about the degree of risk but my MO told me that having had breast cancer, I had about double the risk of someone my age who had never been diagnosed. This study seems to confirm that:
Second Primary Breast Cancer Occurrence According to Hormone Receptor Status
"For women whose first breast tumors were HR positive, risk of contralateral primary breast cancer was elevated, compared with the general population, adjusted for age, race, and calendar year (SIR = 2.22, 95% CI = 2.15 to 2.29, absolute risk [AR] = 13 cases per 10 000 person-years [PY]), and was not related to the HR status of the second tumor. For women whose first breast tumors were HR negative, the risk of a contralateral primary tumor was statistically significantly higher than that for women whose first tumors were HR positive (SIR = 3.57, 95% CI = 3.38 to 3.78, AR = 18 per 10 000 PY), and it was associated with a much greater likelihood of an HR-negative second tumor (SIR for HR-positive second tumors = 1.94, 95% CI = 1.77 to 2.13, AR = 20 per 10 000 PY; SIR for HR-negative second tumors = 9.81, 95% CI = 9.00 to 10.7, AR = 24 per 10 000 PY). "
Anyway, just food for thought, which doesn't change a thing about the fact that you are right to be diligent in getting checked. That said, I think you made a wise decision to pass on the MRI for in the current environment.
“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke