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Topic: Tests

Forum: High Risk for Breast Cancer — Due to family history, genetics, or other factors.

Posted on: Sep 29, 2020 12:22PM

Tuc wrote:

Diagnostic mammogram with possible u/s in couple weeks. Hope for answers.


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Nov 6, 2020 01:28PM Tuc wrote:

Thanks Ladies😊.
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Nov 6, 2020 02:10PM Tuc wrote:

Hi, I will try to think about other things,it's very difficult. I am feeling very unwell-- and keep having to wait long periods of time to see doctors. And still can't get answers as to why I feel so ill. Like the lump in one of my parotid gland s that I developed in May-- it's still hard and swollen and very visible. However it appears to be slow growing in size.the rash, not responding to medica., And more gastrointestinal issues. Maybe I don't have breast cancer( tho I have discharge for about 4 yrs.) But something is very wrong-- has been for quite awhile. Mother died of colon cancer at 61 yrs old. I will be 59 in the summer. I needed to vent---i will come back-- and one day-- have the correct diagnosis. If you don't hear from me one day-- it's because I am no longer around. Thanks.
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Nov 6, 2020 04:02PM MinusTwo wrote:

Yes - it sounds like something is wrong but not likely breast cancer. sorry for your troubles.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 6, 2020 05:38PM Tuc wrote:

However, one breast, one duct-- discharge. "Puffiness" around aerola. It has changed colors very recently-- skin is same color as rest of breast-- can't tell areola color from rest of breast-- plus many other changes. The nipple is splitting. Orange peel look/Pitt spreading-- all this seemed to start out slow-- now it is speeding up. May I say DAMNIT-- my frustrations -- ..and where puffiness/indent are on aerola-- there is a corresponding line of indents running linear along side of this breast. I would stand on my freaking head-- to get this validated-- but alas-- still not taken Seriously---...no diagnosis-- but hell-- I have the symptoms-- they keep ramping up... Don't believe it -- go to my Facebook page( picture of a garden spot) junecarroll( I do have a couple of Facebook pages) cause I had to create other accounts-- my technilog. Challenge. However--- there are photos of the manifest. Of what I am talking about. Radiologists need to look at what's going on on the outside--DAMNIT. I am sick and I AM FREAKIN TIRED of NOT getting the right answers....

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Nov 6, 2020 09:31PM - edited Nov 9, 2020 12:11PM by Tuc

This Post was deleted by Tuc.
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Nov 7, 2020 08:20AM Beesie wrote:

Tuc, you are trying to find away around the BCO rules, but please change your profile picture. There is no point in showing a picture of your breast and nipple - no one here can diagnose you based on a picture.

Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Nov 7, 2020 09:54AM MinusTwo wrote:

TUc - Beesie is right. The picture of your breast is offensive. Especially to all of these ladies & gentlemen who have been so kind to try to help you.

I'd suggest you start back with your primary care doctor and see if you can get more meds to help your anxiety. Then patiently & quietly start over with a second opinion.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 7, 2020 12:02PM sbelizabeth wrote:

Tuc, I'm truly not trying to pile on here, but posting a photo of your breast and nipple as your avatar image is very inappropriate. The whole internet has access to your posts. Do you really want this photo out there for all to see? And yes, I personally find it offensive.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Nov 9, 2020 12:27PM Tuc wrote:

Hi,

I am apologising to everyone here for me being very immature.

I threw a temper tantrum-- like a two year old on here-- especially showing a breast picture.

I won't do it again on this forum.

Very sincerely,

Tuc.

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Nov 9, 2020 12:46PM Tuc wrote:

Btw,

I just got my report in the mail from the women's diagnostic center. It read as follows: "As we discussed at your recent visit, your MA Digital Mammo Diag Bilateral examination showed an abnormality that requires a biopsy. The only way that we can be sure that the abnormality is benign(not cancer) is to sample or surgically remove the area of concern and send these samples for pathological analysis. Once this has occurred you will be seen In our surgeons' office concerning the results and any follow up tests or appmts. That may be required." "A report of your results was sent to S, MD, R. He/She has been informed about the need for this biopsy."

" It will be necessary for you to contact your ordering physician to schedule this exam and obtain an order. Please bring the order with you on the day of your exam or have phys. Office fax...."

"Mammography is the most commonly used method for early detection but not all cancers are found through mammography. A breast finding of concern should never be ignored despite a normal mammogram. If you notice any new changes in your breast(s) you should bring them to your health care provider attent. Immediately."

" Thank you for allowing us to help in meeting your health care needs"

"Sincerely,

G. DO, J. M.

Interpreting Radiologist"


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Nov 9, 2020 12:48PM Tuc wrote:

Btw,

I just got my report in the mail from the women's diagnostic center. It read as follows: "As we discussed at your recent visit, your MA Digital Mammo Diag Bilateral examination showed an abnormality that requires a biopsy. The only way that we can be sure that the abnormality is benign(not cancer) is to sample or surgically remove the area of concern and send these samples for pathological analysis. Once this has occurred you will be seen In our surgeons' office concerning the results and any follow up tests or appmts. That may be required." "A report of your results was sent to S, MD, R. He/She has been informed about the need for this biopsy."

" It will be necessary for you to contact your ordering physician to schedule this exam and obtain an order. Please bring the order with you on the day of your exam or have phys. Office fax...."

"Mammography is the most commonly used method for early detection but not all cancers are found through mammography. A breast finding of concern should never be ignored despite a normal mammogram. If you notice any new changes in your breast(s) you should bring them to your health care provider attent. Immediately."

" Thank you for allowing us to help in meeting your health care needs"

"Sincerely,

G. DO, J. M.

Interpreting Radiologist"


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Nov 9, 2020 12:56PM ctmbsikia wrote:

Did they also send the actual report? What does that say, and at the bottom there should be a BiRADS score number, what does that say? Also if see Impression: If can copy/ past what that says maybe we can help you.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Nov 9, 2020 01:19PM Tuc wrote:

Hi,

No, but I should get all that. However I don't have a home computer, I have a cell phone. The library has computer. I will try to look at my Electronic health record asap-- even tho I'm techno. Challenged-- i have learned Alot thru making mistakes 😁🙃.

Contacting my primary tomorrow to get the order for the biopsy. I will ask her for a copy-- the imaging center should have sent all this to her.

Thanks,

  • Tuc.
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Nov 12, 2020 05:10AM - edited Nov 12, 2020 05:11AM by Tuc

Hello,

Looked at patient portal-- primary wants to see me first and discuss mammogram and Ultrasound results-- was supposed to see her Dec 31-- but will see her Dec 3. Also saw on portal I'm scheduled out to get an Ultrasound of nodule in neck. Colonoscopy still scheduled out too(both up to one year out).

Will update from time to time here.

Thanks

Tuc.

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Nov 12, 2020 06:11AM Jons_girl wrote:

Hi Tuc:

I read this thread. If I were you, and I got that letter and my primary said that I think I’d be looking for a new primary dr. I don’t understand why your not seeing a breast specialist? They are telling you to schedule a biopsy. Do you have a breast center near you? I’d go get a second opinion there if you aren’t having your previous diagnostics at a breast center. You can get second opinion. Or should be able to do that if your previous mammo wasn’t done at a breast center. But I’d definitely want the biopsy done soon if I were you and I’d want it done at a breast center. Not sure where you live but there should be a breast center near you.

Keep us updated when you have time.

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 7/5/2017 Lumpectomy: Left; Lymph node removal: Sentinel
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Nov 12, 2020 07:22AM MelissaDallas wrote:

Jons-girl, she is being seen through program (breastcancernetwork). She has to follow their protocol. Not being seen as a private insurance/pay patient

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
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Nov 12, 2020 07:30AM Jons_girl wrote:

Thanks Melissa for that info. I missed that info in the thread. But even so, I’d still be advocating for myself and pushing them to do the biopsy soon. But that’s just me. If my PCP got a letter like that she’d be sending me right away for biopsy not wanting to see me and go over diagnostics. So I just think that’s a little odd. But no worries

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 7/5/2017 Lumpectomy: Left; Lymph node removal: Sentinel
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Nov 12, 2020 07:50AM MelissaDallas wrote:

You have apparently never had all your doctors and treatment through a public, charity or government system. All of my doctors and treatments when I had cancer were through a huge overburdened county hospital and their clinics. Advocate all you want. You get in line with everyone else. They just told me to come to the ER for paracentesis if my ascites got too unbearable during the almost three weeks I had to wait for surgery when I was very, very ill.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
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Nov 13, 2020 10:46AM Tuc wrote:

THANK You MelissaD and Jonsgirl,

Thank you for posting-- regarding all of this. Everything you both said is spot on. Yes I should be getting this dealt with sooner rather than later. But like Melissa D said-- we have to get in line-- esp. when we are getting our help thru charitable organizations. I have in the past worked for charitable organizations and I think most so the best they can with what they have. I am grateful for this organization-- Best chance network. I am also grateful for Breast Cancer. Org but I am especially grateful for people like you-- who share your experience and your empathy. I can never say thanks to you all enough. I will keep you all posted on everything.

Take care😊.

Tuc.

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Nov 24, 2020 05:38PM Tuc wrote:

Hi,

My Baby boy who was gone overseas for over a year, and is now part of law enforcement here in the USA-- stopped by recently. I know we are not promised tomorrow and can't get back yesterday. But my hope is in GOD's grace--no matter what this life brings. I love my family very much, I keep them in my prayers. I am one of the least of these--GOD's children. I have internal stuggles daily. My hope and my everything is in GOD alone. I am scheduled for an appointment regarding my mammogram and ultrasound Dec 3. Initially according to a letter I received a couple weeks ago it was stated that I needed a biopsy. Since then the troublesome breast is still changing-- 🙄 it's more vascular, pitted and painful. I am/will not freak--out-- especially because it is probably nothing.

Thanks.



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Nov 27, 2020 06:56AM Jons_girl wrote:

sorry for late response. 😊Melissa no I haven’t had all my treatments and drs or really ever been seen through a govt clinic or program. So I apologize. I guess I didn’t realize tuc was being seen at a place like that. So that makes sense she is having to wait. It’s a bummer but I understand why now.

Tuc I apologize for not understanding where you were getting care at. thank you for the update. I’m glad you have good support. ❤️ And I am glad your having diagnostics done next wk. let us know how that all goes. Will say a prayer all goes well. Sending a hug your way.

Tam

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 7/5/2017 Lumpectomy: Left; Lymph node removal: Sentinel
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Dec 1, 2020 09:42AM Tuc wrote:

Hi, Just saw post jonsgirl-- thanks😊. Will update soon. Take care😊





😊.

Tuc.
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Dec 3, 2020 09:20AM - edited Dec 3, 2020 02:56PM by Tuc

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Dec 3, 2020 09:43AM Tuc wrote:

Hello😊,

My report from Primary/Women's Diagnostic center reads as follows: Bilateral

Reason for Exam--(MA Digital Mammo Diag Bilateral) right breast nipple discharge, left inverted nipple.

Report--MA Digital Mammo Diag. Bi Lat. w CAD with 3D tomosynthesis. Diag. Bilateral breast Ultrasound.

Indication-- right breast nipple discharge, left inverted nipple.

Comparison-- compared w/ prior studies. This study is read in conjunction w/the R2 CAD.

Images-- 90 degree, routine views of both breasts were obtained digitally.

Breast Density--there are scattered fibroglandular elements.

Findings--there is a 5 mm oval mass within the middle third of the lower inner quadrant of the right breast which is new or increased in size. Stable appear. Of the lobulated mass contain calcification w/in the middle thru the upper outer quadrant of the left breast.

Ultrasound--right breast targeted in the retroareolar region demonstrate a normal appear. Of the ducts. No suspicious mass is identified. Incidentally, noted is a 5 mm echogenic oval area of tissue at the 12 o'clock posit., Possibly representing fat lobule. At the 4 o'clock posit., 4 cm from nipple is a 0.4×0.3×0.5 cm oval anechoic mass w/ posterior acoustic enhancement and no significant internal vascularity consistent w/ a cyst.

Ultrasound-- targeted left brst. In the retroareolar region demonstrate a normal appear. Of the brst tiss. And ducts, w/out solid mass identified.

Impression-- intermittent spontaneous bloody nipple discharge reported by patient, w/out corresponding mammographic or sonographic abnormality.

RADIOLOGY--report: Assessment: Bi Rads category 4 suspicious.

Recommendation-- Bilateral breast MRI with and without contrast and surgical consult is recommended for bloody right nipple discharge.

Discussed in full w/ patient and "IMEDIATE FOLLOW-UP REQUIRED" letter was mailed to patient.

4, suspicious abnormality, biopsy should be considered.


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Dec 3, 2020 11:24AM Beesie wrote:

Tuc, if I'm interpreting correctly, everything they've found on the mammogram and ultrasound imaging appears benign (possible fat lobule and a cyst), so there is no explanation for your bloody nipple discharge. Therefore the next step is an MRI and surgical consult. It's unfortunate that you don't have any answers, but it's good that so far nothing concerning has shown up and good that they are continuing to pursue this.

Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Dec 3, 2020 02:32PM Tuc wrote:

Hi Beesie,

Hope it's benign.😊.

Thanks,

Tuc.

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Dec 3, 2020 02:34PM - edited Dec 3, 2020 02:59PM by Tuc

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Dec 3, 2020 03:08PM Tuc wrote:

Hi again 😁,

I am scheduled for an MRI on Dec 23rd.

Then possibly biopsy.And everything should be cleared up regarding breasts. And yes-- I think-- it's probably just benign- I have learned Alot on Breast cancer.Org.

After this it's on to a colonoscopy and an ultrasound of nodule on neck. And a few other very sensitive issues😁.And we will get to the Crux of why I feel so ill all the time.

Thanks,😊

Will update later.

Tuc


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Dec 4, 2020 10:26PM Jons_girl wrote:

thanks for updating us Tuc. I hope all is benign and hope all goes well. Keep us posted. I’m having a screening MRI this month too. So hope goes well for both of us! It’s good they are following up with mri and biopsy to make sure all is ok. You have a good doctor it sounds like!

Blessings

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 7/5/2017 Lumpectomy: Left; Lymph node removal: Sentinel
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Dec 5, 2020 04:18PM Tuc wrote:

Hi Jonsgirl--😊,

I hope all goes well for you too--especially with your MRI. Yes I have been blessed with a very caring Doctor. She really listens to my concerns and is working with me on addressing each of them. I really appreciate the care I am receiving 😊. Prayers for you too😊.

Take care.

Tuc.


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