Topic: Anyone happy they had their ovaries removed (RRSO)?

Forum: High Risk for Breast Cancer — Due to family history, genetics, or other factors.

Posted on: Mar 21, 2021 08:27AM

Posted on: Mar 21, 2021 08:27AM

Dottybird wrote:

I am BRCA 2+, had the double mastectomy, chemo, am on tamox, and have been doing the CA-125 and ultrasounds to monitor my ovaries. The tamox is causing a thickened lining and doctor wants me to change to AIs and REALLY REALLY wants me to get my ovaries removed.

I have not heard any good things about it, especially under 45, so I thought I would ask.

Thanks and good luck on your journey!

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Nov 21, 2021 07:51AM el_tigre wrote:

Hi

I was wondering what recovery time would be for an Oomp? I have one scheduled very soon and was trying to get a better picture of the discomfort afterwards. I know everyone is different but this will be my first laproscopic surgery.

thank you :)

Dx 6/12/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, 4/22 nodes, ER+/PR+, HER2- Surgery 8/19/2015 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 9/24/2015 AC + T (Taxol) Radiation Therapy 1/26/2016 Whole breast: Lymph nodes Hormonal Therapy 3/7/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 4/14/2016 Herceptin (trastuzumab) Targeted Therapy 12/9/2021 Kisqali Targeted Therapy 3/12/2022 Verzenio Targeted Therapy 6/1/2022 Piqray (alpelisib) Dx IDC, Other, 2cm, Stage IV, Grade 2, ER+/PR+, HER2-
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Nov 21, 2021 10:08AM cbk wrote:

My surgery was a piece of cake. I was out shopping the next day. I don’t recall that I even took any pain medication. Wishing you the same!

Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/10/2017 Mastectomy; Mastectomy (Left); Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 7/21/2017 AC + T (Taxol) Surgery 1/24/2018 Hormonal Therapy 2/17/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (Right): Latissimus dorsi flap, Silicone implant Surgery 9/27/2018 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 4/3/2019 Reconstruction (Left): Nipple reconstruction, Silicone implant; Reconstruction (Right): Nipple reconstruction, Silicone implant
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Nov 21, 2021 10:54AM el_tigre wrote:

Thank you CBK!

Dx 6/12/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, 4/22 nodes, ER+/PR+, HER2- Surgery 8/19/2015 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 9/24/2015 AC + T (Taxol) Radiation Therapy 1/26/2016 Whole breast: Lymph nodes Hormonal Therapy 3/7/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 4/14/2016 Herceptin (trastuzumab) Targeted Therapy 12/9/2021 Kisqali Targeted Therapy 3/12/2022 Verzenio Targeted Therapy 6/1/2022 Piqray (alpelisib) Dx IDC, Other, 2cm, Stage IV, Grade 2, ER+/PR+, HER2-
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Nov 21, 2021 01:21PM laughinggull wrote:

i was also out shopping the next day which in retrospect was a bit much and after a couple of hours I felt dizzy. I would say if you get it done at the end of the week and you rest during the weekend, you will be normal the week after. But of course that depends on you and your circumstances eg how well you tolerate anesth

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2-
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Nov 21, 2021 02:01PM sondraf wrote:

The most uncomfortable bit is the pressure from the gas they use to inflate your stomach. It takes a few days for that to work its way out. I was out and walking the next day and was feeling pretty good by day 4. I can't imagine shopping the next day!

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/28/2019 Femara (letrozole) Targeted Therapy 11/28/2019 Ibrance (palbociclib) Surgery 11/28/2021 Lymph node removal (Right): Underarm/Axillary; Mastectomy (Right) Targeted Therapy 3/1/2022 translation missing: en.treatments.targeted_therapy.targeted_therapy_medicine.short_options.lynparza
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Nov 21, 2021 03:47PM cowboy-up wrote:

I just had my surgery on Thursday. Day 3, the only real issue is the air in my abdomen and that isn’t too bad. I had issues with Tamoxifen damaging my liver and had issues with high blood pressure from chemical menopause so I opted to have my ovaries removed.

Dx 11/22/2016, IDC, Right, 1cm, Stage IB, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 1/16/2017 Lumpectomy; Lumpectomy (Right); Lymph node removal; Reconstruction (Left); Reconstruction (Right) Radiation Therapy Whole breast: Breast Hormonal Therapy Zoladex (goserelin)
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Nov 21, 2021 04:39PM cbk wrote:

El Tigre.

The procedure is nothing but the after effects were profound for me losing all that estrogen. Do not fear the procedure if you have an experienced surgeon in this arena!

Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/10/2017 Mastectomy; Mastectomy (Left); Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 7/21/2017 AC + T (Taxol) Surgery 1/24/2018 Hormonal Therapy 2/17/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (Right): Latissimus dorsi flap, Silicone implant Surgery 9/27/2018 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 4/3/2019 Reconstruction (Left): Nipple reconstruction, Silicone implant; Reconstruction (Right): Nipple reconstruction, Silicone implant
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Nov 27, 2021 10:00AM el_tigre wrote:

LaughingGull - Yes I get that dizzy feeling and woozy sensation after a procedure. I am still bouncing back from a previous surgery (Oct 30) so I planned it for next Monday (a work week, yes there might be some plotting there ;) ) I will definitely rest for the first 3-4 days. I hope to be mostly mobile and feeling better by the weekend.

SondraF - This will be my first gas in belly surgery. I was wondering how uncomfortable the result would be and where the heck the gas finally goes. I assume walking and being mobile helps the gas be absorbed or works it's way out.

Cowboy-Up - I am sorry to hear about the liver damage and high blood pressure. I am glad you had your ovaries out to save further damage on your liver. I hope your gas discomfort fades quickly!

CBK - I feel I do have an experienced doc but this will be the first procedure with her. I feel comfortable in the hospital I am having it done at as well. I remember the lupron shots for ovary suppression (2015-2020). The lack of estrogen was very painful. I am not looking forward to that but my body got used to it before and hopefully again. Acupuncture worked for me in the past but I'll be trying other methods first. Bring on the tart cherry juice!

Tigre

Dx 6/12/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, 4/22 nodes, ER+/PR+, HER2- Surgery 8/19/2015 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 9/24/2015 AC + T (Taxol) Radiation Therapy 1/26/2016 Whole breast: Lymph nodes Hormonal Therapy 3/7/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 4/14/2016 Herceptin (trastuzumab) Targeted Therapy 12/9/2021 Kisqali Targeted Therapy 3/12/2022 Verzenio Targeted Therapy 6/1/2022 Piqray (alpelisib) Dx IDC, Other, 2cm, Stage IV, Grade 2, ER+/PR+, HER2-

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