Posted on:
Jul 15, 2021 03:48PM
A
Montreal
Joined:
Feb 2021
Posts:
414
Latest activity:
May 15, 2022
Posted on:
Jul 15, 2021 03:48PM
aram
wrote:
Hi all,
I didn't find a similar post, so here it is. Yesterday I got the call from my genetic counselor that I am BRCA1 positive. I did some search here to see how many we are and I didn't really see anything. What makes my situation kind of unique is that I am Her2+ and apparently BRCA positive and Her2+ is very rare. I was wondering how many of us are here? Maybe we can discuss clinical trials for prevention, or any other tips you might have on how to leave with BRCA positive diagnosis.
I got this book from Amazon yesterday: Understanding BRCA: Living with the breast cancer gene. In simple terms it explains what BRCA means and what the current research is. I am half way through the book and really recommend it to anyone in the same boat.
Dx at 40, BRCA1
Dx
2/5/2021, IDC, Left, 1cm, Grade 3, ER-/PR-, HER2-
Dx
2/5/2021, IDC, Left, 3cm, Grade 3, ER-/PR-, HER2-
Chemotherapy
3/10/2021 AC + T (Taxol)
Targeted Therapy
6/2/2021 Perjeta (pertuzumab)
Targeted Therapy
6/2/2021 Herceptin (trastuzumab)
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2
2019whatayear
Joined:
May 2019
Posts:
761
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Apr 17, 2022
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Jul 15, 2021 04:13PM
2019whatayear
wrote:
I have a pathogenic BRCA2 mutation. F.O.R.C.E has a facebook group for people with mutations, if you are looking for groups. I just got approved via insurance to take Lynparza as a preventative drug for one year, based on the OlympiA trial results. I am going to start it on Sunday.
5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
A
aram
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May 15, 2022
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Jul 15, 2021 05:21PM
- edited
Jul 15, 2021 05:33PM
by
aram
Thank you. I will check the Facebook page.I see you had BSO.
I just checked the trial page. So I see it is for HER2-. I first thought it is for ovaries.
Dx at 40, BRCA1
Dx
2/5/2021, IDC, Left, 1cm, Grade 3, ER-/PR-, HER2-
Dx
2/5/2021, IDC, Left, 3cm, Grade 3, ER-/PR-, HER2-
Chemotherapy
3/10/2021 AC + T (Taxol)
Targeted Therapy
6/2/2021 Perjeta (pertuzumab)
Targeted Therapy
6/2/2021 Herceptin (trastuzumab)
2
2019whatayear
Joined:
May 2019
Posts:
761
Latest activity:
Apr 17, 2022
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Jul 16, 2021 12:26PM
2019whatayear
wrote:
Do you mean the Lynparza? If so yes it is currently used by ovarian cancer people as a maintenance drug after active treatment.
Yes 10 days after I finished radiation I had a BSO, I was 49 at the time. - benign thank goodness. If I had known I had BRCA2 b/4 cancer I would have had preventative surgeries in my late 30s but I didn't know :-)
5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
