Topic: Brca2 positive endoscopy screening for pancreatic cancer.

Forum: High Risk for Breast Cancer — Due to family history, genetics, or other factors.

Posted on: Sep 8, 2021 05:23PM

Posted on: Sep 8, 2021 05:23PM

cbk wrote:

Hi ladies.

Have any of you had this preventative screening for pancreatic cancer and have any additional input on it?

I'm over 4 years out from my original diagnosis and this is the first I have been asked to do this screening.

Looking forward to any feedback.

Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/10/2017 Mastectomy; Mastectomy (Left); Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 7/21/2017 AC + T (Taxol) Surgery 1/24/2018 Hormonal Therapy 2/17/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (Right): Latissimus dorsi flap, Silicone implant Surgery 9/27/2018 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 4/3/2019 Reconstruction (Left): Nipple reconstruction, Silicone implant; Reconstruction (Right): Nipple reconstruction, Silicone implant
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Sep 8, 2021 05:32PM aram wrote:

hi CBK, is this part of a clinical trial? From what I know there are no established screening for pancreatic cancer for BRCa. I am supposed to be in a trial but I don't know the details of it yet so I am not sure if they use endoscopy or other tests.

Dx at 40, BRCA1 Dx 2/5/2021, IDC, Left, 1cm, Grade 3, ER-/PR-, HER2- Dx 2/5/2021, IDC, Left, 3cm, Grade 3, ER-/PR-, HER2- Chemotherapy 3/9/2021 AC + T (Taxol) Targeted Therapy 6/1/2021 Herceptin (trastuzumab) Targeted Therapy 6/2/2021 Perjeta (pertuzumab)
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Sep 8, 2021 06:44PM 2019whatayear wrote:

I have not had this -

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
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Sep 9, 2021 02:28AM jelson wrote:

This thread caught my eye - just this past year, 11 years out from diagnosis, my MO freaked when he learned I was of 100% Ashkenazi descent and immediately suggested genetic screening. I was skeptical but kept the appointment with the genetic counselor who, when I asked what would be the benefit for a 70 year old with no birth children, responded I might be found to be at heightened risk for pancreatic cancer a could be screened regularly for that - well that was enough for me!! Unfortunately for this conversation, I didn't ask the nature of the screening and thankfully for me, the genetic testing for 47 factors turned out negative. So, such screening appears to be out there and I would have opted for it if my genetic tests indicated I was at risk.

Dx 4/17/2009, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+
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Sep 9, 2021 07:30AM cbk wrote:

Aram-

This is not part of a clinical trial, it’s just a preventative screening. I’m going to gathermore information before I do it. My oncologist said she asks her Brca patients to do this screening. I’m assuming it will be a regular thing. Another Dr to add to my list. Ugh 😩

Jelson-

Wonderful you had the testing and it came back negative!

Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/10/2017 Mastectomy; Mastectomy (Left); Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 7/21/2017 AC + T (Taxol) Surgery 1/24/2018 Hormonal Therapy 2/17/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (Right): Latissimus dorsi flap, Silicone implant Surgery 9/27/2018 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 4/3/2019 Reconstruction (Left): Nipple reconstruction, Silicone implant; Reconstruction (Right): Nipple reconstruction, Silicone implant
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Sep 9, 2021 05:11PM Reckless wrote:

Hi CBK! Thank you for raising this. I am brca2, but was not offered this procedure. I’ll check with my onc and gastro. May I ask, what is the procedure - a sonogram? And which hospital? I am in Nyc.

💉💉💉 Dx 3/4/2016, IDC, Right, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 4/19/2016 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/18/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/11/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 11/13/2017 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Arimidex (anastrozole)
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Sep 10, 2021 07:31AM cbk wrote:

Hi Reckless!

I’m just across the river from you in northern New Jersey. My treatment and follow up has been @ Hackensack’s JT Cancer Center.

As far as I know it is an endoscopy ultrasound and will be performed by a gastroenterologist. I’m in process of scheduling.

Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/10/2017 Mastectomy; Mastectomy (Left); Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 7/21/2017 AC + T (Taxol) Surgery 1/24/2018 Hormonal Therapy 2/17/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (Right): Latissimus dorsi flap, Silicone implant Surgery 9/27/2018 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 4/3/2019 Reconstruction (Left): Nipple reconstruction, Silicone implant; Reconstruction (Right): Nipple reconstruction, Silicone implant
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Sep 10, 2021 10:54AM - edited Sep 10, 2021 10:56AM by armom4

I have an ATM mutation. Not BRCA, but similar. They work together. I spoke to a genetic counselor who put together a screening program for me. My MO follows that plan. I will be having yearly MRCPs, which is a scan specifically for the pancreas and biliary tract. I also will have colonoscopies every 5 years. Go see a genetic counselor if you can.

Edited to add: if the MRCP comes back abnormal, I will have an endoscopic ultrasound. They want to do the less invasive procedure first.

Diagnosed age 35. ATM gene mutation.Severe reaction to Taxol and Taxotere. Just Tamoxifen now Dx 1/3/2020, DCIS/IDC, Right, 2cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2020 Lymph node removal; Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left) Targeted Therapy 3/26/2020 Herceptin (trastuzumab) Chemotherapy 3/26/2020 Taxol (paclitaxel) Chemotherapy 4/16/2020 Taxotere (docetaxel) Hormonal Therapy 5/28/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/30/2020 Surgery 3/2/2021 Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 6/7/2021 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
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Sep 10, 2021 11:20AM - edited Sep 10, 2021 11:26AM by armom4

Pancreatic cancer screening guidelines:


Diagnosed age 35. ATM gene mutation.Severe reaction to Taxol and Taxotere. Just Tamoxifen now Dx 1/3/2020, DCIS/IDC, Right, 2cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 2/10/2020 Lymph node removal; Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left) Targeted Therapy 3/26/2020 Herceptin (trastuzumab) Chemotherapy 3/26/2020 Taxol (paclitaxel) Chemotherapy 4/16/2020 Taxotere (docetaxel) Hormonal Therapy 5/28/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/30/2020 Surgery 3/2/2021 Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 6/7/2021 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
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Sep 10, 2021 05:25PM cbk wrote:

Thank you ARMom!

Honestly I wouldn’t tolerate an MRI without sedation so perhaps why my oncologist going straight to endoscopy.

Thank you for you input and wish you continued health and happiness!


Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/10/2017 Mastectomy; Mastectomy (Left); Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 7/21/2017 AC + T (Taxol) Surgery 1/24/2018 Hormonal Therapy 2/17/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (Right): Latissimus dorsi flap, Silicone implant Surgery 9/27/2018 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 4/3/2019 Reconstruction (Left): Nipple reconstruction, Silicone implant; Reconstruction (Right): Nipple reconstruction, Silicone implant

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