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Topic: Diagnosed and scared

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Jun 16, 2017 08:50AM

Elfmcg wrote:

I've just had results of my core biopsy.

It's stage 1 grade 3, invasive ductal carcinoma, hormone receptor negative and her2 positive.

Breast surgeon said he is happy that it's confined to one area of breast and us on nodes look clear, so I won't need any more tests but am booked straight in for sentinel node biopsy and segmental excision.

My question is, if on examination, it has spread to some nodes after biopsy, does this mean dire things?

Thanks

Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 8/21/2017 AC + T (Taxol) Radiation Therapy Breast
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Jun 16, 2017 09:58AM Tpralph wrote:

are u asking if the biopsy can cause the spread to the nodes?

Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/18/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol)
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Jun 16, 2017 10:01AM - edited Jun 16, 2017 10:03AM by Sjacobs146

Having positive nodes does not necessarily mean "dire things", you will know a lot more after the lumpectomy and the sentinel node biopsy. I had a positive node, and feeling great after completing treatment over 2 years ago. This is the most difficult part of the process, waiting for information and a treatment plan. It's totally normal to be anxious, Trey to keep busy and distract yourself with positive activites

Dx 8/26/2014, IDC, Right, 1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 9/23/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/24/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/26/2015 Breast Hormonal Therapy 4/17/2015 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 16, 2017 10:20AM claireinaz wrote:

As you can see, I had several + nodes and am still here. Nodes are, from what I've read on these boards, can actuallybe the first line of defense against further spread, so it doesn't necessarily mean that + nodes mean death. Even distant metastases, moving you from Stage I to a higher stage, can be stopped in their tracks with proper treatment.

Take heart. Your surgeon told you that your nodes look clear, so go with that for now. You're going to be fine-promise. Hugs~

Claire in AZ

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Jun 17, 2017 03:10AM Rufhewn wrote:

It all sounds good (if you have to get BC cancer). To answer your question, if by some unexpected chance the surgery shows it in a node or two, it may move you to stage 2, still early stage, treatable and very possibility curable. Her2 has very effective drugs and my oncologist actually said in this day and age, he prefers her2 positive due to the drugs available to treat it. Won't be an easy path but you will get through it. If your oncologist doesn't prescribe herception and ideally perjeta, get a second opinion. Keep us posted. Pam

Dx 6/20/2014, IDC, Right, 5cm, Stage IIA, Grade 2, ER+/PR-, HER2+ Targeted Therapy 7/9/2014 Herceptin (trastuzumab) Chemotherapy 7/9/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/10/2014 Perjeta (pertuzumab) Hormonal Therapy 12/31/2014 Arimidex (anastrozole) Radiation Therapy 1/26/2015 Whole-breast: Breast Hormonal Therapy Surgery Lumpectomy
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Jun 17, 2017 08:43AM Elfmcg wrote:

thanks ladies, all sounds good, and Ill take whatever I have to, just the unknowns are scary as hell.


Can anyone tell me as I'm hormone receptor negative and her2+, is it safe for me to continue the combined pill?

Thanks in advance

Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 8/21/2017 AC + T (Taxol) Radiation Therapy Breast
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Jun 17, 2017 09:25AM claireinaz wrote:

Elfmcg,

Since you're asking about an rx'd med, you should pose that question to your own doctor: call them this Monday and ask, and don't let their office staff ignore your request. Giving medical advice to stop a prescribed med would probably be irresponsible in a discussion thread.

Good luck! You'll be okay.

Claire in AZ

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Jun 17, 2017 01:23PM Elfmcg wrote:

yes you're right, I've three left in the pack I'm on, and I'll ask my doctor on Monday, thanks for all the info

Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 8/21/2017 AC + T (Taxol) Radiation Therapy Breast
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Jun 18, 2017 09:17PM msphil wrote:

hello sweetie its ok to be nervous we have been there once plan in place anxiety will slow down I was diagnosed while making wedding plans I found lump idc stage2 0\3nodes Lmast 3 no chemo before n after surgery got married. Then rads7wks 5days a wk 5 yrs on tamoxifen. I am now a 23yr Survivor Praise God. God Bless Us All hang in there keep HOPE. msphil

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Jun 18, 2017 09:21PM Tappermom383 wrote:

Congratulations, msphil, on 23 years! And thank you for still chiming in here. It's so helpful to us newbies to hear from the veterans. What an ordeal you had at such a happy time of your life.

You're right about getting the plan in place - that makes all the difference. I felt as though I was moving forward rather than being stuck in quicksand.

Best of luck to you, elfmcg. I'm glad you found this forum. The ladies here are so helpful.

MJ

Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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Jun 19, 2017 08:16AM dtad wrote:

Rufhewn....sorry to disagree but I think we have to be careful about using the word cure when referring to BC. The term they now use is NED, no evidence of disease. The reason being is that unfortunately it can come back at anytime. Good example is Olivis Newton John. She had a recurrence after 25 years. That being said, many of us are NED for many years if not the rest of or lives! Good luck to all.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 19, 2017 09:58AM MinusTwo wrote:

I would not continue birth control pills unless you have the considered approval of your oncologist.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 19, 2017 10:14AM pupmom wrote:

All docs told me, based on scans, that my nodes were clear before surgery. Yet, after surgery it was found that I had 2 positive micromet nodes. 5 years later I'm still kicking and living large! I think you will be just fine!

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Jun 19, 2017 10:38AM Beatmon wrote:

My oncologist still doesn't allow me any estrogen and I'm 65.....which is orobably overkill, but why take the chance in my case....I certainly don't need BC pills. But some estrogen in my vag area would be great. I would wait until I talk to oncologist rather than surgeon. Remember surgeons are not oncologist...and oncologists don't do surgery.

You will be on a treatment plan to treat the her2

Dx 7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/9/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 12/1/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2014 Reconstruction (left); Reconstruction (right) Dx 8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/27/2014 Herceptin (trastuzumab) Targeted Therapy 8/27/2014 Perjeta (pertuzumab) Chemotherapy 8/27/2014 Taxotere (docetaxel)
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Jun 19, 2017 01:34PM MTwoman wrote:

I had triple negative DCIS and I haven't ever found 1 doc that would consider giving me anything resembling estrogen.

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jun 19, 2017 02:13PM - edited Jun 22, 2017 12:26PM by Kicks

@As dtad said - according to all I have seen (all my Drs included), there is no 'cure' for BC at this time. The best we get is NED (No Evidence of Disease) now.

If also needs to be remembered that not all Breast Cancer is the same. There is DCIS (Ductal Carcinoma In Situ), IDC (Invasive/Infiltrating Ductal Carcinoma), ILC (Invasive/Infiltrating Lobular Carcinoma) and IBC (Inflammatory Breast Cancer). All are VERY different. There is also the Stage, Grade, ER/PR and HER2 status which comes into play with TX and prognosis. Thus - with BC there is no "One Size Fits All'.

Edited for spelling


Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes
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Jun 19, 2017 04:19PM Elfmcg wrote:

thanks ladies, I'll definitely stop the pill

Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 8/21/2017 AC + T (Taxol) Radiation Therapy Breast
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Jun 19, 2017 10:49PM NotVeryBrave wrote:

With HER2+ there's a good chance that chemo with Herceptin and possibly Perjeta will be recommended before surgery. Hopefully you have plans to meet with a medical oncologist and radiation oncologist to get their opinions on risk and benefit for various treatments.

Good luck!


TCHP x 6 rounds - Complete Pathological Response! Still have to finish the year of Herceptin ... Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 12/19/2016 Perjeta (pertuzumab) Surgery 5/9/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 20, 2017 10:12PM MinusTwo wrote:

Yes, it would be good if the recommend neo-adjuvant. Please do go into My Profile and fill our your diagnosis & treatment to date. Good luck

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 21, 2017 01:39AM - edited Jun 21, 2017 01:41AM by Rufhewn

Hi dtad, thanks for the clarification. I have seen the word cured being used by respected medical professionals and it's my understanding many women are cured but unfortunately no one individual will ever know for sure whether or not she iscured. So I don't disagree that NED may be a better way to describe it. Pam

Dx 6/20/2014, IDC, Right, 5cm, Stage IIA, Grade 2, ER+/PR-, HER2+ Targeted Therapy 7/9/2014 Herceptin (trastuzumab) Chemotherapy 7/9/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/10/2014 Perjeta (pertuzumab) Hormonal Therapy 12/31/2014 Arimidex (anastrozole) Radiation Therapy 1/26/2015 Whole-breast: Breast Hormonal Therapy Surgery Lumpectomy
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Jun 21, 2017 01:42AM - edited Jun 21, 2017 01:43AM by Artista928

Good post dtad. Makes my skin crawl when MOs who should know better than anyone tell their pts that you could even be cured. No. There is no cure. We can only hope we are NED and when our time comes ideally we go peacefully in our sleep. If my MO ever mentioned the word "cure" to me even if I was DCIS I'd change MOs.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Jun 21, 2017 02:17PM Kicks wrote:

None of my Drs ever used the word 'cured' or 'cure' other than to say this is no such thing as a 'cure' for BC at this time. My Surgeon did say that he had gotten all he could find out and had good margins thanks to the neoadjuvant A/C. I guess some might have taken that to mean "I was cured" but that would not be true and not at all what the Surgeon said in actuality.

I'm not concerned that I am not 'cured' - I'm happy to be NED (No Evidence of Disease) for 7+ yrs. I'm healthy, happy and living/loving life to the utmost I can every moment I'm granted. I refuse to choose to dwell in Negativityland.

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes
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Jun 21, 2017 04:26PM MinusTwo wrote:

Since that's the only option at this point in BC research, I too am happy with NED. I would also run from a doc who starts talking about 'cured'. It may be just semantics, but I think it's REALLY important.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 21, 2017 04:51PM SummerAngel wrote:

My MO told me he was confident I could be cured. He's a great doctor and I have no problem with him using the word, knowing that there are no guarantees. I really don't understand the animosity towards the word, personally.

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 4/3/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 6/1/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right Surgery 6/1/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/27/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/3/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Jun 21, 2017 06:06PM kira1234 wrote:

Summer angel how long after diagnosis are we cured then?

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Jun 21, 2017 06:17PM MTwoman wrote:

kira, that's the point. We're never "cured". They remove all evidence of disease, and then use radiation (to decrease risk of local recurrence) and chemo (to decrease risk of cells traveling to other sites to set up shop) and anti-hormone meds to shut off the food chain. They try to get rid of all evidence of disease, but it can return. We do whatever we can to prevent it, but it's possible. Summer angel was just saying that it doesn't upset her for someone to use that word, as it does other posters above.

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jun 21, 2017 06:18PM pupmom wrote:

Summer Angel, I think we all just want realistic expectations. My RO said that to me once and I was over the moon. Then I began reading about the reality of the situation. I'm almost 6 years out, so I kind of feel "cured," but I know it can always rear its ugly head again. That's probably the reason I've agreed to 10 years on tamoxifen.

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Jun 21, 2017 06:38PM kira1234 wrote:

That's exactly my point popmom and mtwoman I was 7 years out with an excellent prognosis yet it came back. One has to always be aware.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/7/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/2/2010 Hormonal Therapy 10/4/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Jun 21, 2017 11:27PM MinusTwo wrote:

So can we agree on NED? And try to eridicate the use of the word "cured"? At least until cancer research comes up with something much useful.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 22, 2017 01:11AM Kicks wrote:

MTwoman - ''They remove all evidence of disease. and then use radiation and Chemo.". (Shortened quote)

You need to educate yourself on more than just your personal experiences with your DCIS.

For many of us, it was not as simple as ' getting it out and then radiation and then Chemo". I can only speak for myself - it was neoadjuvant A/C, UMX, adjuvant Taxol then rads and estrogen blockers (not anti hormone meds.)

NO ONE k ones what tomorrow will bring!


Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes
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Jun 22, 2017 09:06AM dtad wrote:

Summer Angel....absolutely no animosity against the word cure. I just think its misleading, especially to the general public. There is NO cure for BC and we need more research to find one! You have the right to think whatever you want about your own prognosis. Good luck to all navigating this disease.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant

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