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All TopicsForum: Just Diagnosed → Topic: Diagnosed Today - Help with Report, Please?!

Topic: Diagnosed Today - Help with Report, Please?!

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Nov 8, 2017 05:33PM

DanceSmartly wrote:

Received my biopsy diagnosis today and looks like I've joined the club:

"Diagnosis

A. Left breast, 3 o'clock, needle core biopsies:

- Invasive ductal carcinoma, histologic grade 1.

Comment: There is a lack of myoepithelial cells (negative p63) around infiltrating ducts, consistent invasive carcinoma. The tumor shows following morphology: tubular score 1, nuclear score 2 and mitotic score 1. Overall histologic grade is 1 out of 3. Ductal carcinoma in situ (DCIS), nuclear grade 2. Focal calcification and necrosis is identified with DCIS. Negative lymphovascular invasion. Biomarkers have been requested on representative tissue."

My PCP interpreted the above to mean I have just DCIS, but I'm reading it as I have both IDC and DCIS and will therefore be treated for IDC as this is the highest risk cancer? Your thoughts?

I understand that IDC histologic grade 1 indicates a less aggressive cancer. I understand that DCIS nuclear grade 2 is an intermediate grade, but thought necrosis indicated a fast-growing tumor? I understand that negative LVI is a good indication too. I have no idea what focal calcification and a request for biomarkers mean?

Thanks in advance for any assistance you can provide!

Dx 11/8/2017, DCIS, Left, Stage 0, Grade 2 Dx 11/8/2017, IDC, Left, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC)
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Nov 8, 2017 05:36PM DanceSmartly wrote:

Sorry, one more thing: I was expecting to find out whether I was hormone and/or protein receptor positive after the biopsy but that information was not provided. I thought those tests were normally done with core needle biopsies?

Dx 11/8/2017, DCIS, Left, Stage 0, Grade 2 Dx 11/8/2017, IDC, Left, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC)
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Nov 8, 2017 06:03PM MTwoman wrote:

Dance Smartly, I am so very sorry that you've had to join our club. Based on what you copied from your report, it also sounds to me as if you have IDC and DCIS (which isn't uncommon). The IDC being grade 1 is, as you said, a less aggressive cell. For the DCIS, grades 2 and 3 can have necrosis. For some attributes of DCIS, I've seen grades 1 and 2 grouped together and for others I've seen 2 and 3 grouped together. What you need to know is that your treatment will be driven by the IDC, not the DCIS (except for the surgical option, all of the DCIS will be removed) as what is considered appropriate treatment for your IDC will certainly be enough for the DCIS portion. Many times you won't get your receptor status right away, that may come in another day or so. My HER2 info actually came in a third addendum. No focal calcifications is part of the description of what they found, and I'm not sure that it is necessarily a good or bad prognostic indicator (although if anyone else has good info on this, I'm sure they'll chime in). The "biomarkers" that they've sent out for are things like Ki67 and HER2 (http://erc.endocrinology-journals.org/content/17/4/R245.full) Please let us know how we can help you!


Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Nov 8, 2017 06:25PM DanceSmartly wrote:

Thanks so much, MTwoman, re: the explanation and link for biomarkers!

It's weird. Even though I now KNOW I have cancer, I feel less anxious today than I have since my biopsy a week ago. I guess after being given a BIRADs 5 rating I was pretty certain I was going to have cancer anyway, and given my age and the fact my last mammogram was completely clear was expecting it to be Grade 3.

I have already been referred to a surgeon and will meet him tomorrow; have been told to expect surgery within next 2 weeks, 3 weeks at most. Though the last week didn't feel like it, seems like they are moving very quickly.

Am thinking I should ask my surgeon about a MRI, given my breast density rating is 50-75%? My PCP seems to think I will have a lumpectomy, and I am a bit nervous that another tumor may be hiding somewhere?

Dx 11/8/2017, DCIS, Left, Stage 0, Grade 2 Dx 11/8/2017, IDC, Left, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC)
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Nov 8, 2017 06:32PM Georgia1 wrote:

Just posting to sympathize and agree with the feedback others have given you. When I saw my surgeon she was super vigilant and recommended an MRI because of a second suspicious spot, so ask about that at your appointment. Personally, I was so glad to have a "3D" mammogram, an ultrasound and an MRI pre-surgery: I wanted all the info. I could possible have. You're right that ER, PR, and HER status are important. They can come in an addendum so keep asking for that. Best of luck, It's a shock initially but you will beat this thing.


Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/26/2017 Whole-breast: Breast
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Nov 8, 2017 07:18PM windingshores wrote:

Do you have access to the patient portal where test results are posted online? That helped me a lot.

Sorry you have breast cancer (and yes it sounds like IDC as well as DCIS) but grade 1 is good news as is no :VI/

If you are positive for hormone sensitive cancer and negative for Her2, you will have an Oncotype test done that will help determine treatment.


Dx 2/2015, DCIS/ILC/IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery Lymph node removal; Mastectomy: Right Surgery Mastectomy: Left; Prophylactic mastectomy: Left Hormonal Therapy
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Nov 8, 2017 07:35PM DanceSmartly wrote:

Unfortunately, Alberta Health is a bit behind the times and I do not have online access to my test results (really hope my surgeon brings them up and shows them to me tomorrow; all I have so far are photocopies of one-page written reports from the radiologist and the pathologist that my PCP received).

Nonetheless, I am grateful I live in Canada and only have to worry about the next step and not health insurance at this point!

Thanks for all the encouragement!

Dx 11/8/2017, DCIS, Left, Stage 0, Grade 2 Dx 11/8/2017, IDC, Left, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC)
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Nov 8, 2017 08:45PM - edited Nov 8, 2017 08:48PM by GreenEyes81

Hi DanceSmarly, welcome. I also knew before I got the news. I remember standing in the dressing room getting changed for the first mammogram and just looked at the wall and said "My life just changed forever." It was all gut, no lump was felt, no real symtoms, ect. Had a random shooting pain on the "good" side. lol It was 3 days later when I got the call. I cried for a min, then went into full action. I had already cried enough durning the waiting. My Her2 came back about a week later.

Personally, I think everyone should have an MRI before a knife touches them. My 3d mammogram found 1 lump, the MRI found 2 more AND the largest one. Still baffles me the largest one was not seen by the mammogram. I went from lumpectomy as an option to a full mx due to the lumps being spread all over. I also had 2 doctors tell me that nothing would have been found had I not had the 3d mammogram.

The oncotype DX test someone mentioned is only for early stage cancers and I beleive it is not a "normal" thing in Canada. However, be sure to ask and get details. It is a great test if you fall in the catagory to have accurate results.

Monday I had a annual check up with my OB, Tuesday I had a mammo/us, Wednesday I had biopsy's and on Friday I had cancer. 19 days later I had a mastectomy. In between all that I had an MRI and had several phones calls with my surgen. A navigator started checking on me and getting me all the info I needed. Some people see their MO/RO/and PS before hand. My surgeon refuses to worry about reconstruction and only focuses on saving your life. It seems most doctors are more flexable though.

Good luck at your appointment, ask lots of questions and make sure you know how to reach the dotor later. You WILL think of more questions once you leave. :)

PS....I also had a mix of DCIS/IDC....my doctor didn't even care about the DCIS. I wouldn't even give it a 2nd thought. :) Plan to deal with the IDC.

Dx 7/21/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 8/9/2017 Lymph node removal: Sentinel; Mastectomy: Right
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Nov 8, 2017 09:52PM CA0817 wrote:

My MO at the Tom Baker got my Prosigna test which is similar to Oncotype tes

Dx 8/18/2017, DCIS/IDC, Left, Stage IIB, Grade 2, ER+/PR+, HER2-
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Nov 8, 2017 10:11PM - edited Nov 8, 2017 10:18PM by sas-schatzi

Sorry DanceS, It all just sucks right now, but I read/hear strong things in your writing. Hugs

Some practical things to work on. Be careful about the recommendation on the flu shot. Bad news coming out about it what it's mixed in. I will be skipping it from now on. May even go back in now and change that about flu in the topic box.

https://community.breastcancer.org/forum/5/topics/748296?page=1

This link is related to surgery. The topic box explains it's use.

https://community.breastcancer.org/forum/73/topics/843381?page=1#idx_23

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 9, 2017 05:38AM NotVeryBrave wrote:

I would think that an MRI would be helpful before planning any surgery. You wouldn't want to be surprised later and confirmation is just helpful mentally as well.

I have a "patient portal" with some of my providers. Funny thing is - they don't put "sensitive" info in there. So things like pathology for cancer are not listed!

I advise everyone with a cancer diagnosis to see an MO as early as possible, definitely before committing to surgery. For some cancers (like mine) - chemo is preferred to be given first.


TCHP x 6 rounds - Complete Pathological Response! Still have to finish the year of Herceptin ... Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 12/19/2016 Perjeta (pertuzumab) Surgery 5/9/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/9/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 9, 2017 06:42AM dtad wrote:

Hi everyone...IMO a breast MRI should be mandatory before any treatment decisions are made. My doc at a major NYC university hospital routinely does them preoperatively. In my case a second tumor was found that did not show up on either a 3D mammoth or U/S. I went from having a lumpectomy to having a BMX after getting the results of the MRI. Good luck to all.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 9, 2017 11:29AM Outfield wrote:

Sorry you've gotten this news.

I hope your appointment today goes well. Some folks above have mentioned tests like the Oncotype - it's premature to be thinking about those. They are used in early stage cancers to help guide treatment decisions, but they are not relevant for treatment decisions in other stages. You can't know what your stage is yet, so you don't know which direction you'll head on that decision tree. You've listed yourself as "1a," but the true staging is done at surgery. Everything before that is an estimate. Sometimes scans give a relatively accurate prediction of the surgical findings, but often they do not. Even MRI is far, far from perfect.

My surgery was 7 years ago, and my surgeon had a standard practice of getting a preoperative MRI. It ended up having no bearing on my treatment decisions back then (I wanted bilateral mastectomy), but if it were today I probably would have been referred for chemotherapy first (back in those days, it hadn't been proven yet that doing chemo before surgery was as good as doing it after!). NotVeryBrave had an interesting point. If your surgeon is truly a breast surgeon, he/she should likely works in an enmeshed way with the medical oncologists and should know when chemo first is an option or preferred. That's the ideal world - and where I am they would be talking to each other - but it may not be your world, so seeing a medical oncologist before surgery is something to keep in mind.

Good luck with all of this.

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Nov 9, 2017 09:24PM - edited Nov 9, 2017 09:27PM by DanceSmartly

Met with the surgeon today. Apparently hormone and protein receptor tests have to be done in Edmonton (I live in northern Alberta), so that's why the delay on those results from my biopsy. He said no MRI - his experience over the last 10 years is too many false positives and a lot of stress and unnecessary biopsies. Apparently MRI referrals for breast cancer are much more standard in the States than in Canada now? Don't know if true. Not sure how I feel about this given my breast tissue density rating of 50-75%. My husband and I are contemplating going to Mexico for thorough medical screening in the next few weeks; I am leaning toward paying to have it done for my peace of mind.

Surgeon said contours of the cancer feel quite defined. Lumpectomy w/ sentinel node biopsy scheduled for 07 December - four weeks away!

He echoed what many have said above in that my final treatment recommendation will depend upon the tumour pathology which may differ from my clinical diagnosis. However, because of my age he said I will almost certainly be referred for chemotherapy, then radiation, then hormone therapy (depending on the results of the biomarkers tests). Apparently this is the current Canadian protocol for premenopausal women with early stage breast cancer. I was a bit surprised at the order, as thought radiation would come first? He did say that if the tumour pathology qualified, Oncotype DX testing would be done.

He told me who my MO would likely be, but did not indicate I would have an appointment with her before my surgery. He also gave me the name of my Cancer Patient Navigator; I am going to phone her and see if she can help me meet with my MO prior to my surgery.

Thanks hugely to all of you for your insight and suggestions!

Dance

Dx 11/8/2017, DCIS, Left, Stage 0, Grade 2 Dx 11/8/2017, IDC, Left, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC)
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Nov 9, 2017 09:45PM GreenEyes81 wrote:

Glad to here a plan is coming together, for me this was the best part. lol If there is a "best" part. I wouldn't say an MRI in the states is "standard". In my expirence it depends on the doctor and your age. At 36, an MRI was my requirement when choosing a surgeon. I wasn't going to argue or fight for it, fortunatly the doctor I choose had me get the MRI before I even met him, we went over the result wich changed everything on my 2nd appointment. Are you able to get a 2nd opionion in Canada? Ya, MRI can be stresful. But whats worse, months later you find out you had more cancer lumps that are still growing in your body? I have seen more than one person in the situation on here and I would have been if I had not had an MRI.

Are you able to get genetic testing? This can be a huge insite when chooseing the best surgery for you. It takes several weeks to get the results back here.

Other than the MRI issue, it sounds like your doctor is on the "normal" path. Never heard of the age thing though, I am sure others with more expirence will chime in. :)

This really has nothing to do with cancer, but more out of curiosity. :) Why would consider Mexico???? I'm nervous just visiting for vacation let alone a serious medical issue. Maybe I am completly wrong...just was very surprised...and curious. :)

Dx 7/21/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 8/9/2017 Lymph node removal: Sentinel; Mastectomy: Right
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Nov 9, 2017 10:22PM DanceSmartly wrote:

Hi Greeneyes,

I asked about genetic testing. He said I wasn't a candidate because there is no history of breast cancer in my family (or female cancer period; Dad has prostate cancer). Closest relative with bc was my maternal grandfather's sister (my great-aunt).

The Mexico thing is a long story. My husband's family has a history with a doctor in Tijuana. Dr Castillo helped my husband's grandfather with prostrate cancer that had metastasized to his bones back in the mid-80's - he had 12 years after his initial Stage IV diagnosis. It's possible to get a number of tests that either require medical referral or are very expensive or require a very long wait in Canada done fairly quickly in Mexico. My husband's family has been going down there for a full blood workup, etc every ten years or so since his grandfather's experience. Now that I've been diganosed, he's adamant that I am going to see Dr. Castillo!

I do have experience with medical treatment in Tijuana - I opted to have my gastric sleeve surgery there a few years back. It was a five year wait in Canada and I didn't qualify under insurance. I had very good care while I was there (also very good results from the surgery).

This might seem silly but the news that made me feel the saddest today is that we will have to cancel our planned trip to New Zealand in March. I was so looking forward to that and feel bad that my family won't get to experience it because of me! The surgeon said this will be a nine-month journey assuming no complications.

Dance

Dx 11/8/2017, DCIS, Left, Stage 0, Grade 2 Dx 11/8/2017, IDC, Left, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC)
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Nov 9, 2017 10:28PM NotVeryBrave wrote:

I'm a big fan of second opinions - had them for BS and RO. If it's an option - it can make you feel more secure in the plan of treatment even if you like the original doctors. Sometimes you just "click" with someone else.

Yes - if chemo is warranted and planned to be given after surgery then it's usually done before the radiation.


TCHP x 6 rounds - Complete Pathological Response! Still have to finish the year of Herceptin ... Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 12/19/2016 Perjeta (pertuzumab) Surgery 5/9/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/9/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 9, 2017 10:40PM GreenEyes81 wrote:

Dr. Castillo sounds awesome! Sounds like a plan, it certainly couldn't hurt anything. I have read of people planing their treatmetns around a vacation. You never know, honestly it seems very early to completly rule it out. I went on a week vacation 2 weeks after my mastectomy, I will was still waiting to find out on chemo/rads. Granted, I didn't do anything. lol I was on vacation.

Agree with NotVeryBrave, 2nd opions are worth their wait in gold. Even if you end up chosing the first opinion. I don't know how agresive your cancer is, as much as we feel rushed....I'm not sure everyone should be so rushed. Mine was found VERY early, my sergon said if it had not been found for another 6 months, I would still have had the same treatments.

Hugs!

Dx 7/21/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 8/9/2017 Lymph node removal: Sentinel; Mastectomy: Right
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Nov 10, 2017 12:59PM sas-schatzi wrote:

Hmmmm, Canada's socialized medicine sucks. Hope it doesn't happen here. You really don't know if it's b/c of his experience or b/c of trying to get approval.

Sticking to the MRI encouragement. It could change your choice of surgery from lumpectomy to Mastectomy that's a huge choice. It could be a life choice b/c some errant bc is still nesting in your breast even and may not be sending off little metastatic cells now but could be any day. That sounds alarming and it is, sorry. But it's your life. In the USA it's getting rare to hear of a case where an MRI isn't done.

Canada's socialized medicine kills and disables people. I have lot's of Canadian relatives. The stories aren't good, just as you described. I'd be writing for an hour or more with the stories.

I, also, agree with 2nd opinions as many here have stated.

Take or send your research about MRI's and density and missed tumors to your doc.

Push him for the MRI

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 10, 2017 01:00PM sas-schatzi wrote:

dances, please, look at the link with the video on toradol. Seriously, very important.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 10, 2017 01:54PM GreenEyes81 wrote:

sas- were is this video on toradol? Sorry if I missed it somewhere!

Dx 7/21/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 8/9/2017 Lymph node removal: Sentinel; Mastectomy: Right
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Nov 10, 2017 02:22PM Sourisou wrote:

Hi DanceSmartly, here's another vote for the MRI; if you can, try to get a second opinion on this and push for one. I don't think it's necessarily a "Canadian thing" not to have access to it but more a doctor issue. I've personally never had any problem getting screening MRIs when I requested them - granted I do have prior radiation to the chest which puts me at higher risk, but I also know women around me who didn't have any history and still had access to them. Plus I know of many women in the States who had to fight with their doctors/insurance to get one (often without success). So it's more a matter of a doctor's way of thinking I guess.

And if you can, do get a Oncotype test. If you are stage 1A Grade 1, I think you need to know if chemo is needed in your case.

Hugs from across Canada :)

1999 Hodgkin Lymphoma survivor Dx 10/13/2017, DCIS, Left, 3cm, Stage 0, Grade 2, ER+/PR+ Surgery 10/31/2017 Mastectomy: Left; Reconstruction (left): Silicone implant
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Nov 10, 2017 02:58PM SummerAngel wrote:

I definitely recommend an Oncotype as well. Typically, Grade 1 tumors are low risk and not helped by chemo. I had two Grade 1 tumors and no chemo. A breast MRI is something that varies by doctor. I had one and it found my right-side tumor (which was actually 4 foci of cancer spread throughout the breast), but statistically it's not common to find additional cancer so many doctors don't recommend it.

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 4/3/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 6/1/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right Surgery 6/1/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/28/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/4/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Nov 10, 2017 03:47PM BarredOwl wrote:

Re the Oncotype, the OP noted: "He did say that if the tumour pathology qualified, Oncotype DX testing would be done."

She is located in Canada, and local guidelines define who qualifies for the test. These sometimes differ from our local practice.

In this case, more information is required to understand whether the Oncotype test is indicated or not. For example, at this time, hormone receptor status, HER2 status, and lymph node status--all of which affect formal eligibility-- are unknown.

Even in the USA, the OncotypeDX test for invasive disease is only used for certain hormone-receptor positive (ER+ and/or PR+), HER2-negative invasive tumors.

Both of the above criteria in bold font must be met: If the invasive tumor is hormone receptor-negative (ER-PR-) or if it is HER2-positive, then the test is not used.

Formal eligibility requirements from the commercial test provider (which may in some cases be broader than what local clinical consensus guidelines provide) are found here:

Genomic Health Formal Eligibility Requirements: http://www.oncotypeiq.com/en-US/breast-cancer/healthcare-professionals/oncotype-dx-breast-recurrence-score/is-your-patient-eligible

In connection with the question of whether to include adjuvant chemotherapy (in addition to endocrine therapy), the test is typically done on tissue from surgical pathology.

BarredOwl

Stage IA IDC, 9/2013 BMX. Right: IDC (1.5 mm, grade 2) with DCIS (5+ cm), 0/4 nodes, pN0. Left: DCIS (5+ cm), 0/1 node, pN0(i+).
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Nov 10, 2017 04:03PM ksusan wrote:

I thought I only had cancer in one breast, but the MRI correctly showed a more advanced cancer in the other. It did not appear on mammogram, and they could barely find it with ultrasound, even using the MRI results as a guide.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Nov 10, 2017 06:46PM Outfield wrote:

Dance,

Lots of suggestions here, but please keep this in mind: it's still premature for some of them to be formally considered. Barred Owl has given a lot of details about the Oncotype testing eligibility, and those criteria are not bad things or things that prevent women for whom the test would be of benefit from getting it. Those criteria limit the test to those for whom it is relevant. Same for chemo and hormonal treatment. It sounds like you understand that your surgeon is giving you an educated guess of what is likely based on general patterns, not a "treatment plan." This is a hard place to be, waiting and not-knowing.

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Nov 10, 2017 08:47PM sas-schatzi wrote:

Greeneyes Several of us spent the summer of 2015 doing research on Toradol . The link is a synopsis of that work. The topic box explains how the first half dozen boxes "work". then after that they are regular posts.

One of the incredibly interesting posts is by Techtonicshift. She had pre and post Cirulating Tumor Cell (CTC's) done before and after a subsequent surgery was done and showed she had no elevation after toradol was used. I thought that exciting. I wrote to my friend Dr Retsky from our summer of 15 research. He sent back that the research is supporting CTC's being done even before first biopsy. I thought Marvelous.

Anywhooses, the video is by a co-author of what's referred to as the Retsky study. You know there's many co-authors in the publish or perish world of science. I loved Dr V's presentation. My self I had to listen 3x's b/c I have a hearing loss. But that's just me. In the video when he refers to a brilliant young anesthiologist in Brussels. that's Dr Patrice Forget. I'm prejudiced. His work and recognition of a potential simple and < 10$ injection could lead to a decreace in recurrence may get him a Noble, but time will tell.

This link is related to surgery. The topic box explains it's use.

https://community.breastcancer.org/forum/73/topics/843381?page=1#idx_23

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 10, 2017 09:32PM GreenEyes81 wrote:

thanks! Checking it out.

Dx 7/21/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 8/9/2017 Lymph node removal: Sentinel; Mastectomy: Right
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Nov 14, 2017 12:37PM DanceSmartly wrote:

I am pursuing an MRI; huge thanks to all for your advice and personal experience anecdotes. If anyone has any quick links to studies re: the success of MRI's in finding additional cancers in dense breasts, would appreciate those!

I have also asked for electronic copies of my actual mammograms and ultrasounds; the diagnostic imaging department seemed very surprised and said no one has asked for those before. I find that difficult to believe? Anyone else in Canada get copies of their diagnostic images?

Sassy: I checked out toradol / ketorolac link. Fantastic video and very good information that I will be taking to my pre-op appointment on 27 Nov. A tremendous thank-you to you and all of the others who have invested so much time and effort in ensuring us newbies are aware of this work! I have had 2 surgeries since April 2015 (gastric sleeve and gallbladder removal); now wondering if they accelerated the appearance of my cancer? Will never know and too late to fix, but interesting to contemplate!

Dance


Dx 11/8/2017, DCIS, Left, Stage 0, Grade 2 Dx 11/8/2017, IDC, Left, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC)
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Nov 14, 2017 08:12PM sas-schatzi wrote:

Dances, glad you enjoyed Dr. V's video. I did too!. There are connecting links to Blocks and limiting opioid use, hope you see those too. Good Luck with getting the MRI.

I was one of those that a mammo was clean and the MRI found the BC. :)

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".

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