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Dec 14, 2018 08:49AM
Hi there, when you visit your doc, either take someone with you that you trust to take notes, or take notes on your own and ask them to slow down if you need them to as you write, or talk to you in a way you can understand. Ask them how to spell terms, etc. We are our own best health advocates, and no one cares more about our health than we do.
Docs are there for you--you hired them to care for you and get you well--so remember, you're the contractor and they are your staff, so to speak. You can share what they told you at each appt with us, and that will help us help you even more.
I understand your need for privacy; I didn't want people asking all kinds of questions that might make me worry or tell me horror stories, either. Chemo wasn't a walk in the park but it was doable and I didn't have any lasting effects from it. Radiation after chemo was actually so much better than chemo that I kind of embraced it, even though 5x a week for 6 weeks was a bit tedious. After the initial set up appt, the rads only took about 15 min or less.
Previous post about most people post that have bad experiences--it's true. We are looking for validation and information that our side effects and problems are also shared by others. Most women who have okay experiences don't need that, because we're feeling okay.
I had it all: lumpectomy, chemo, rads, BMX and reconstruction, and anti hormone drugs. I'm doing okay so far.
Claire in AZ
9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus