Posted on: Jun 1, 2019 12:13PM
Hi I am recently diagnosed with breast cancer and can use a friend. Diagnosed a week an half ago. Had surgery a few days ago. Realized something was up last summer when I began having electricity sensations in my breast. It started out of nowhere. I reached up to touch it as it occurred as it hurt quite a bit. That’s when I felt a lump for the first time. I waited a month or so to see my doctor because I had always was told that breast cancer doesn’t hurt. I figured it was maybe a cyst or something. My doctor appointment was in October. He felt three lumps and sent me for a diagnostic mammogram which was set for late November. After that I had a diagnostic ultrasound. I got a call from a breast surgeon in December saying I needed an mri because I had dense breasts and it created hard to see anything on the mammogram films. As for the ultrasound it showed nothing. My breast mri was late February. A few days later I got a call from the surgeon explaining that an enhancement was found on that mri. That I needed a biopsy and and ultrasound. My ultrasound was early April. It showed i needed a biopsy that should be Mri guided because it was a most accurate choice. The biopsy was in May. Then I received the news a week and a half ago that I have breast cancer and I had surgery two days ago. My diagnosis took nine months. If any lurkers are here, know that breast cancer can hurt. Not just cysts
Posts 1 - 30 (44 total)
Jun 1, 2019 12:25PM edj3 wrote:
Agree with Meow13, so sorry that you've joined us.
This is a great community and the website has lots of useful information. I found the more I learned, the more I felt in control of this crazy ride. So if you're wired that way too, you came to the right place.
Jun 1, 2019 12:26PM MountainMia wrote:
Star111, I'm so sorry for your long wait for answers. There are a lot of friends here, people who can help you understand what's going on with your treatment and recovery and offer encouragement along the way. There are a variety of comments threads, called "topics," that focus on various parts of the process. They're posted under "forums," such as the Just Diagnosed one you've used. Also note the left margin "All Topics" gives a listing that is sort of a big table of contents. The search function lets you look for keywords, and the list of abbreviations can be found on the blue button at the bottom on the left margin. Hopefully a moderator will stop by, too, since this is your first post.
Jun 1, 2019 12:50PM Star111 wrote:
thank you Meow, Edj and Mountain. I’m still recovering from surgery and I’m totally doped up on pain meds while reading this.
You ladies are comforting and helpful.
My diagnosis is idc size 2.7 cm with two random dcis focal tumours nearby surrounding it. My surgery was a lumpectomy with wide margins and sentinel node dissection and biopsy. I won’t know more on the histology until those results are back in 2-3 weeks. Here where I live the healthcare is a slow process although any important results came quickly. I am thinking positive that the nodes and margins are good. The surgeon told me that he removed a large plum size out of my breast to make sure he got it all. As a small breasted lady to begin with it seems like a lot. He said it’s high grade three so he acted fast. I guess the difference between the February mri and the May mri were substantial. Anyways I’m just glad they got it out. I know I need intense radiation for sure as he told me. I won’t know about other additional treatments until the pathology results are back. Look forward to hearing from you ladies and thank you for your replies.
Jun 1, 2019 01:03PM Wised wrote:
Hi Starr, I'm sorry you've been through so much! Hopefully the pathology report comes back quickly and with good results.
Jun 1, 2019 03:00PM Star111 wrote:
Hi Wised on your kind words. I’m sorry to see that you are struggling with this too. I will for sure let everyone know my report when it comes in.
Jun 2, 2019 07:00PM Meow13 wrote:
Your chances are very good. Remember it has been detected and you are taking care of it. Don't hestitate to get a prescription to help you through the anxiety. I took lorazepam for 2 months it helped me get through the worst, the unknown. This is year 8 for me no recurrence.
Jun 3, 2019 08:36AM dtad wrote:
Hi there. I agree with Meow13 that the beginning is the worst part of the journey. I also agree that if you think you need it, do not hesitate to ask for something to help with the anxiety temporarily. Thanks foe sharing that BC can hurt! I do think that there is a false way if thinking that if it hurts its not BC. Sorry it took you so long to get diagnosed. IMO MRIs are not done enough on women with dense breasts. Mammograms and ultrasounds are many times negative when MRIs are not. Please let us know if you have any questions. We are all here for you.
Jun 5, 2019 12:21AM Blue456 wrote:
Last week I had a routine mammogram and was told I had a suspicious cluster of calcifications. I had a biopsy yesterday and today was told I have DCIS. I don’t have any more specific information and have to make appointments to see a specialist. I feel overwhelmed reading information on these forums since this is so new and unexpected.
Jun 5, 2019 08:32AM edwards750 wrote:
Blue -we truly feel your pain about a BC DX. Whether expected or not it’s still a shock and hard to process at first.
I was not surprised by my DX but only because I had never been called back in to have another mammogram. The nurse said onebreast was larger than the other. I knew then it wasn’t going to end well and it didn’t. I had IDC, Stage 1b, Grade 1.
The good news is I’ll be 8 years out this August God willing.
You are truly in the worst part of the process. The shock and fear of the DX is enough to knock you for a loop but there are meds to help you with the anxiety and don’t be afraid to take them. A lot of us have.
It will get better once your treatments are scheduled. Fortunately it’s DCIS and not invasive. Make sure you go to a medical team you feel comfortable with.
We will help you all we can. We have all been there in various stages and treatments. This forum was and stil is a godsend for me and it will be your extra lifeline too.
Keep the faith and keep us posted. You can do this. We are all proof of that.
Jun 5, 2019 09:00AM edj3 wrote:
I think this part of the dx process is like a paint by numbers painting, and so far you have just the outlines and maybe one color that isn't used a lot in the painting. So it's nearly impossible to even figure out what's what, what things look like, etc.
And the rest of the posters here are right. We've walked or are walking this same path--you're not alone. No question is too minor or silly, and no fear is ridiculous.
Jun 5, 2019 06:09PM CarissaRae wrote:
Star, I am so sorry you are going through this. I am in the lurker stage, worried but not diagnosed, and I wanted to thank you for the information you provided in your post. I too had nothing show on my mammo or ultrasound, but have pain, thickening (doctor felt a lump) and blood discharge. I was waiting to get a call back from the BS office, and they were not returning my phone calls despite having already received the referral and having all imaging available. After reading about your story and the fact your lump did in fact hurt I had the courage to walk into the office and state I was done waiting for a phone call and wanted to schedule my appointment right then. It took a couple minutes but the front desk went to the back and then came out stating I was being scheduled for this Friday morning per the doctors approval. If I had not read what you had to say I would still be waiting for a phone call. So thank you for thinking of the rest of us who are just in the worried stage while you are in the middle of recovering, it truly means a lot. I'll be following and hoping for you to get good Path reports.
Again thank you very much,
Jun 6, 2019 02:47AM Star111 wrote:
It is 3 in the morning and I’m unable to sleep. So much so I decided to go in this forum for a bit when I read your reply. You are very welcome and I am here and understand exactly where you are in this journey. Yes the reason I posted originally was to let others know that BC can hurt. Then also have support as I go through this BC journey. Hugs so much! The not knowing was the worst. Also, finding out was really bad too. Like shocked bad. For me now it’s recovering from my surgery last week. Then the wait for intensive radiation treatments and hormone therapy. I’ll know more on the chemo once I get the results of my nodes and margins back. I’m going through a lot of physical pain from surgery and haven’t been online much since this post. Emotions are off the clock. But my main goal in all this is educating others so they know that breast cancer can hurt. That we know our bodies and our bodies know us. They communicate with us. Mine did. Thank you so much for your positive thoughts for me. I will keep you and everyone updated I promise.
Jun 6, 2019 06:52AM MexicoHeather wrote:
Hi Blue 456: I am sorry that we are meeting under these circumstances. It's really shocking to start the process. I know that I was caught off guard by it all. I had dense breasts that were hard to mammogram - just look like a tiny snow globe. I was diagnosed at 49 and it didn't run in the family. As Star stated so well, sometimes things roll out more slowly than we want them to. If you can, ask the radiologist who is the best surgeon. When other doctors have seen my scar, they say, "Wow! She was a really careful surgeon and this scar is beautiful." Also the level of radiation that they gave me five months later smoothed out the scar. I don't know if that happens with DCIS - level radiation treatment, but you could ask.
One thing I did, sort of as a coping thing, was to get some adult coloring design pages. I would color a little bit, think of a question, and then write down the question to ask or look up later. Somehow it seemed to help.
Jun 6, 2019 03:56PM countdooku wrote:
Sorry that you have to be here. I just started with this breast cancer thing recently myself, so I totally understand the scary roller coaster of emotions. Hang in there!
Jun 7, 2019 11:49AM bluepearl wrote:
Star111: So sorry you had to find us, but also a good thing you did. Yes, my second breast cancer also hurt..went right up to my armpit although the cancer was 8mm and hadn't spread to lymph nodes. You just need one nerve for it to press against. because ultrasound found "nothing" you probably have very early breast cancer so hang in there, as it is very treatable and suvivorable. (((HUGS)))) Your emotions are 110% normal.
Jun 7, 2019 03:13PM msphil wrote:
hello sweetie glad you found us here for encouragement I found the lump in shower as I was making wedding plans had my cry decided to fight with my faith and Lots of Hope. This is for Inspiration to all those going thru. I got thru it all Praise God I am This yr a 25 yr Survivor. Hope and Positive thinking helped me. msphil idc stage2 0\3 nod2 3mo chemo before and after Lmast got married then 7wks rads and 5yrs on Tamoxifen.
Jun 9, 2019 08:09AM Star111 wrote:
hi Blue pearl
Sorry for the late reply. The first ultrasound found nothing. The second ultrasound found the cancer. The first ultrasound focused on a different area. It was a young radiologist that didn’t see the correct spot. That was December and the second ultrasound found the cancer but not until after the mri in February had located it. The second ultrasound was in April. My mri guided biopsy was in May and less than a week later I was in the surgeons office discussing everything. Mine was a large 2.7 at the 2pm position in February and after my lumpectomy I was told he had to remove the size of a large plum. I’m assuming this is to get clear margins. Plus some sentinel nodes too. My pathology results will be back in about a week or so. I feel it’s early like stage 1 or 2 . I know the grade as he told me it’s an aggressive grade 3. I will know the histology in the next week or so. The crazy thing is, I have really small breasts and a large plum is a lot because of this. He said he was surprised when he went in there and saw what he had to take out. I’m hoping because of it though the margins end up clear.
Dear MsPhil- hugs sooo much that you had to experience this while getting ready for your wedding. My heart goes out to you. When I found my lump last August I would never had guessed it was breast cancer. Where it took so long in between tests I didn’t worry and thought no rush is good news. We can never be too careful I guess. Lesson learned. They found out I had cancer in May and a week and half later I was being operated. If they had if done this last year, things could have been so much easier for sure!
Jun 9, 2019 08:46PM - edited Jun 9, 2019 09:42PM by InVirginia2019
I was just diagnosed on Friday 6/7/2019, very overwhelming for sure. Wishing you all the best.
As I was reading through some of the replies, my story doesn't seem to be so different from these other amazing ladies. I have never been one to do self breast exams, my breasts (as small as they are) have always been dens, I could never tell what I was looking for. I have been very consistent with yearly check-ups and mammograms. We moved to a new city a year and a half ago and I thought I found a good PCP. She did everything except the female checkups, but did have me go for mammograms. In April of this year, I decided while in the shower to try and do an exam, that is when I felt what was much different than I had felt before. I had my regular follow-up on May 16th, told my pcp that I thought I felt a lump on my right breast, her reply was, "I'll send you for a mammogram" I was actually due in January and forgot to make an appointment.
Mammogram was May 20th, I received a call two days later telling me that I needed to come back in for another mammogram and an ultrasound, this was May 24th, after the ultrasound was completed she asked me to hang tight till the radiologist could take a look, he came in and told me that he would like to schedule a biopsy, this was done on June 4th, and then my results June 7th, which brings me to finding this site.
I walked into the office with my husband convinced that it was going to be calcium or something so simple. I was in shock when he looked at me and said he had bad news.
DX: 10 o'clock Right, infiltrating ductal carcinoma - Stage 1, the HER2 results were not in on Friday, we will get those results Tuesday. There are a lot of notes that go with the DX, talking about Ki-67, ER, PR. I am sure that Tuesday I will be more over whelmed and emotional.
Jun 10, 2019 12:42AM BuckeyeLady49 wrote:
Hello Blue -
My DX was the result of a routine Mammo as well and your feelings are normal for sure. You are in uncharted territory and it's frightening and overwhelming. I of course, don't know your situation, but my journey after DX was made a whole lot easier through the Breast Cancer Center that is associated with my local hospital. They made recommendations for surgeon, RO, MO and took care of making all my initial appointments. At the time it felt like a roller coaster that I wanted to get off, but was very grateful for their assistance, once I had a chance to digest it all. Ask your PCP or check your area for a Breast Cancer Center. They are the 'subject matter experts' and can offer you information and comfort. Don't be afraid to ask questions. Everyone will want to help you.
Jun 10, 2019 08:36AM Moderators wrote:
Hi ladies! We wanted to send a warm welcome to the newbies here. We know the beginning is very hard, and there's so much fear and uncertainty right now, but it will get better! Besides the wonderful support and advice shared from other members here, you may want to check out the information we have compiled here: Resources for the Newly Diagnosed, a section that will help you understand pathology reports, and learn more on treatment options, questions to ask your doctors, etc.
We hope this helps! Please keep us posted on how everything is going.
Jun 11, 2019 05:00PM Star111 wrote:
Hi Kim (invirginia) ! I’m really sorry you are going through this. The emotions are so overwhelming I found too. I’m glad you got checked quick and your husband is there and helpful.
Your healthcare seems so good! To be able to get hormone receptor tests back so soon. I get those back in the next week or so. I’m in Canada so things are a bit different in the health care system.
I’m thinking of you and how you are. Do you know when you have surgery or do you know your treatment plan yet?
Jun 11, 2019 05:14PM Star111 wrote:
Thank you for the informative link and warm welcome. I appreciate it so very much. I’m in a rural location and I need to live and do radiation and other therapy in a city that’s 3.5 hours away. So I have to leave my two teenage sons home alone to run the household by themselves while I’m away living there in a lodge for cancer patients.It’s very nerve wrecking to say the least. As a single parent it’s very stressful and scary all at once. Your informative links are valuable.
Thank you so much.
Jun 11, 2019 05:15PM summersday wrote:
I just wanted to say that I was diagnosed a few weeks ago having gone to the doctors with random stabbing breast pain. She examined me and felt nothing. Even though she was sure it was just hormonal she did take me seriously and sent me for a mammogram (which here in the UK isn't routine until 50 - I'm 41) even though I had no lump or skin changes. I was first examined by a breast nurse who again couldn't find anything. But she agreed that a mammogram would be a good idea and sure enough, they found a lump, deep in the breast where it couldn't be felt. The cancer had spread to a few of my lymph nodes too although they're not swollen at all. The GP, the surgeon and the oncologist all tell me that the pain has nothing to do with the tumour but I can't see how that can be true given that the pain was in the exact same place.
This is definitely the worst bit. The waiting and the unknown. Once you have a plan of attack, you'll feel much better. Sending you big hugs (and a nice cup of tea!) from across the pond!
Jun 11, 2019 07:33PM Star111 wrote:
Oh wow our symptoms are so eerily similar. I was told that yes it can indeed cause stabbing pains. Has to do with the nerves and the ducts or even perhaps both. It’s not good for people to not take the pains seriously because of the myth that breast cancer doesn’t hurt. I know some women have pain. Summersday I’m thinking of you and how you fair in this. My in detail results of my wide margins and nodes come back next week. I’ll know everything then. Right now I know it’s grade 3 and it was size 2.7 cm before wide excision. He had to remove the size of a large plum. If the margins aren’t clear then the 2.7 is incorrect. He was surprised when he got in there he said. So I’m waiting to find out. I won’t know the stage until then either because a stage can change with one or two nodes. So I’m waiting to see.
Thanks from way over here on the other side of that pond!
Jun 13, 2019 03:09PM Sportymom wrote:
Hi InVirginia2 and Star111,
I too was diagnosed this past Friday from my biopsy; IDC, ~7mm, intermediate grade, and it has micropappillary features (which is apparently rare and very aggressive in the literature). My world shattered this week as my husband and young boys took me away this past weekend to get my mind off of it. Now that I am back I find myself in such a dark place, overwhelmed, terrified, and beyond sad. I find my mind racing to the places it shouldn't go but it is so hard to redirect it.
My surgeon here in Ottawa was wonderful, personable, friendly, and confident. I tend to be suspicious so am wondering if that is all a front as I want to believe him but am scared to. He was not overly worried about the micropapillary piece as he said there is very little difference in overall survival between having those and someone with IDC at the same stage and grade; however, it does have a higher chance of loco-regional recurrence. All this to say, we did have a good laugh when I kept having to place his fingers in the right spot to find it. He cannot believe I actually found the lump myself.
I too have dense breasts so am heading for a breast MRI tonight after my hockey game. This waiting game is terrible. I shake when I go to bed, when I wake up, and periodically throughout the day. I try to work but am having a really hard time concentrating. This is so very scary and overwhelming. Coming from a control freak, not having control over what happens at the molecular level in my body scares me.
I should also mention that I am 45, exercise, and eat well (although I will be eating a heck of a lot better now). The shock of this to my system has also been hard; I am experiencing GI issues and have lost a lot of my appetite to the anxiety.
Thought I would send my good thoughts to everyone here and hope you will also welcome me.
Jun 13, 2019 04:12PM summersday wrote:
You're reaction is identical to mine when I heard the news and quite normal, I might add. I started having panic attacks, I couldn't sleep and stopped eating properly. Once of the most upsetting things was that I just couldn't be around my children. Just seeing them made me want to cry. At the hospital, one of the Macmillan nurses saw the state I was in and, putting her hand on my shoulder, said to me kindly that perhaps I should speak to my doctor about finding some medication that would help. She stressed that I wouldn't be taking it forever but it would help me cope of the next few weeks.
So I spoke to my GP and she agreed that I should try a low dose antidepressant. Well I did and the difference was incredible. I could sleep and my appetite came back. I was able to go back to work and talk to people about what was happening to me without crying. Right now, I just need to be able to be emotionally stable, not just for me but for my husband and particularly my children and the medication allows me to do this. Obviously, I'm not a doctor and I'm not saying this is the right thing for you but perhaps it's an idea you could explore.
I would also add that in my (limited) experience, oncologists/surgeons/doctors do not pull any punches when talking to you about your diagnosis. If your oncologist isn't overly concerned about something, you don't need to be concerned either.
I'll keep everything crossed for you! Sending you huge hugs.............................
Jun 13, 2019 07:52PM Star111 wrote:
Hi Sporty Mom.
I’m sorry to hear about your diagnosis. I went through the exact same emotional situation too. I lost weight at first and couldn’t wrap my head around everything and thought the worst too. It’s shock you are feeling. But please know that as scary as it all is, the doctors know their stuff and the treatments today are better than ever in the past. I’m two weeks post op today and I start treatments in the future as soon as I’m more healed so I’m pretty new to all this but your family and your community are there for you and we are here for you. I’m not sure if you’re a woman of faith or not but what ever you believe in, hang onto it because it helps a lot to feel love and care from that kind of thing. Well, I find it helpful. It’s actually opened my eyes up to what I can do to get closer to God while going through the valley so to speak.
Thinking of you. Hugs and bright blessings.
Jun 14, 2019 12:22AM MayDayMelK wrote:
I am dealing with the electric shocks through out my breasts and some other symptoms. Currently waiting an MRI as my mammogram was abnormal. Thank you for sharing your story