Jul 16, 2019 06:34AM Mavericksmom wrote:
I am so sorry you are going through this.
I was diagnosed with ILC in Dec of 2018. Since it was around the holidays and I was in shock because I had been cancer free for almost 16 years, I didn’t get a second opinion. Biggest mistake I ever made as I too wanted a BMX and was refused because the cancer hospital I went to won’t remove a healthy breast unless the patient is positive for the BRCA genes. I ended up with a single mastectomy and now I am looking at another surgery next summer to remove my so called healthy breast.
ILC tends to occur in both breasts. There is great information on this website about ILC. They are finding out more and more that it behaves much differently than IDC.
There is on particular thread here that has a great deal of information: Did you know where ILC recurs by Texas357. Worth reading. Go to All Topics and then ILC
I have a strong family history too, though I am BRCA negative. I am going for Risk Assessment in the fall. My mother and two of three sisters had breast cancer. My oldest sister had lymphoma at the same time, then got MDS and sadly passed away from that. I was 49 when first diagnosed
If you feel confident with the breast surgeon you see great, but a second opinion at another practice never hurts. Don’t let them rush you into anything. Of course time is important but the wrong team of doctors isn’t good either!
Wishing you the best, please keep updating how you are doing!