We are 222,923 members in 82 forums discussing 156,988 topics.

Help with Abbreviations

Topic: What do you ladies think?

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Jul 23, 2019 07:04AM

arizonaboundgal wrote:

I was diagnosed with ILC a week ago. Met with the surgeon last week and really liked her. She works out of MGH and has been in practice for many years. I felt good about my decision to go with her, but last night she really pissed me off.

She called to check in and talk with me after she'd given me time to think about my decision regarding single or double mx and to answer any questions that I might have. OK, cool. BUT she called from her cell phone on her way home from NH and because reception was awful, I couldn't understand half of what she said and the call was dropped twice. I had to keep telling her that I couldn't understand her and I wanted to say, "You know, this is kinda important stuff we're discussing and I really need to hear your answers clearly!" I did have several questions that I never even bothered asking, and it left me wondering about my decision to have her as my doctor.

I get that she's a busy woman and that she needs to multitask, but I was really aggravated about the exchange and now I'm a bit aggravated with myself for not asking her to call me back later so I could hear what she had to say. Should I voice my displeasure to her or am I making a big deal out of it? Ultimately, what matters most is that she's skilled at surgery, but I felt the phone call was very unprofessional. Any thoughts?

Enjoy every sandwich--Warren Zevon
Log in to post a reply

Page 1 of 1 (14 results)

Posts 1 - 14 (14 total)

Log in to post a reply

Jul 23, 2019 07:58AM AliceBastable wrote:

She called you after hours to check on you and go over your decision? That's a keeper. The crappy cell service is not her fault.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jul 23, 2019 08:05AM Ingerp wrote:

My first thoughts were along the lines of Alice's. I love a doc who will try to get in touch as soon as they have the information and time to talk. My BS called me about 5:00 on a Friday with results from my 2016 biopsy. I asked when we could meet to discuss options and he said, "How about now?" Loved that guy.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/22/2016 Lumpectomy Surgery 4/19/2016 Lumpectomy: Left Radiation Therapy 5/17/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/12/2018 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/17/2018 Herceptin (trastuzumab) Chemotherapy 5/17/2018 Taxol (paclitaxel) Radiation Therapy 8/19/2018 Whole-breast: Breast
Log in to post a reply

Jul 23, 2019 08:29AM Spookiesmom wrote:

Yeah, sounds like my PCP. A keeper.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
Log in to post a reply

Jul 23, 2019 08:50AM SimoneRC wrote:

Love that she phoned you from the car. Feel free to leave her a message letting her know the call reception was super choppy and you were hoping to chat with her for a few minutes again. Based on the first call, I would guess she would have no problem taking the time to chat with you again. Hopefully with less noise on the line! Good luck and please keep us posted

ATM Gene Mutation, Deletion. IDC w/Lobular Features and Focal Mucinous Features. Pre Pectoral Reconstruction. Hysterectomy Surgery 4/6/2018 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 5/5/2018 Arimidex (anastrozole) Surgery 7/3/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/29/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/29/2019 Prophylactic ovary removal Surgery 8/5/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting
Log in to post a reply

Jul 23, 2019 08:55AM Scrafgal wrote:

Definitely a keeper...she was trying to do a good thing but didn't think about how it might happen in execution. During this time, we are hyper stressed and so keep in mind that this incident doesn't change her qualifications and, to me, makes her seem really attentive.

Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/5/2017 Mastectomy: Right; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 3/22/2017 Taxol (paclitaxel) Chemotherapy 6/14/2017 FAC Hormonal Therapy 9/27/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/12/2017 Reconstruction (right): Fat grafting, Silicone implant Surgery 3/15/2018 Reconstruction (right): Nipple tattoo Surgery 5/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting Surgery 5/9/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting
Log in to post a reply

Jul 23, 2019 09:33AM Betrayal wrote:

Definitely a keeper. I would have given my eye teeth to have a surgeon who listened and reached out to me. You are blessed to have her and I would leave her a message as Simone RC recommended.

Dx 1/7/2016, DCIS/ILC/IDC, Left, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 1/31/2016 Lymph node removal: Sentinel Surgery 1/31/2016 Lumpectomy: Left Surgery 3/3/2016 Lumpectomy: Left Radiation Therapy 3/31/2016 Whole-breast: Breast Hormonal Therapy 6/24/2016 Arimidex (anastrozole) Hormonal Therapy 5/18/2017 Femara (letrozole)
Log in to post a reply

Jul 23, 2019 10:33AM arizonaboundgal wrote:

Wow. Thanks, for the feedback, ladies. I guess I just felt frustrated because I had so many questions for her that I didn't get to ask. Maybe I'll try to contact her via email. I'm happy that you all felt that it was okay...my first impression of her was really good. Thanks, again.

Enjoy every sandwich--Warren Zevon
Log in to post a reply

Jul 23, 2019 11:10AM Runrcrb wrote:

agree with all of the above. Beyond skilled surgeon, you want a doctor who understands the human side of this diagnosis and she sounds like one who does.

Dx 6/27/2016, IDC, Right, 1cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Dx 6/27/2016, ILC/IDC, Right, 2cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Surgery 9/22/2016 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/9/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/23/2017 Arimidex (anastrozole), Aromasin (exemestane) Surgery 12/13/2017 Reconstruction (right): DIEP flap
Log in to post a reply

Jul 23, 2019 01:06PM Rrobin0200 wrote:

Arizona,

I’m sorry, but if she called you from her cell phone AFTER HOURS to touch base, I surely wouldn’t be pissed off at her. Bad reception is not her fault.

Dx 3/6/2017, DCIS, Left, 1cm, Stage 0, Grade 3, 0/4 nodes, ER-/PR- Surgery 3/31/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Log in to post a reply

Jul 23, 2019 01:09PM Wised wrote:

I would have given my eye teeth for a surgeon like that. Mine never checked w me nor my file and mistakes were made.

Stage 3 colon cancer treated in 2015/16. Factor 13 bleeding disorder. OncotypeDX 8. Lymphedema dx 3/19. Dx 9/12/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/9/2018 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 10/17/2018 Arimidex (anastrozole) Radiation Therapy 11/18/2018 Whole-breast: Breast
Log in to post a reply

Jul 23, 2019 03:54PM arizonaboundgal wrote:

I totally didn't mean to come across as demanding or ungrateful. You are all right. The bad reception wasn't her fault. Think I've got me a case of misdirected anger! What I should have done was ask her to call later in the week; I'd been waiting for her call and was disappointed/frustrated that I could only hear every other word she said. .Thanks for being such straight shooters, ladies.

Enjoy every sandwich--Warren Zevon
Log in to post a reply

Jul 23, 2019 03:57PM edj3 wrote:

Hey we get it. As I told my husband when I got super snotty a few weeks ago, "I'm not mad at you, I'm mad near you."

Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 5/31/2019 Whole-breast: Breast
Log in to post a reply

Jul 23, 2019 06:27PM arizonaboundgal wrote:

LOL, edj3. "I'm mad near you" Love it and thanks for understanding. I'm really usually pretty chill but this diagnosis has messed with my head big time. Hope that you're healing up well.

Enjoy every sandwich--Warren Zevon
Log in to post a reply

Jul 23, 2019 06:55PM beep7bop wrote:

I Like the " I'm Mad Near You" Very true, this Breast Cancer throws you for a loop no matter how strong you are. Then when it doesn't go by the plan you really Go Nutty.

Dx 3/11/2019, ILC/IDC, Both breasts, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right

Page 1 of 1 (14 results)