Log in to post a reply
Aug 14, 2019 04:48AM
I see that you are in NJ. So am I. Take some comfort in the fact that in this state you are most likely to get very high quality care. There are several NCIs in the state and if you are not a patient at one right now, I would recommend getting a second opinion at one of them just to put your mind at ease knowing there is a consensus regarding your treatment plan.
As for your anxiety, I completely understand. I cried for days after my dx. Ask for something to help with your nerves, absolutely no reason to have to deal with that on top of everything else. I needed to have my husband with my at appointments as I had a really hard time comprehending anything that was being said to me.
I had the same dx as you, ER/PR and HER2+. I know it is scary, but the prognosis for our specific type has improved markedly in the past decade. The HER2 makes the treatment plan longer with having to have Herceptin/Prejeta for a year, but they are miracle drugs for us. I did not have any side effects from them and so far after a year and a half on Exemestane (hormone blocker), I am just a little stiff in the mornings (I take Glucosamine and Chondroitin which helps greatly). Chemo was not a walk in the park, but with the anti nausea and anti vomiting drugs they give you, I was not sick one day. Yes, you start to feel tired and weak towards the end, but if you are in relatively good shape, you will be able to handle it. Radiation for me was just the inconvenience of having to go everyday for 6 weeks.
Everyone will tell you that this is worst time, just being diagnosed with no treatment plan in place. Once you start treatment, you really do feel like you are doing what needs to be done to eradicate this from your body no matter what side effects you may (or may not) have. It is a sense of taking back control of your life and your body.
Please feel free to private message me if you like. I am here to help if I can.
9/19/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC)
10/17/2017 AC + T (Taxol)
3/22/2018 Lumpectomy: Left; Lymph node removal: Underarm/Axillary
4/23/2018 3DCRT: Breast