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Topic: Lumpectomy vs Mastectomy, how to make that hard decision?

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Oct 17, 2019 07:52AM

San1975 wrote:

Good morning everyone,

I saw the breast specialist yesterday. I was diagnosed with stage 2 ILC two small spots (approx. 2mm each) but there is approx. 5 cm area of extensive classical lobular carcinoma in situ. I'm scheduled for BRCA testing Friday, they stated that will help direct with which way to go. My head is still spinning from all the information I received yesterday. My BS was very thorough and very sweet and made sure I understood all my options. I do have two separate appointments with two plastic surgeons to see what my options are. Its such a difficult decision and knowing which one will be best!

Dx 10/16/2019, LCIS/ILC, Right, 5cm, ER+/PR+, HER2- Surgery 12/31/2019 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Oct 17, 2019 10:35AM ctmbsikia wrote:

Hi San, I'm going to try and link you to another topic that is on going on this site. I think if you read through it, it should help.

So sorry, best wishes to you in your decision.

https://community.breastcancer.org/forum/68/topics...


Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Oct 17, 2019 01:57PM San1975 wrote:

Thank you ctmbsikia for your response, reading that thread now :)

Dx 10/16/2019, LCIS/ILC, Right, 5cm, ER+/PR+, HER2- Surgery 12/31/2019 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Oct 17, 2019 02:33PM trinigirl50 wrote:

hi San

It's probably worth checking out the ILC threads as well. Just to give you a heads up that ILC is not always discernible on various scans sometimes even MRIs are not completely diagnostic.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Oct 17, 2019 02:39PM trinigirl50 wrote:

If you scroll through the various threads on the ILC main thread, there are a couple referring directly to your questions. But you might have to go back a few pages.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Oct 18, 2019 12:02PM San1975 wrote:

Thank you as well trinigirl50, I will check that out that thread as well. That is my concern that ILC is hard to detect and I don't know if I want to live with that worry....so I understand why women decide to go the mastectomy.

Dx 10/16/2019, LCIS/ILC, Right, 5cm, ER+/PR+, HER2- Surgery 12/31/2019 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Oct 18, 2019 12:21PM Slg1324 wrote:

thinking of you San ❤️

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/4/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Oct 18, 2019 05:54PM San1975 wrote:

Thank you sig1324, I appreciate that. Thinking of you too Heart

Dx 10/16/2019, LCIS/ILC, Right, 5cm, ER+/PR+, HER2- Surgery 12/31/2019 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Nov 9, 2019 07:21PM LillyWasHere wrote:

Hi San, what did you decide? I was diagnosed with ILC in August 2019. I was recommended lumpectomy but I decided to have double mastectomy. I am so glad because they found cancer in 2 out of 5 lymph nodes.

I wish all goes well for you.

Dx 7/31/2019, ILC, Left, <1cm, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/1/2019 Femara (letrozole)

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