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Topic: No Cancer found in breasts

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Oct 21, 2019 05:12PM

nurse2b10 wrote:

I was diagnosed with cancer of an unknown origin in March of this year. The cancer was found in the lymph nodes under one arm. One lymph node was removed and the cancer showed I am positive for HER2 with a +3. I had 12 rounds of intensive chemo and because of the HER2 they have classified it as breasts cancer although the biopsy showed none. I have no tumors though I felt I might have inflammatory breast cancer because of the hardness I saw in one area. I had a double mestectomy three weeks ago. They found no cancer in my breasts. Has this happen to anyone else. Now it's a wait and watch game because we are not positive where the cancer came from that was in my lymph nodes.I will be receiving chemo (hisplating) and radiation under that arm. It's scary.

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Oct 21, 2019 05:37PM - edited Oct 21, 2019 05:40PM by WC3

Hi nurse2b10:

I'm sorry that you've had to join us.

I believe esophageal cancer can also be HER2 positive but if it's in the lymph nodes typically associated with breast cancer then I would think that it probably is breast cancer, by Occam's razor, but I'm not an expert.

Sometimes the cancer spreads and then the primary tumor, which may have still been microscopic, disappears. If it remained microscopic it's also possible that the pathologist missed it in thr breast tissue.

Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Oct 21, 2019 05:46PM GlobalGal wrote:

Dear Nurse2be10,

Metastatic breast cancer was found in 3 of my neck’s central lymph nodes in March 2019 (following a complete thyroidectomy),but none was found in my breasts. Apparently, there is nothing yet to cut out, or treat with chemo, or radiate. So, I am being treated with an Aromatase Inhibitor. I have a follow up PET scan on 10/29. The waiting and watching is exhausting!


De novo stage IV metastatic breast cancer with metastases to 3 central lymph nodes in neck following complete thyroidectomy for papillary thyroid cancer WITH NO PRIMARY BREAST CANCER IDENTIFIED and NO OTHER METS (so far) Dx 3/20/2019, Stage IV, metastasized to other, ER+/PR+ Hormonal Therapy 6/4/2019
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Oct 21, 2019 06:07PM Beesie wrote:

Cancer cells do not all look the same and the source can be identified. Breast cancer cells look like breast cancer cells under the microscope, not like any other cancer cells. So if your cancer was identified as being breast cancer, then that's what it is.

Since you had chemo before your bilateral mastectomy, it's very possible that the chemo successfully killed off all the cancer cells in your breast.

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Oct 22, 2019 06:22PM nurse2b10 wrote:

Thanks to all the replies. I spoke with my surgeon today and he said some of the reasons that you guys have given me. I feel better about having my breast removed. It's still wait and watch because of the number of lymph nodes that were involved so I'll do radiation and more chemo. Biggest thing is prayer.

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Oct 23, 2019 02:33PM Snaffle53 wrote:

I’m pretty much in the same boat. Enlarged lymph node found incidentally with chest CT. It was biopsied. And breast cancer diagnosed. Then mammogram and MRI found no tumor in my breast. I’m on the AC and T regimen. Just started Taxol today. I plan to have a DMX with lymph node removal after chemo followed by radiation. I’m hoping to be very aggressive this round and hope to avoid reccurance. I have TNBC and was simply luck to catch it before stage IV.


Dx 8/23/2019, Right, 2/9 nodes, ER-/PR-, HER2- Chemotherapy 8/28/2019 AC + T (Taxol) Surgery 2/25/2020 Mastectomy: Right; Prophylactic mastectomy: Left Surgery 2/25/2020 Lymph node removal: Underarm/Axillary
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Oct 26, 2019 12:07AM nurse2b10 wrote:

I'm so sorry. It's scary i know. They have found a lesion in one of my kidneys and are talking about removing the whole kidney. I was okay with losing my breast but losing a kidney is another matter. Cancer sucks. I just have to depend on the Lord to see me through. I will remember you in my prayers.

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