Nov 6, 2019 01:09PM - edited Nov 6, 2019 02:14PM by Spoonie77
If I could do mine all over again, knowing what I know now and how anxious I am about recurrence (given I can't be on any endocrine therapy due to allergy) and facing a risk of 28-35% recurrence w/o therapy,I wish I could go back and do a BMX.
I was negative for genetics even though my Mother had BC, my Aunt, and my Cousin. My Father had Prostate cancer and my Sister Ovarian cancer. Yet still, the drs suggested a LMPX was all I needed and despite the clean bill of health, genetic testing wise I still I was recently dxd with Thyroid Cancer. I'm hoping it's not BC Mets.
Next time I see my MO this is on my list of questions for her and if I choose could I go back and have it done as a preventative since again the no available therapy for me.
Anyway, sorry to ramble but just remember that everyone's journey is different and that whatever decision you make, if you are at peace with it that's a very important factor. I was at peace with my LMPX in 2018 and couldn't fathom the idea of being a single lady with multiple chronic illnesses finding a partner in the future after a BMX. At that time, I had tons of treatment options and it seemed "easy peasy". A year later, it's a very different picture, not so "easy peasy" after all and I just want to be alive to date in 5 years if I choose.
Here's hoping your genetics are negative, no LN involvelment, and staying distracted while you wait. For me the waiting was the hardest part. Hang in there. You are not alone.