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Nov 27, 2019 08:43AM
Minus two, I had the same experience--"good" breast showed hyperplasia in the post-surgical dx that could have been trouble down the road, and an US, mammo, and MRI never revealed it. I knew I had dense breasts--but no medical person ever told me that they make it harder to detect tumors on any scan. So I was clueless.
For me, it was a trust (lack of trust?) issue. I had 5 clear mammos that made me feel falsely secure for five years. Finally, and miraculously, I found the lump through a random self exam. Had I had big boobs, or been overweight, I might not have found it at all until it was much bigger. By the time I was dx, I had 6 + nodes.
We are all unique, and need to feel as secure in our own bodies as we can. I knew I'd never, ever, trust scans again because of the nature of ILC to hide from scans and my own devilishly dense breasts. I have never been so relieved to know that there was a lot less breast tissue on my body to cause problems in the future. We all know there are no 100% guarantees, but it's helped me be able to move forward with my life a bit more easily.
Do I miss my breasts? Often. Do I miss the worry about what they brought to me? Never.
I don't know if diet will help us make a decision about whether to remove our breast tissue or not, but less adipose tissue (lower BMI) means estrogen doesn't get to hide out in our bodies--as research has proven--and feed ER+ cancers. Not all of us have hormone + dx, not all of us have IDC (easier to detect), etc. etc.
Best of luck in your decision. I had to listen to my intuition, finally, and ignore all the white noise that "should I/shouldn't I" brings, finally, to come to a decision I alone could live with.
Claire in AZ
9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus