Join Us

We are 216,745 members in 84 forums discussing 160,184 topics.

Help with Abbreviations

Topic: Grade 1 or Grade 2? Nottingham Score of 4.

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Jan 13, 2020 10:13PM - edited Jan 13, 2020 10:48PM by Anne2871

Anne2871 wrote:

Hello. So I finally got my medical records, which explain all the details about my diagnoses. 6mm tumor.IDC Er/Pr+, Her2-Stage 1a (0/5 lymph nodes), grade 2. According to the Nottingham Scale, the breakdown is: (2+1+1=4.). After obsessively reading about the Nottingham Score and grade, it sure seems like I'm a grade 1. Plus, it was described as “well differentiated," which is consistent with grade 1. I emailed my doctor about this and she wrote back that she would review with pathology. 🤷🏻♀️ Has this happened to anyone else? I know that the grade isn't necessarily important for treatment, but I still want to know.

Thanks. Stacey.

Dx 12/6/2019, IDC, Left, <1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 12/15/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/10/2020 Whole-breast: Breast
Log in to post a reply

Page 1 of 1 (8 results)

Posts 1 - 8 (8 total)

Log in to post a reply

Jan 13, 2020 10:28PM MinusTwo wrote:

Stacey - it's more important to determine if you are ER or PR +/- and HER2 +/- in order for the docs to recommend what treatment. And maybe to get genetic testing based on those answers. Grade can change and may be different after surgery anyway.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Jan 13, 2020 10:47PM - edited Jan 14, 2020 10:17PM by Anne2871

This Post was deleted by Anne2871.
Dx 12/6/2019, IDC, Left, <1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 12/15/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/10/2020 Whole-breast: Breast
Log in to post a reply

Jan 14, 2020 07:09AM Beesie wrote:

Anne, yes, from my understanding, a '4' Nottingham score should be grade 1.

When I first read your post, I was wondering if you might have one element of the grade that straddles two scores - in the detail of my pathology report, my nuclear grade was noted as being a '1' in one area of my pathology and '1-2' in another area, so it was counted as '2' in my Nottingham grade, which bumped up my grade from a 1 to a 2. But that wouldn't make sense for you since Nottingham scores of 3, 4 or 5 are all counted as being grade 1.

Grade actually can impact the Stage, based on the new pathological prognostic staging criteria included as part of the AJCC Breast Cancer Staging update in 2018. In your case, with such a small tumor and being ER+/PR+, you would be Stage IA whether your tumor is grade 1, grade 2 or grade 3, but if your tumor was either PR- or larger, a grade increase could increase the Stage.

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
Log in to post a reply

Jan 14, 2020 08:06AM KathyL624 wrote:

My score was the same as yours and they call it Grade 1. In fact, the first hospital, where I had my biopsy, gave me a score of 5 and they still called it Grade 1.

Dx IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
Log in to post a reply

Jan 14, 2020 12:06PM Cpeachymom wrote:

yes, that happened to me. My biopsy was listed as grade 2. When my slides were transferred, new place listed as grade 1. I was the only one who caught the difference. When my doc looked into it, the biopsy place only went by the nuclear grade ( I think that’s what it was, it’s kinda fuzzy now) and not the whole score. You’d think everyone would use the same system, turns out they don’t! I don’t remember what my exact breakdown was for my score, but it was a 5.

39 at Dx. Fate whispers to the warrior, 'You can not withstand the storm.' The warrior whispers back, 'I am the storm.' Dx 6/21/2017, IDC, Right, 4cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- Surgery 7/5/2017 Lymph node removal: Sentinel; Mastectomy: Right Hormonal Therapy 9/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/18/2017 Lymph nodes, Chest wall Surgery 10/10/2018 Reconstruction (right): Tissue expander placement Surgery 3/24/2019 Reconstruction (right): Saline implant Hormonal Therapy Zoladex (goserelin)
Log in to post a reply

Jan 14, 2020 12:08PM redhead403 wrote:

Mine changed a bit from biopsy to mastectomy in a favorable way

Surgery 4/16/2019 Lumpectomy: Left Dx 9/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 11/7/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 1/6/2020 Whole-breast: Breast
Log in to post a reply

Jan 14, 2020 03:41PM farmerlucy wrote:

I had a mistake on my pathology report that listed me a pt1a, when in actuality it was pt1c. I brought it to the attention of the head of BC Surgery and he was going to tell the powers that be about it. Apparently pathology mistakes are not that uncommon.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
Log in to post a reply

Jan 14, 2020 10:18PM Anne2871 wrote:

Thank you for the replies...

Dx 12/6/2019, IDC, Left, <1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 12/15/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/10/2020 Whole-breast: Breast

Page 1 of 1 (8 results)