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Topic: Confirmed cancer, waiting for complete pathology

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Aug 15, 2020 11:37AM

Charlotte417 wrote:

Hi all,

I got the call yesterday, IDC grade 3 on the left. I don't have the results for hormone receptors yet, should know early this week. I have a mammogram scheduled for the other side (right) this coming week, a breast MRI scheduled for the week after, and a preop appointment on 8/31. At this moment I have no idea what I should be doing. I don't want to panic and go down a research rabbit hole but I know things can happen quickly so I want to be prepared and be taking the right steps right now. Encouragement and advice welcome.

A little about me: I'm 35, married, 3 children (7f, 5m, 2f), and live in the Tampa Bay area.

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Aug 15, 2020 12:05PM JavaJana wrote:

I'm sorry for your news and that you're here, but this site is a wealth of useful information. It looks like they've got you all set for the next steps. Until you know know more from the pathology and imaging, you just have to wait since the treatment plan will be unique to those features - chemo or no, which drugs, even surgery type and radiation, etc. So if you can distract yourself with something else this weekend, do that! Or if reading 80 gazillion posts on here helps, do that lol. But I do feel it is easier to digest only the details more appropriate to your diagnosis as ALL the treatments discussed here would be overwhelming. It does get a little easier to handle once the plan gets going, and you will find your tribe on here will support you through it! Prayers and hugs - Jana

Xgeva 9/2/2020. History: 2 Borderline Serous Ovarian Carcinoma TAH/BSO, 0/15 nodes - 2/18/20. Benign Papilloma/ADH Left breast, excisional biopsy 10/11/2016 Dx 10/1/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (IHC) Dx 10/23/2019, LCIS/DCIS, Right, 0/1 nodes Surgery 11/19/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 3/25/2020, IDC, Stage IV, metastasized to bone, 0/2 nodes Chemotherapy 4/8/2020 Taxotere (docetaxel) Targeted Therapy 4/8/2020 Herceptin (trastuzumab) Targeted Therapy 4/8/2020 Perjeta (pertuzumab) Hormonal Therapy 8/13/2020 Femara (letrozole)
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Aug 15, 2020 06:16PM dread2020 wrote:

We're similar -- I was diagnosed with left IDC/DCIS on Thursday, and with a ki-67 of 40%, meaning highly aggressive, I suspect it's grade 3. Will have MRI with contrast hopefully sometime next week, and scared to death of what else they'll find. My appointment with the breast surgeon is on Monday.

And...although 47 myself, I also have young kids (2yo boy and 6yo girl), and that's what this is all about for me... Everyone says this period of not knowing and dreading is the worst of it. I pray that's true...

Sorry that I don't have any useful info for you. I'm sure you'll get encouragement and advice from experienced members, but it might be nice to share with someone who is in a similar situation. Feel free to PM me!

Dx 8/13/2020, DCIS/IDC, Left, 1cm, Grade 2, 2/2 nodes, ER+/PR+, HER2- (IHC)
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Aug 15, 2020 09:24PM SpecialK wrote:

charlotte - sorry you find yourself here - especially at such a young age, but this site is a great place for support, information, and encouragement. I am here in Tampa if I can help you in any way. Your hormonal receptor info is key in helping determine next steps. There are some receptor arrangements that indicate neoadjuvent chemo (generally triple negative and triple positive) so it is important to know before any decisions are made about surgery. The MRI is also important and will help your surgeon make a thoughtful recommendation about type of surgery for you. Once you know your receptor and Her2 status you might want to schedule an appointment with a medical oncologist as well. You might want to meet with more than one as the oncologist is usually the longer term relationship - I don’t know if most here locally are doing in-person consults or if it is by telemedicine. Have you given thought to what type of surgery you are interested in? One thing you can do in the meantime is read about the pros and cons of surgery type and/or reconstruction if that is something you are interested in. Do you have any specific questions I can answer?

dread - sorry you are also here in the same boat! Hang in there

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Aug 27, 2020 11:50PM - edited Aug 27, 2020 11:51PM by Nor_Cal_TKD

This Post was deleted by Nor_Cal_TKD.
Surgery 7/29/2020 Lumpectomy: Left Dx 8/11/2020, IDC, Left, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy Breast
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Aug 27, 2020 11:52PM Nor_Cal_TKD wrote:

It's my first post — I don't know exactly where to begin or if this it's in the right boardso I'll just start ... I am 51 and my cancer diagnosis date was 8/11/20. Invasive ductal carcinoma of the left beast. Lumpectomy on 7/29 was of a tumor deep at the chest wall, but a small tumor, and is a more uncomfortable healing process than I was prepared for. Also, two unresolved tumors (since January 2019) exist in the right breast that appear similar in construct as the left as best as I can decipher from the radiology reports. It has been difficult to find competent breast care in my region until fairly recently. Anyhow, I went back to work for the first time since Covid the next morning after the diagnosis and felt like my head was spinning in unreality. I'm a part-time teachers aid in a special ed classroom (no students yet, just the teachers and classified staff).

I am also preparing for my sons wedding that is just over two weeks away. He is new in law enforcement and the stress over the last few months has been hard on all of us. This close to the wedding the stress is fever pitch!

Also worth mentioning but difficult to write about is a complex mental health diagnosis I have that derives in large part from complex trauma: a domestic violence murder-suicide in 2016. I also was displaced from my 17 year career in educational administration in 2013. I underwent intensive outpatient mental health services and have been under psychiatric care since 2018.

With the latest incidents In CA of widespread fire - smoke, destruction, loss of life and property I feel as though all is unraveling in life - never be the same again. I haven't spent adequate time studying/understanding my cancer diagnosis and next steps. I want it all to be a terrible mistake. I think my family is largely ignoring it as well, which is bittersweet for me. I can't imagine things will get easier as cancer treatment progresses; and I fear an outcome in which I literally am simply not strong enough mentally (or physically?) to survive.

Surgery 7/29/2020 Lumpectomy: Left Dx 8/11/2020, IDC, Left, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy Breast
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Aug 28, 2020 02:48AM WC3 wrote:


I'm so sorry you have had to join us and for all of the difficult things you have been through. You are facing a lot of unknowns right now, which is always scary, but I think you will find that things will get better once you have a treatment plan in place.
Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 28, 2020 03:25AM Moderators wrote:

Nor_Cal_TKD, we are so sorry for all you are going through, but wanted to send you a warm welcome to our Community. We know how hard this whole breast cancer thing can be... but you'll find support, care and information among this wonderful group of people. Please come back often and let us know how you're doing. We are here for you anytime.

Many hugs!

The Mods

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Aug 28, 2020 06:29AM JUDY_MEIBACH wrote:

Thank you for your candor - I identify with you on a number of levels, and am glad that I came to this site to receive information and support

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Aug 28, 2020 05:13PM arabiansrock wrote:

NorCal - your post scares me. You have been through a lot recently, and it sounds like you do not have a good support team in place. Do you have any extended family that can step in and help? Have you been assigned to a medical oncologist yet? What about a radiological oncologist? Your time line was also confusing, diagnosed 8/11 but had lumpectomy 7//29? And have tumors in rt side that were found in 2019? Did you do anything about them? Have they been biopsied?

Where in NorCal are you? Are you near a larger city like Sacramento, REdding, or San Francisco? Most Cancer centers have support groups, although how they are working now with COVID, idk, I haven't tried to join my local one yet.

You may need to double down on your mental health care to help you get through this difficult period. Make sure your psychiatrist is kept up to date with how you are feeling, and any feelings of helplessness or hopelessness need to be reported to them asap. Also let them know if you are not getting adequate sleep, that will be crucial to helping keep both mind and body as healthy as possible.

I understand the feeling of fear that this world is falling apart. However the world has seen worse and survived. We are quite resilient as a species.

Your family may be acting as though your diagnosis is nothing because they are having trouble facing their new reality of having a sick mother/wife. My son is reacting that way. Just have it cut out and you will be fine. Its not that bad. He knows better, but he simply cannot face considering what could be. Everyone reacts to bad news, especially illness, in different ways. Unfortunately we cannot guarantee they will reach in a manner that gives us the support we need.

Post here, people will answer and support you. Take care

biopsy Jul13, 2020, dx lt idc grade 2 and DCIS. RT Radial Scar/sclerosing lesion. Aug 19, 2020 bilateral lumpectomy
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Aug 28, 2020 06:28PM KeepingCalm wrote:

Charlotte416 I was in a very similar situation to you 6 months ago in terms of age and 3 kiddos around the same age. I am relieved to say I just completed my active treatment - surgery and chemo and am now a few weeks into endocrine therapy as my tumor was HR+. All to say that while this is not easy, especially with young kids at home amidst a pandemic, you can make it through too! If I can answer any questions, feel free to pm me.

Dx 2/2020, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/23/2020 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 5/7/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 28, 2020 07:02PM dread2020 wrote:

Nor_Cal, I am still reeling from my IDC diagnosis 2 weeks ago. I also have underlying trauma, although probably not as severe as yours, that is adding to the difficulty coping. It may not feel like it, but the number one thing you can do for yourself and your family now is to get a full picture of your medical situation. It sounds to me like you need to get on the radar of health care professionals that can monitor you and give you instructions for next steps. As you receive more information, you can post it here and have members give advice and support. Do your psychiatric care providers know about your cancer diagnosis? If not, please tell them right away, and ask what resources/services they can offer.

Lots of people in this forum have told me that the time from diagnosis until beginning of treatment is the absolute worst. I'm still in the pits, often overcome with despair, but I'm clinging to that hope.

Dx 8/13/2020, DCIS/IDC, Left, 1cm, Grade 2, 2/2 nodes, ER+/PR+, HER2- (IHC)
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Aug 28, 2020 07:16PM Spookiesmom wrote:

I’m near Clearwater, where are you? I had all my tx at Morton Plant, Blumenkrantz was my surgeon. If you’re close to Tampa, Moffitt is excellent too. The waiting IS the worst, once you have a plan, it feels like you’re doing something and it gets easier. Feel free to PM me if I can be of help locally.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Aug 31, 2020 07:03PM beach2beach wrote:

Sorry you had to join us but welcome. I'll repeat what everyone else has said,,,once you have all your information and a plan in place,,you get some control back. You will do it for your kids and for yourself. I was older and so were my kids, but still my kids. I worried about the unknown I won't lie, I cried and cried. You will get through this and one day you will sit down after getting those kids to bed and realize you have'nt thought once about having had breast cancer. It's nice to have those days back. :)

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 29, 2020 03:15AM Nor_Cal_TKD wrote:

Howdy ~ First off-Yikes! I’m sorry I didn’t realize that people had replied to me directly here in this thread... I’m usually fairly savvy with these types of things but for some reason this forum/topic/board format baffles me and feels counterintuitive...:-/. ... Maybe it’s just the tiny phone screen that makes it so hard...? Is there a quick way to know if a post in a thread is directed to you or mentions you in it? Anyhow ... I’m stubborn and I’m need of support so I’ll stick around :)
I apologize for having concerned anyone (none of US need anything more to worry about!) and I am working with not only my psychiatrist of 2+ years on this, but also a psychiatric oncologist through the hospitaL system.. My support ‘system’ really is 3 people that are very loving and close to me that check on me via text or phone several times a week since they live between 6-11 hours away from me. I live 2 hours north of Sacramento and it’s very rural here. My parents are deceased and I have no siblings. I have a half brother (68 yo) who had cancer last year himself but he lives out of state.
All of the in person support programs I’ve called are nonexistent in our area because of covid. My husband (of 21 yrs) is apparently just not capable of this type of caregiving and has never been (for even a common cold let alone this). My 4 adult kids are fairly close by but who knows if they’ll come around anytime soon.
i DO look forward to getting to the productive/treatment’ part; but it’s very obviously NOT a walk in the park .. which scares the heck outta me because we can’t afford for me to get sick during chemo or radiation ...& to not have my job and my health insurance. :-(
I’ll try to fix the ‘diagnosis’ part of my profile as well. What I know (to date) is the left tumor was IDC with clear margins & it was removed on 7/29 and I got the path report from the surgeon on 8/11. After I coerced her, she agreed to excise the lump from the right at the time she did surgery for the left side sentinel node (1 node removed - on 9/23). I get the path report/s from the 9/23 surgeries on 10/8. This is all AFTER they ‘punch’ biopsied both sides in December 2019 and told me both sides were benign- false negative! Boo!

Thank god for the 6 mo f/up mri that was scheduled in June 2020! &... Before THAT I was seeing a male surgeon in another town who tried off and on (Jan-sept 2019) to get a biopsy on both sides ... with no luck! The left tumor was REALLY close to the chest wall. The only other procedure on the schedule for now is the endometrial biopsy (on 10/12) for abnormal pap cells found recently. whew! That’s a lot! I’ll be better about checking this thread in the future :)

Good night :)

Surgery 7/29/2020 Lumpectomy: Left Dx 8/11/2020, IDC, Left, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy Breast
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Sep 29, 2020 06:47AM Spookiesmom wrote:

I think if you go back to your profile you can turn on e mail notification then you will know if someone responded. I’m all over this board, have that turned off. Set it for my favorites then your threads will come up.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Sep 29, 2020 03:53PM - edited Oct 7, 2020 12:08AM by Nor_Cal_TKD

This Post was deleted by Nor_Cal_TKD.
Surgery 7/29/2020 Lumpectomy: Left Dx 8/11/2020, IDC, Left, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy Breast

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