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Sep 24, 2020 08:02AM
So..... waiting sucks. There is a thread here for newly diagnosed. I went on there and picked up a few pointers. I am writing here what I have been busy doing. Hopefully you and others will find it helpful.
First couple of days were rough. Fog, anxiety. Crying. Optimistic. In my mind, I had everything from mastectomy to chemo to radiation etc...Truth is. I do not have a clear path yet. Hard pill to swallow for me.
#1 Against family advise, I chose to tell as many people as I knew about my diagnosis. My family has a belief that people's bad energy can get on your disease or something wierd like that. I found the opposite. I spoke to over 14 women and have gathered a bunch of information and a bunch of referrals to oncologists, surgeons, and plastic surgeons.
#2 I already had a relationship with a surgeon, so I called and made an appointment. During my second biopsy yesterday, I picked the girls brains at the breast center. Found out my surgeon has a team that she works with. I have names of recommended Oncologists, Have an appointment with one, but am now waiting to see what my surgeon says. Appointment next Tuesday.
#3 I read many of the threads in the newly diagnosed section of this site. That day, I gathered all of my paperwork. I also made an appointment to see my primary doctor (had not thought of that!)
#4 I had been taking zoloft at a super low dose for PMS. My primary increased that to a clinical dose. She also prescribed a little xanax just in case. I only took a 10 pill prescription of that because it can be habit forming. We talked about a possible pre-operative consult that will include EKG, XRAY and whatever labs anesthesia might want to see. On that day, I will also get my updated tetanus shot. I forgot to ask, but I need to ask about shingles vaccine. Already got my flu shot this year.
#5 My mood swings have lessened. I am trying not to let my emotional brain take over my rational brain, but it does not always work. I let myself cry, but I try to suppress thoughts about information I do not already have. (NOT EASY).
I wish you luck. Will share any other tips.....
9/21/2020, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- (FISH)
9/25/2020, LCIS, Left, 1cm